Technology and social media use by adult patients with intellectual and/or developmental disabilities |
| |
| Institution: | 1. Westchester Institute for Human Development, Valhalla, NY, USA;2. School of Health Sciences & Practices, New York Medical College, Valhalla, NY, USA;3. Department of Pediatrics, New York Medical College, Valhalla, NY, USA;1. Department of Pediatric Dentistry and Orthodontics, College of Dentistry, King Saud University, Saudi Arabia;2. Department of Oral Medicine and Diagnostic Sciences, College of Dentistry, King Saud University, Saudi Arabia;1. Division of HIV/AIDS Prevention, National Center for HIV/AIDS, Viral Hepatitis, STD, and TB Prevention, Centers for Disease Control and Prevention, USA;2. Division of Human Development and Disability, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, USA;1. Public Health Sciences, Faculty of Health, Science and Technology, Karlstad University, 651 88, Karlstad, Sweden;2. Centre for Public Safety, Faculty of Health, Science and Technology, Karlstad University, 651 88, Karlstad, Sweden;3. Health Metrics Unit, The Sahlgrenska Academy, University of Gothenburg, Box 100, 405 30, Gothenburg, Sweden;1. Department of Occupational Therapy, University of Alabama at Birmingham, SHPB 353, 1720 2nd, Ave South, Birmingham, AL, 35294, USA;2. UAB/Lakeshore Research Collaborative, SHPB 331, 1720 2nd Ave South, Birmingham, AL, 35294, USA;3. BrightOutcome, Inc, 1110 Lake Cook Road, Suite 167, Buffalo Grove, IL, 60089, USA;4. University of Alabama at Birmingham, Department of Pediatrics, Division of Pediatric Rehabilitation Medicine, Dearth Tower, 5601 McWane, 1600 7th Ave South, Birmingham, AL, 35233-1711, USA;5. Department of Health Services Administration, University of Alabama at Birmingham, SHPB 590E, 1720 2nd, Ave South, Birmingham, AL, 35294, USA;1. Commonweatlh Medicine Division, University of Massachusetts Medical School, United States;2. Department of Quantitative Health Sciences, University of Massachusetts Medical School, United States;3. Lurie Institute For Disability Policy, Heller School for Social Policy and Management, Brandeis University, United States;1. IRCCS Centro Neurolesi “Bonino Pulejo”, Messina, Italy;2. Stroke Unit, AOU Policlinico Universitario “G Martino”, Messina, Italy |
| |
| Abstract: | BackgroundTechnology and social media offer individuals with intellectual and/or developmental disabilities (I/DD) unique and innovative ways to facilitate active participation in their own healthcare process. What remains unclear is the extent to which devices are currently used by this growing patient population.ObjectiveTo explore the prevalence of technology and social media use, as well as the possible barriers, among adult patients with I/DD.MethodsA cross-sectional study utilizing an anonymous, accessible survey was used to obtain data from all adult patients (18 + years of age) with I/DD presenting for primary care services at a healthcare facility in New York between September and December of 2016.ResultsA total of 370 individuals completed the survey (529 approached, 69.9% response rate). Less than half (44.6%) of respondents used devices such as a tablet, smartphone or desktop; most (86.8%) did not use social media. Only 21.6% of respondents indicated that they use some type of assistive technology. While some respondents (46.0%) were identified by their caregivers as having a disability that would prevent them from learning/using technology, other respondents reported having no challenges (18.0%), needing training and/or ongoing support (7.4%), or being uncertain as to whether they would experience any challenges (15.5%).ConclusionsMany adult patients with I/DD do not use technology and social media that could promote self-determination and participation in their healthcare. Continued efforts must be made to promote technology use among adults with I/DD and to ensure that appropriate training is available for both the individual and his/her caregivers to achieve adoption and utilization. |
| |
| Keywords: | Intellectual disability Developmental disability Assistive technology Social media Patient education Self-determination |
| 本文献已被 ScienceDirect 等数据库收录！ |
|
