上海市儿童孤独症康复机构现状研究

目的 分析目前上海市儿童孤独症(ASD)康复机构的现状,为政府相关部门政策制定提供实证依据.方法 采用定量与定性相结合的方法对上海市残疾人康复工作办公室46家约定康复机构和其中4名教师进行调查.结果 政府优惠政策的覆盖面小;近3年平均每家机构的ASD康复儿童数量连续为55.0人/年、62.5人/年和58.2人/年,无法满足患儿需求;康复训练标准不统一,监管缺失;康复人员有医学和教育背景的只占15.8%和15.1%,培训有待规范,民办机构工作人员待遇低下;社会宣传和支持力度不够,机构发展面临许多困境.结论 必须扩大优惠政策覆盖面,增加康复机构数量,加强政府统一监管,规范人员培训,以及强化宣传倡导.

Current status of child autism spectrum disorder rehabilitation facilities in Shanghai

Objective To analyze the current status of child autism spectrum disorder ( ASD) rehabilitation facilities in Shanghai so as to provide evidence-based policy suggestion for government.Methods Quantitative and qualitative methods were used to investigate 46 child ASD rehabilitation facilities agreed by Shanghai disabled rehabilitation working office and 4 teachers from these facilities.Results Preferential policy coverage was limited.The average number of patients per facility in a year was 55.0, 62.5 and 58.2 for the previous 3 years.There were too less facilities to meet the needs of ASD children.Rehabilitation standards were not unified, and government supervision was absent.Only 15.8%and 15.1%rehabilitation personnel had medical and education background.The training needed to be standardized, and the salary of private facility teachers was low.Advocacy and social support was poor.Facility development experienced many difficulties.Conclusion Efforts should focus on expanding preferential policy coverage, increasing the number of rehabilitation facilities, strengthening government supervision, standardizing training and strengthening advocacy.