Adapting a peer-led self-management program for breast cancer survivors in Switzerland using a co-creative approach |
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| Affiliation: | 1. Institute of Higher Education and Research in Healthcare, Faculty of Biology and Medicine, University of Lausanne and University Hospital Lausanne, Lausanne, Switzerland;2. International Breast Cancer Study Group (IBCSG), Bern, Switzerland;3. Swiss Cancer League, Division Follow-up Care, Bern, Switzerland;4. Nursing Science, University of Basel, Basel, Switzerland;5. Women’s Hospital, University Hospital Basel, Basel, Switzerland;6. Patient Advocates for Cancer Research and Treatment (Association PACRT), Geneva, Switzerland;1. RTI International, Research Triangle Park, NC, USA;2. US Food and Drug Administration, Silver Spring, MD, USA;1. Johns Hopkins University School of Medicine, Baltimore, MD, USA;2. Department of Medicine, Johns Hopkins University School of Medicine, Baltimore, MD, USA;3. Berman Institute of Bioethics, Johns Hopkins University, Baltimore, MD, USA;4. Department of Medicine, Oregon Health and Science University, Portland, OR, USA;5. Center to Improve Veteran Involvement in Care, VA Portland Health Care System, Portland, OR, USA;1. Université Libre de Bruxelles, Faculté des Sciences Psychologiques et de l’Éducation, Brussels, Belgium;2. Institut Jules Bordet, Clinique de Psycho-Oncologie, Université Libre de Bruxelles, Brussels, Belgium;3. Hôpital Universitaire Erasme, Service de Psychologie, Brussels, Belgium;4. Centre de Psycho-Oncologie, Brussels, Belgium;5. Université Catholique de Louvain, Faculté de Médecine, Brussels, Belgium;1. College of Nursing, University of South Carolina, Columbia, USA;2. School of Medicine, University of South Carolina, Columbia, USA;1. Cancer Prevention and Control Program, Fox Chase Cancer Center, Philadelphia, PA, USA;2. Department of Social and Behavioral Sciences, College of Public Health, Temple University, Philadelphia, USA;3. Department of Medicine, Johns Hopkins University School of Medicine, Baltimore, USA;1. Institute for Medical Education, University Hospital, LMU Munich, Germany;2. Faculty of Behavioural and Social Sciences, Department of Educational Sciences, University of Groningen, the Netherlands;3. Lehrstuhl für die Ausbildung personaler und interpersonaler Kompetenzen im Gesundheitswesen, Fakultät für Gesundheit, Universität Witten/Herdecke, Witten, Germany |
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| Abstract: | ObjectiveThe peer-led Cancer Thriving and Surviving Program (CTS) has demonstrated improved health outcomes for cancer survivors. We describe a co-creative process for adapting the CTS for breast cancer survivors in Switzerland and integrating the program into the clinical pathway of Swiss breast centers.MethodsA co-creative approach was employed. Breast cancer survivors and health care professionals (total n = 81) participated in three workshops, an online rating, and a consensus conference. An iterative cycle (evidence, ideas, refining, rating, and synthesis) guided the adaptation process.ResultsSurvivors involvement in the adaptation process allowed to tailor the self-management program to the psychosocial needs identified as the highest priority. New contents “Being a woman”, “Breast cancer and my (working) life” and “My exercise” were added to the CTS. Program duration was expanded from 6 to 7 weeks. Transition to follow-up care was considered as the optimal time point for program integration into the clinical pathway.ConclusionThe co-creative process may serve as a model in adapting supportive interventions for cancer. A subsequent pilot testing examined the feasibility and preliminary efficacy.Practice implicationsCombining expertise of health care professionals and patients to co-create a peer-led breast cancer self-management program may enhance acceptability and adoption. |
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| Keywords: | breast cancer cancer survivorship co-creation self-management peer-led |
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