Health characteristics and outcomes of caregivers in the United States: An Analysis of the 2017 Health Information National Trends Survey (HINTS) |
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| Institution: | 1. National Institute on Disability, Independent Living and Rehabilitation Research, Administration for Community Living, U.S. Department of Health and Human Services, Washington, DC, USA;2. Silver Spring, MD, USA;1. Department of Health and Human Performance, University of Houston, Houston, TX, USA;2. Department of Physical Therapy, University of Alabama at Birmingham, Birmingham, AL, USA;3. Department of Physical Medicine and Rehabilitation, University of Michigan, Ann Arbor, MI, USA;4. Department of Health, Nutrition, and Exercise Sciences, North Dakota State University, Fargo, ND, USA;1. Department of Pediatric Dentistry and Orthodontics, College of Dentistry, King Saud University, Saudi Arabia;2. Department of Oral Medicine and Diagnostic Sciences, College of Dentistry, King Saud University, Saudi Arabia;1. Division of HIV/AIDS Prevention, National Center for HIV/AIDS, Viral Hepatitis, STD, and TB Prevention, Centers for Disease Control and Prevention, USA;2. Division of Human Development and Disability, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, USA;1. Public Health Sciences, Faculty of Health, Science and Technology, Karlstad University, 651 88, Karlstad, Sweden;2. Centre for Public Safety, Faculty of Health, Science and Technology, Karlstad University, 651 88, Karlstad, Sweden;3. Health Metrics Unit, The Sahlgrenska Academy, University of Gothenburg, Box 100, 405 30, Gothenburg, Sweden;1. IRCCS Centro Neurolesi “Bonino Pulejo”, Messina, Italy;2. Stroke Unit, AOU Policlinico Universitario “G Martino”, Messina, Italy;1. Mathematica Policy Research, 955 Massachusetts Avenue, Suite 801, Cambridge, MA, 02139, USA;2. Mathematica Policy Research, 1100 First Street NE, 12th Floor, Washington, DC, 20002, USA |
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| Abstract: | BackgroundCaregivers are essential for assisting people with disabilities to fully participate in their communities. Past research has primarily focused on family caregivers in the U.S. providing care to older adults rather than children and adults with disabilities.ObjectiveThis paper examines the demographic and health characteristics of caregivers of children and adults with disabilities across the lifespan using data from the 2017 Health Information National Trends Survey (HINTS).MethodsChi square, t-test, linear and logistic regression analyses show differences between caregivers and non-caregivers related to gender, age, employment, and specific health outcomes.ResultsOf 3285 respondents, 18% self-identified as caregivers of children or adults with disabilities (n = 546). Almost one-third of all caregivers reported being diagnosed with depression or an anxiety disorder as compared to one-fifth of non-caregivers. Psychological distress was associated with an increased risk for a diagnosis of depression/anxiety. We also found that distress decreased with age when controlling for other factors.ConclusionThis paper increases knowledge of a growing segment of family caregivers providing care for members with disabilities across the lifespan. Research and policy needs are discussed. |
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| Keywords: | Caregiver Disability Health Community Living |
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