Long-term disease-specific quality of life in adult anorectal malformation patients |
| |
Authors: | Grano Caterina Aminoff Dalia Lucidi Fabio Violani Cristiano |
| |
Affiliation: | a Department of Psychology, University of Rome “La Sapienza,” 00185 Rome, Italy;b Italian Parents and Patients Organization for Anorectal Malformation (AIMAR), 00199 Rome, Italy;c Department of Social and Development Psychology, University of Rome “La Sapienza,” 00185 Rome, Italy |
| |
Abstract: | BackgroundFecal and urinary incontinence may differently influence various aspects of quality of life (QOL). The main aim of the present study is to determine whether fecal and urinary incontinence measured at time 1 of the study will predict QOL at time 2 (after 4 years), above and beyond the prediction already explained by fecal and urinary incontinence at time 2.MethodsThirty-six adult patients from the Italian Parents' and Patients' Association for Anorectal Malformations answered items about urinary and fecal incontinence at time 1 of the study and completed the Hirschsprung Disease/Anorectal Malformation Quality of Life questionnaire after 4 years from the first questionnaire. Two sets of hierarchical regression analyses were conducted with fecal and urinary incontinence serving as predictors of QOL and the different areas of QOL from the Hirschsprung Disease/Anorectal Malformation Quality of Life serving as outcome variables.ResultsThe principal findings indicated that fecal continence is a strong predictor of QOL in the areas of social functioning, emotional functioning, and body image and that urinary incontinence predicted sexual functioning.ConclusionsIt seems that one's past experience with fecal incontinence is extremely relevant to current QOL, especially for body image. Urinary incontinence contributed less in explaining QOL in our patients, but because it is very relevant for sexual functioning, it should not be disregarded. |
| |
Keywords: | Disease-specific quality of life Anorectal malformation HAQL Social functioning Emotional functioning Urinary continence Fecal continence |
本文献已被 ScienceDirect PubMed 等数据库收录! |
|