出生缺陷患儿对陪护人心理健康影响的调查研究

目的 了解出生缺陷患儿对陪护人心理健康的影响.方法 采用生活质量综合评定量表( generic quality of life inventory-74,GQOLI-74)作为测量工具,对79名出生缺陷患儿的174名陪护人及87名正常儿童的181名陪护人的生活质量进行评价,同时结合症状自评量表(symptom check list-90,SCL-90),对其心理健康状况进行综合研究.结果 出生缺陷患儿陪护人在GQOLI-74量表的4个维度的评分均低于一般人群,差异均有统计学意义(均有P＜0.05)；在SCL-90量表的所有因子的得分均高于一般人群,且在躯体化、人际关系、抑郁、焦虑和精神病性5个因子的差异均有统计学意义(均有P＜0.05)；患儿祖(外祖)父母在SCL-90量表各因子得分普遍高于患儿父母,且在躯体化、人际关系、精神病性3个因子上的得分差异均有统计学意义(均有P＜0.05).结论 出生缺陷患儿对其陪护人心理健康的影响是一个不容忽视的问题,应该引起足够的重视.

Investigation on the mental health of accompanying people of birth defects

Objective To understand the birth defects＇ influence on the mantal health of the accompanying people. Methods 174 accompanying people of 79 patients and 181 accompanying people of 87 normal children were assessed with generic quality of life inventory-74 （GQOLI-74） to detect the quality of life, symptom check list-90 （ SCL-90 ） was used to study the qualification to the mental health. Results The score of GQOLI-74 of accompanying people was obvious- ly lower than those of the general population （ all P〈0.05 ）. The 5 factors＇ scores of SCL-90 of accompanying people in somatization, interpersonal relationship, depression, anxiety and psychosis-like symptoms were higher than those of the normal group （ all P〈0.05）. The 3 factors＇ scores of SCL-90 of grandparents in somatization, interpersonal relationship and psychosis-like symptoms were higher than the parents （all P〈0.05 ）. Conclusions The children with birth defects might bring the accompanying people serious mental health problems, the problem is so serious that should cause enough attention.