Factors influencing participation among adults aging with long-term physical disability |
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| Institution: | 1. Washington University School of Medicine, Program in Occupational Therapy, 4444 Forest Park Avenue, Saint Louis, MO, 63108, USA;2. Simmons University, School of Social Work, 300 the Fenway, Boston, MA, 02115, USA;3. Campbell & Associates Consulting, USA;1. School of Health Technology and Management, Stony Brook University, Stony Brook, United States;2. College of Arts and Sciences, Whitworth University, United States;3. Renaissance School of Medicine, Stony Brook University, Stony Brook, United States;1. Department of Health Sciences, Northern Arizona University, 1100 S. Beaver Street Room 488, Flagstaff, AZ, 86011, United States;2. School of Social Work, Boston University, 264 Bay State Road, Boston, MA, 02215, United States;3. Department of Disabilities and Human Development, University of Illinois at Chicago, 1640 Roosevelt Road, Chicago, IL, 60608, United States;4. Combined Counseling/School Psychology Program, Northern Arizona University, 801 Knoles Drive, Flagstaff, AZ, 86011, United States;5. Massachusetts General Hospital Biostatistics Center, 50 Staniford Street, Boston, MA, 02114, United States;6. Department of Global Health, Boston University School of Public Health, 715 Albany Street, Boston, MA, 02118, United States;7. Division of Pediatric Health Outcomes Research, Massachusetts General Hospital, 125 Nashua Street, Boston, MA, 02114, United States;8. Department of Pediatrics, Harvard Medical School, 25 Shattuck Street, Boston, MA, 02115, United States;1. UConn Health, Department of Obstetrics and Gynecology, 263 Farmington Avenue Farmington, CT 06030, USA;2. University of Massachusetts Chan Medical School, 55 Lake Ave N, Worcester, MA, 01655, USA;3. The Lurie Institute for Disability Policy, The Heller School for Social Policy and Management Brandeis University, 415 South Street Waltham, MA, USA;4. UMass Memorial Health Department of Obstetrics and Gynecology Memorial Campus, 119 Belmont Street, Jaquith Building Floor 2, Worcester, MA, 01605, USA;1. Oklahoma State University Center for Health Sciences, College of Osteopathic Medicine, Office of Medical Student Research, Tulsa, OK, USA;2. Department of Surgery, University of Arizona College of Medicine, Tucson, AZ, USA;3. Department of Surgery, Oklahoma State Medical Center, Tulsa, OK, USA;4. Department of Internal Medicine, University of Oklahoma, School of Community Medicine, Tulsa, OK, USA;5. Department of Family Medicine, Alliance Health, Durant, OK, USA;1. Center for Leadership in Disability, School of Public Health, Georgia State University, United States;2. Population Health Sciences, School of Public Health, Georgia State University, United States;3. Department of Occupational Therapy, Augusta State University, United States;4. Department of Occupational Science and Technology, University of Wisconsin-Milwaukee, United States;5. Emory Autism Center, Emory University, United States;6. Department of Health Management and Policy, School of Public Health, Georgia State University, United States |
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| Abstract: | BackgroundPeople aging with long-term physical disability (AwPD) experience barriers to participation and independent living. There are currently limited evidence-based interventions that address issues regarding participation for people AwPD.ObjectiveThis study examined factors influencing participation in personal and life activities among people AwPD to inform future interventions.MethodsA cross-sectional study within an ongoing, community-based cohort study of participation was conducted. A purposive sample of people AwPD aged 45–65, living with a physical disability for at least five years, and who speak English was recruited through disability organizations, aging organizations, and social media. Participants answered open-ended questions about what supports they needed to successfully participate in nine activity categories derived from the Health and Retirement Study participation items (e.g., employment, community leisure). A content analysis was conducted using NVivo to categorize responses, and member checking occurred with four additional people AwPD.ResultsA total of 215 participants completed the survey. Eight categories of factors emerged from the data: physical environment factors, social factors, symptoms, economic factors, policy factors, body structure and functions, mental and emotional state, and temporal factors. Participant responses illuminated a combination of environmental and individual factors. Physical effects of disability and accelerated aging, such as pain and fatigue, paired with environmental factors, such as accessibility of transportation, were reported as influencing participation.ConclusionsPeople AwPD experience a range of factors that substantially impact their ability to remain independent and participate in society. By identifying barriers to participation, new interventions addressing these barriers may be developed, resulting in more effective service provision, enhanced participation in personal and life activities, and improved health and well-being. |
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| Keywords: | Physical disability Aging Participation Environment Qualitative methods |
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