基于数据治理的先心病专病数据库建设研究

为常见的先天性心脏病建立专病数据库，便于医务人员快捷提取信息。上海市胸科医院先心病专病数据库基于多源数据汇集，设置后结构化、脱敏安全和质控管理等数据治理环节。数据集共包含8个纬度、65个域和781个数据单元，纳入了2 384例患者资料，实现了专病数据管理，为疾病深度分析提供了有力数据支撑。

Construction of Disease-Specific Database of Congenital Heart Disease Based on Data Governance

The establishment of disease-specific database for common Congenital Heart Disease (CHD) is convenient for medical staff to quickly extract information. The CHD database of Shanghai Chest Hospital is based on multi-source data collection, with data management links such as post-structure, desensitization safety and quality control management. The dataset consists of 8 latitudes, 65 domains and 781 data units, including 2 384 patient data, realizing disease-specific data management and providing strong data support for in-depth disease analysis.