The Canadian Celiac Health Survey |
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| Authors: | Ann Cranney Marion Zarkadas Ian D Graham J Decker Butzner Mohsin Rashid Ralph Warren Mavis Molloy Shelley Case Vernon Burrows Connie Switzer |
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| Institution: | (1) Department of Medicine, Ottawa Health Research Institute, University of Ottawa, Ottawa, Ontario, and Queen's University, Kingston, Ontario, Canada;(2) Member, Professional Advisory Board, Canadian Celiac Association, Edmonton, Canada;(3) School of Nursing, University of Ottawa, Ottawa Health Research Institute, Ottawa, Ontario, Canada;(4) Division of Gastroenterology, Department of Pediatrics, University of Calgary, Alberta, Canada;(5) Division of Gastroenterology and Nutrition, Department of Pediatrics, Dalhousie University, Halifax, Nova Scotiae, Canada;(6) Division of Gastroenterology, Department of Medicine, St. Michael's Hospital, University of Toronto, Toronto, Ontario, Canada;(7) Clinical Dietitian, Kelowna General Hospital, Kelowna, British Columbia, Canada;(8) Consulting Dietitian, Saskatchewan, Regina, Canada;(9) Department of Agriculture and Agri-Food, Ottawa, Canada;(10) Division of Gastroenterology, Department of Medicine, University of Alberta, Edmontons, Alberta, Canada |
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| Abstract: | The purpose of this study was to characterize the diagnostic process, frequency of associated disorders, family history, and
impact of a gluten-free diet in individuals with celiac disease. All members of the Canadian Celiac Association (n=5240) were surveyed with a questionnaire. Respondents included 2681 adults with biopsy-proven celiac disease. The mean age
was 56 years. Most common presenting symptoms included abdominal pain (83%), diarrhea (76%), and weight loss (69%). The mean
delay in diagnosis was 11.7 years. Diagnoses made prior to celiac disease included anemia (40%), stress (31%), and irritable
bowel syndrome (29%). Osteoporosis was common. Prior to diagnosis, 27% of respondents consulted three or more doctors about
their symptoms. Delays in diagnosis of celiac disease remain a problem. Associated medical conditions occur frequently. More
accurate food labeling is needed. Improved awareness of celiac disease and greater use of serological screening tests may
result in earlier diagnosis and reduced risk of associated conditions. |
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| Keywords: | Celiac disease Gluten-free diet Survey |
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