肾病综合征患儿的行为、家庭环境及其父母生活质量的调查

目的:了解肾病综合征患儿(NS)的行为、家庭环境及其父母的生活质量,为NS患儿及其父母的心理干预治疗提供理论依据.方法:分别采用Achenbach's儿童行为量表(CBCL)、家庭环境量表中文版(FES-CV)及生活质量综合评定问卷(GQOLI-74)调查男性NS患儿及其父母32例,对照组为正常男孩及其父母45例.结果:NS组男孩行为问题检出率为31%,高于对照组20%,但无统计学意义(χ2=1.3,P>0.05);男孩在体诉(t=3.02)、社交退缩(t=2.13)及攻击性(t=3.1)3个行为因子上得分与对照组差异显著(P<0.05～0.01).家庭环境在娱乐性上与对照组有显著差异(P<0.05).而父母生活质量则除住房、社区服务、生活环境、自尊、社会支持、人际交往能力及婚姻与家庭外,其余因子均与对照组存在显著差异(P<0.01).结论:NS患儿的某些行为及其父母的生活质量有改变,应引起医护人员的重视,适当的心理干预治疗是必要的.

Behavior Problem,Family Environment and Quality of Parents' Life in Children with Nephritic Syndrome

Objective: To investigate the behavior problems, fa mily environment and quality of the parents' life in children with nephritic syn drome (NS) Methods: The behavior problems and family environme nt profiles of the 32 male patients with NS were studied by Achenbach Child Beha vior Checklist (CBCL) and Family Environment Scale-Chinese Version (FES-CV), and the quality of their parents' life by Generic Quality of Life Inventory-74 (GQO LI-74) The 45 healthy children and their parents with similar demographic char acteristics were studied as control group Results: The inciden ce of the behavior disorders in the NS group was 31% without significant differe nce to control group (20%, P>005) The abnormal behaviors, su ch as somatic complains, social withdrawal and aggressive were more in NS cases than those in control group (P<005) The results of FES-CV sc ore showed that, compared to the control group, the NS group had lower scores on ly in the Active-Recreational Orientation inventory of the test (P <005) However, there was significant difference between the parents of NS group and of control group except in the housing, community service, self-respec t, social support, association competence and marriage sections of the test( P<001) Conclusion:The behavior factors and the q uality of parents' life in children with NS were changed Much attention should be paid to the behavior disorders in these children with NS and the quality of life of their parents It's also necessary to make psychological intervention a ppropriately in the treatment of their disease