A new scale informed by the Reciprocal-Engagement Model for quality evaluation of genetic counselling by patients: Development and initial validation |
| |
| Affiliation: | 1. i3S – Instituto de Investigação e Inovação em Saúde, Universidade do Porto, Portugal;2. IBMC – Institute for Molecular and Cell Biology, Universidade do Porto, Portugal;3. Centre for Predictive and Preventive Genetics (CGPP), Universidade do Porto, Portugal;4. Faculty of Psychology and Education Sciences, University of Porto, Porto, Portugal;5. CHUC - Medical Genetics Unit, Hospital Pediátrico, Centro Hospitalar e Universitário de Coimbra, Portugal;6. CHULN-HSM – Serviço de Genética Médica, Centro Hospitalar Universitário de Lisboa Norte – Hospital de Santa Maria, Portugal;7. EPER – Hospital de Santo Espírito da Ilha Terceira, Portugal;8. HB - Unidade de Genética Médica, Hospital de Braga, Portugal;9. ICBAS – Instituto de Ciências Biomédicas Abel Salazar, Universidade do Porto, Portugal;10. ICVS/3B''s, PT Government Associate Laboratory, Braga/Guimarães, Portugal;11. Life and Health Sciences Research Institute (ICVS), School of Medicine, University of Minho, Braga, Portugal;12. Centro de Psicologia, Universidade do Porto, Porto, Portugal;1. Student Research Committee, Shiraz University of Medical Sciences, Shiraz, Iran;2. Department of Medical Genetics, Shiraz University of Medical Sciences, Shiraz, Iran;3. Medical Imaging Research Center, Department of Radiology, Shiraz University of Medical Sciences, Shiraz, Iran;1. IRCCS, Istituto delle Scienze Neurologiche di Bologna, UOC Neuropsichiatria dell''età pediatrica, Bologna, Italy;2. Department of Medical Sciences Pediatric Section, University of Ferrara, Italy;3. Laboratorio di Genetica Medica, ASST Papa Giovanni XXIII, Bergamo, Italy;4. Università di Padova, Italy;5. IRCCS, Istituto delle Scienze Neurologiche di Bologna, UOC Neuroradiologia, Bologna, Italy;6. IRCCS, Istituto delle Scienze Neurologiche di Bologna, UOC Medicina Riabilitativa, Bologna, Italy;7. Robert Hollman Foundation, Padova, Italy;1. Centre for Human Genetics, Institut de Pathologie et de Génétique, Charleroi, Gosselies, Belgium;2. Laboratory of Microbiology, Bioorganic and Macromolecular Chemistry, Université Libre de Bruxelles, Brussels, Belgium;3. Telomeres Research Group, Genetic & Epigenetic Alterations of Genomes, de Duve Institute, Université catholique de Louvain, Brussels, Belgium;4. IPG BioBank and Laboratory of Translational Oncology, Institut de Pathologie et de Génétique/Grand Hôpital de Charleroi, Gosselies, Belgium;5. Department of Anatomopathology, Cliniques de Mont-Godinne, CHU-UCL-Namur, Godinne, Belgium;6. UCLouvain, Cliniques Universitaires St Luc, Service de Gastroentérologie et Hépatologie Pédiatrique, 10 Av Hippocrate, Bruxelles, Belgium;7. Department of Endocrinology, Vivalia, Cliniques Sud Luxembourg, Arlon, Belgium;8. Department of Oto-Rhino-Laryngology, Vivalia, Cliniques Sud Luxembourg, Arlon, Belgium;9. Department of Orthopedic Surgery, Vivalia, Cliniques Sud Luxembourg, Arlon, Belgium;10. Department of Hepato-Gastro-Enterology, Cliniques de Mont-Godinne, CHU-UCL-Namur, Godinne, Belgium;11. Faculty of Medicine, Unamur, Namur, Belgium;1. Department of Pediatric Genetics, Istanbul University-Cerrahpasa, Cerrahpasa Medical Faculty, Istanbul, Turkey;2. Department of Neonatology, Istanbul University-Cerrahpasa, Cerrahpasa Medical Faculty, Istanbul, Turkey;3. Department of Pediatric Endocrinology, Istanbul University-Cerrahpasa, Cerrahpasa Medical Faculty, Istanbul, Turkey;4. Department of Medical Genetics, Istanbul University-Cerrahpasa, Cerrahpasa Medical Faculty, Istanbul, Turkey;5. Department of Medical Genetics, Bezmialem University, Istanbul, Turkey;1. Laboratory of Molecular and Cellular Screening Processes (LPCMC), Center of Biotechnology of Sfax, University of Sfax, Tunisia;2. Medical Genetics Department, University Hedi Chaker Hospital of Sfax, Tunisia;3. Child Neurology Department, University Hedi Chaker Hospital of Sfax, Tunisia;4. Research Laboratory “Neuropédiatrie" LR19ES15, Sfax University, Tunisia;5. Radiology Department, Hedi Chaker University Hospital, University of Sfax, Sfax, Tunisia;6. Department of Ophthalmology, Habib Bourguiba Hospital, Sfax, Tunisia;7. Department of Otorhinolaryngology, University Habib Bourguiba Hospital of Sfax, Tunisia;8. Laboratory of Human Molecular Genetics, LR33ES99, Faculty of Medicine of Sfax, University of Sfax, Sfax, Tunisia;9. Department of Applied Biology, College of Sciences, University of Sharjah, Sharjah, United Arab Emirates;10. Human Genetics and Stem Cell Laboratory, Research Institute of Sciences and Engineering, University of Sharjah, Sharjah, United Arab Emirates;11. Medical Research, College of Medicine, University of Sharjah, Sharjah, United Arab Emirates;1. Department of Medical Sciences, University of Turin, Turin, Italy;2. Immunogenetics and Transplant Biology Service, Città della Salute e della Scienza University Hospital, Turin, Italy;3. Pediatric Nephrology Dialysis and Transplantation Unit, Città della Salute e della Scienza University Hospital, Turin, Italy;4. Department of Pediatrics, AOU Città della Salute e della Scienza di Torino, University of Turin, Turin, Italy |
| |
| Abstract: | Monitoring the quality of genetic counselling is essential to ensure appropriate provision. This study describes the development and initial psychometric validation of a novel scale for genetic counselling quality evaluation by patients. A deductive approach was taken to formulate scale items. Exploratory factor analysis with the principal axis factoring method was used to assess the scale's factor structure (n = 118). Internal consistency (Cronbach's Alpha) was also examined. Exploratory factor analysis resulted in a single overarching construct consisting of seven factors, which account for 59% of the variance explained. Items showed, in general, strong factor loadings (>0.5). Some items focused on patient satisfaction with services provision did not load onto the factors. Thus, another factor analysis was performed with these items, which resulted in one-factor. The identified factor accounted for 57% of variance explained, and communalities were strong (≥0.5) for most items. Cronbach's alpha score for the scale was 0.85, indicating high internal consistency. Factors were significantly and moderately interrelated (from r = 0.31 to r = 0.71). Further studies are needed to establish the psychometric validity of the scale. |
| |
| Keywords: | Genetic counselling Patient participation Healthcare quality assessment Genetics services Psychometric validation |
| 本文献已被 ScienceDirect 等数据库收录！ |
|
