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What patients want to ask their doctors: Data analysis from Question Builder,an online question prompt list tool
Institution:1. Sydney School of Public Health, The University of Sydney, Australia;2. Healthdirect Australia Ltd, Haymarket, Australia;3. Australian Commission on Safety and Quality in Health Care, Sydney, Australia;1. Center for Innovation to Implementation, VA Palo Alto Health Care System, Menlo Park, CA, USA;2. Division of Primary Care & Population Health, Stanford University, Stanford, CA, USA;3. Stanford University, School of Medicine, Stanford University, Stanford, CA, USA;1. Department of Gastroenterology and Hepatology, Amsterdam UMC, University of Amsterdam, the Netherlands;2. Patient Organization PSC Partners Seeking a Cure, Greenwood Village, CO, USA;3. Department of Medical Psychology, Amsterdam UMC, University of Amsterdam, the Netherlands;1. PharmacoTherapy, Epidemiology and Economics, Groningen Research Institute of Pharmacy, University of Groningen, Groningen, the Netherlands;2. Nivel, Netherlands Institute for Health Services Research, Utrecht, the Netherlands;1. Department of Psychosocial Oncology and Palliative Care, Dana-Farber Cancer Institute, Boston, MA, USA;2. Department of Population Health Sciences, Duke University School of Medicine, Durham, NC, USA;3. Cancer Control and Population Sciences, Duke Cancer Institute, Durham, NC, USA;4. People Designs, Durham, NC, USA;5. American Board of Internal Medicine, Philadelphia, PA, USA;6. Division of Palliative Medicine, Department of Medicine, Brigham and Women’s Hospital, Boston, MA, USA;1. Aix-Marseille Université, Inserm, IRD, UMR912, SESSTIM, “Cancers, Biomedicine & Society” team, Marseille F-13273, France;2. APHM, Timone Hospital, Public Health Department (BioSTIC), Marseille F-13385, France;3. Psycho-Oncology Co-operative Research Group (PoCoG) and Centre for Medical Psychology and Evidence-based Decision-making (CeMPED), University of Sydney, NSW 2006, Australia;4. Institut Paoli-Calmettes, Marseille F-13273, France;5. Leukaemia Foundation of Australia, Melbourne, Australia;6. Connaître et Combattre les Myélodysplasies, Paris, France;7. AP-HP, Hôpital Saint-Louis, Service d’Hématologie Clinique, Groupe Francophone des Myélodysplasies (GFM), Paris, France;8. Paris 7 University, Paris, France;9. Aix-Marseille Université, Inserm, CNRS, UM105, CRCM, Marseille, F-13273, France
Abstract:ObjectivesQuestion prompt lists (QPLs) are one strategy to increase patient participation in healthcare decisions but the extent to which consumers might access them in the ‘real world’ is largely unknown. This study measured usage of a passively-promoted, government-funded web-based patient-generated QPL tool, called Question Builder (Australia) (QB) hosted on healthdirect.gov.au, a consumer health information website.Methods12.5months of post-launch Google Analytics data from QB were analysed. Two existing coding frameworks (RIAS and ACEPP) were used to code QB questions thematically and 107 user-generated lists were analysed further to determine the questions chosen and prioritised.ResultsQB was accessed 8915 times, 4000 question lists were commenced and 1271 lists completed. Most lists were for general practice (GP) consultations (2444) rather than specialist consultations (1556). The most frequently chosen question was “Do I need any tests?”. Shared decision-making questions (SDM) made up 40% of questions prioritised e.g. “Do I need any treatment and what are my treatment options?”ConclusionsThere is active use of this online QPL, with strong interest in creating lists for GP consultations. Question Builder users prioritised questions which facilitate SDM.Practice ImplicationsMore research is required to assess the utilisation of QB in practice and health professionals’ views of QB.
Keywords:Question prompt list  Shared decision making  Question asking
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