What difficulties are experienced by caregivers in relation to the sexuality of people with intellectual disabilities? A qualitative meta-synthesis |
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| Institution: | 1. School of Health and Medicine, Lancaster University, Lancaster, United Kingdom;2. The Walton Centre, Liverpool, United Kingdom;1. School of Education, Victoria University of Wellington, Wellington, New Zealand;2. Department of Special Education, University of Texas at Austin, Austin, TX, USA;3. Department of Neuroscience and Sense Organs, University of Bari, Bari, Italy;4. Department of Child and Adolescent Psychiatry and Psychotherapy, University Medical Center Goettingen, Goettingen, Germany;5. iDN - Interdisciplinary Developmental Neuroscience, Division of Phoniatrics, Medical University of Graz, Graz, Austria;1. Women''s College Research Institute, Women''s College Hospital, Toronto, Ontario;2. Institute for Clinical Evaluative Sciences, Toronto, Ontario;3. Department of Psychiatry, University of Toronto, Toronto, Ontario;4. Centre for Addiction and Mental Health, Toronto, Ontario;5. School of Psychology, University of Ottawa, Ottawa, Ontario;1. Department of Gynecology, Women''s College Hospital, Toronto, Ontario, Canada;2. Section of Pediatric and Adolescent Gynecology, The Hospital for Sick Children, Toronto, Ontario, Canada;3. Department of Obstetrics and Gynecology, University of Toronto, Toronto, Ontario, Canada;4. Department of Obstetrics and Gynecology, Toronto East General Hospital, Toronto, Ontario, Canada;1. 21, rue du Chapeau-Rouge, 44000 Nantes, France;2. Département de sexologie, université du Québec à Montréal, case postale 8888, succursale centre-ville, Montréal H3C 3P8, Québec, Canada |
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| Abstract: | The aim of the meta-synthesis was to determine any difficulties experienced by caregivers relating to the sexuality of people with intellectual disabilities and how they address those difficulties. A qualitative meta-synthesis was used to integrate the findings from 17 papers about these topics. The synthesis produced five concepts: ‘Fear and Uncertainty’, ‘Impact of Perceptions of Sexuality’, ‘The Same and Different’, ‘Balancing the Roles of Protector and Facilitator’ and ‘Conditional Sexuality: Conditional Support’. The findings suggest key issues for caregivers in relation to addressing the sexual needs of people with intellectual disabilities and highlight the possible implications of caregivers own views on their practice. These issues are discussed and in conclusion the review offers explanations about what the difficulties for caregivers are and how they might be addressed, as well as recommendations for future research. |
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| Keywords: | Caregivers Intellectual disability Sexuality Meta-synthesis |
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