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Developing an information leaflet on 22q11.2 deletion syndrome for parents to use with professionals during healthcare encounters |
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| Authors: | Honor Nicholl PhD MEd Bsc RCN RGN Anne Lawlor MA Helen Malone PhD |
| Affiliation: | 1. School of Nursing and Midwifery, Trinity College, , Dublin, Ireland;2. 22q 11 Ireland Support Group |
| Abstract: | |
| Keywords: | 22q11.2 deletion syndrome information leaflet parent rare disorder research |