系统性红斑狼疮患者家庭心理因素及狼疮活动指数的调查分析

目的：了解系统性红斑狼疮患者家庭心理因素及狼疮活动指数的基本特点，为心理干预提供依据。方法：采用父母教养方式量表、家庭功能评定量表及狼疮活动指数量表，对2012年6月1日-2013年5月31日就诊的46例系统性红斑狼疮患者进行问卷调查。根据人口特征分组，采用独立样本t检验进行分析。结果：本研究的样本小组间狼疮活动指数比较无统计学意义。30岁以内与30岁以上年龄小组比较，父亲教养方式的过度保护评分比较差别有统计学意义（P=0.006﹤0.01），母亲教养方式中过度干涉/保护评分比较差别有统计学意义（P=0.04﹤0.05）；无子女与有子女比较，家庭功能中角色评分比较差别有统计学意义（P=0.028﹤0.05）；大学以下学历与大学学历比较，家庭功能中沟通（P=0.022﹤0.05）、情感反应（P=0.04﹤0.05）、总体功能（P=0.026﹤0.05）评分比较差别有统计学意义。结论：本研究中的系统性红斑狼疮患者狼疮活动指数小组间比较无统计学差异，均属同一个群体。对30岁以上患者的心理治疗应关注和帮助其理解童年父母的过度保护或干涉；对有子女患者的心理治疗应引导其主动寻求物质营养和情感的角色支持；对大学以下学历患者的心理治疗应引导其增进沟通与情感反应。

Survey on Family-associated Psychological Factors and SLEDAI of SLE Patients

Objective：To study family-associated psychological factors and SLEDAI of SLE patients for its psychological intervention. Methods：A total of 46 SLE patients who were treated in out-patient of Endocrine Immune Rheumatism Cen-ter of Dongguan KangHua Hospital from June,1,2012 to May,31,2013 were investigated with questionnaires of,Egma Minnen av Bardndosnauppforstran,family assessment device,and Systemic Lupus Erythematosus Disease Activity Index. The group was divided into deferent teams by populational feature,the results were analyzed with independent-sample T test. Results：To SLEDAI,in this study,there were no obviously differences between patients in any group. There were obviously differences in sub-scores of EMBU,over-protection of father（P = 0. 006 ﹤ 0. 01）,and over intervention-pro-tection of mother（P = 0. 04 ﹤ 0. 05）,between patients less than 30-years-old and those over 30-years-old;There were ob-viously differences in sub-scores of FAD,Roles（P = 0. 028 ﹤ 0. 05）between patients who have no child and who have;there were obviously differences in sub-scores of FAD,communication（P = 0. 022 ﹤ 0. 05）,affective response（P = 0. 04﹤ 0. 05）,general functioning（P = 0. 026 ﹤ 0. 05）,between patients with less than College degree and with College de-gree. Conclusion：In this study,each team belongs to the same group of SLE patients. In psychotherapy to SLE patients over 30-years-old,we should improve them to read over-protection and over-intervention from mother or/ and father;in psychotherapy to SLE patients with child,we should direct them to seek for natural nutritious and affective supports of roles in their family;in psychotherapy to SLE patients with no college degree,we should improve their communication, affective response in their families.