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Nurse perceptions of the Nursing Delirium Screening Scale in two palliative care inpatient units: a focus group study 下载免费PDF全文
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Suzanne Rainsford MBBS FAChPM Roderick D. MacLeod PhD FAChPM Nicholas J. Glasgow MD FAChPM Donna M. Wilson RN PhD Christine B. Phillips MPH FRACGP Robert B. Wiles MBBS FRCGP 《Health & social care in the community》2018,26(3):273-294
The ‘good death’ is one objective of palliative care, with many ‘good death’ viewpoints and research findings reflecting the urban voice. Rural areas are distinct and need special consideration. This scoping review identified and charted current research knowledge on the ‘good’ rural death through the perspectives of rural residents, including rural patients with a life‐limiting illness, to identify evidence and gaps in the literature for future studies. A comprehensive literature search of English language articles (no date filter applied) was conducted in 2016 (2 January to 14 February) using five library databases. Reference lists of included articles, recent issues of eight relevant journals and three grey literature databases were also hand‐searched. Twenty articles (for 17 studies and one systematic review) were identified after a two‐phase screening process by two reviewers, using pre‐determined inclusion criteria. Data from each study were extracted and charted, analysed using a thematic analysis of the included articles' content, and with a quantitative analysis of the scoping review. These papers revealed data collected from rural patients with a life‐limiting illness and family caregivers, rural healthcare providers, the wider rural community, rural community leaders and rural health administrators and policy makers. Rural locations were heterogeneous. Residents from developed and developing countries believe a ‘good death’ is one that is peaceful, free of pain and without suffering; however, this is subjective and priorities are based on personal, cultural, social and religious perspectives. Currently, there is insufficient data to generalise rural residents' perspectives and what it means for them to die well. Given the extreme importance of a ‘good death’, there is a need for further studies to elicit rural patient and family caregiver perspectives. 相似文献
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Helping lay carers of people with advanced cancer and their GPs to talk: an exploration of Australian users’ views of a simple carer health checklist 下载免费PDF全文
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Evidence‐based occupational therapy for people with dementia and their families: What clinical practice guidelines tell us and implications for practice 下载免费PDF全文
Kate Laver PhD MClinRehab BAppSc Robert Cumming MBBS MPH PhD Suzanne Dyer PhD GradCertPH Meera Agar FRACP FAChPM PhD Kaarin J Anstey BA PhD Elizabeth Beattie PhD MA BA Henry Brodaty MD DSc FRANZCP Tony Broe MRACP MBBS BA Lindy Clemson PhD MAppSc BAppSc Maria Crotty MPH PhD FAFRM Margaret Dietz BA BSW GradCertFamily Therapy Brian Draper MBBS MD FRANZCP Leon Flicker FRACP GradDipEpid PhD Meg Friel MEd BJuris Louise Heuzenroeder BN MBA MPH Susan Koch PhD RN MN Sue Kurrle MBBS PhD DGM Rhonda Nay PhD Dimity Pond MBBS FRACGP PhD Jane Thompson BSc MSc PhD Yvonne Santalucia BEd Craig Whitehead FAFRM FRACP Mark Yates MBBS FRACP 《Australian Occupational Therapy Journal》2017,64(1):3-10
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Michael P. Jones BSc PhD A.STAT C.STAT Diann Eley BSc MSc PhD Lisa Lampe MBBS FRANZCP Carissa M. Coulston BSc MClinPsych PhD Gin S. Malhi MBChB BSc FRCPsych FRANZCP MD Ian Wilson MBBS MAssess & Eval PhD FRACGP Brian Kelly BMed PhD FRANZCP FAChPM Cathy Owen MBBS FRANZCP MD MHE Gerry Corrigan BA Dip Ed PhD Barbara Griffin B Psychology Hons PhD MAPS John Humphreys BA PhD Beatrice Alba BA BSc Pamela Stagg B.Bus Hlth Sc Hons 《The Australian journal of rural health》2013,21(2):80-89
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Can specially trained community care workers effectively support patients and their families in the home setting at the end of life? 下载免费PDF全文
Roslyn G. Poulos MBBS MPH PhD Damian Harkin MPH Christopher J. Poulos MBBS MSc PhD FAFRM Andrew Cole MBBS MD FAFRM Rod MacLeod MNZM PhD FAChPM 《Health & social care in the community》2018,26(2):e270-e279
Surveys indicate that many Australians would prefer to die at home, but relatively few do. Recognising that patients and their families may not have the support they need to enable end‐of‐life care at home, a consortium of care providers developed, and received funding to trial, the Palliative Care Home Support Program (PCHSP) across seven health districts in New South Wales, Australia. The programme aimed to supplement end‐of‐life care in the home provided by existing multidisciplinary community palliative care teams, with specialist supportive community care workers (CCWs). An evaluation of the service was undertaken, focussing on the self‐reported impact of the service on family carers (FCs), with triangulation of findings from community palliative care teams and CCWs. Service evaluation data were obtained through postal surveys and/or qualitative interviews with FCs, community palliative care teams and CCWs. FCs also reported the experience of their loved one based on 10 items drawn from the Quality of Death and Dying Questionnaire (QODD). Thematic analysis of surveys and interviews found that the support provided by CCWs was valued by FCs for: enabling choice (i.e. to realise end‐of‐life care in the home); providing practical assistance (“hands‐on”); and for emotional support and reassurance. This was corroborated by community palliative care teams and CCWs. Responses by FCs on the QODD items indicated that in the last week of life, effective control of symptoms was occurring and quality of life was being maintained. This study suggests that satisfactory outcomes for patients and their families who wish to have end‐of‐life care in the home can be enabled with the additional support of specially trained CCWs. A notable benefit of the PCHSP model, which provided specific palliative care vocational training to an existing community care workforce, was a relatively rapid increase in the palliative care workforce across the state. 相似文献
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Madeline McCoy BSc MSc Taylor Shorting BA Vinay Kumar Mysore MSc CAAP BA Edward Fitzgibbon MD MSc CCFP Jill Rice MD MHSc CCFP Meghan Savigny MDes BDes Marianne Weiss DNSc RN Daniel Vincent MD MSc CCFP FRCPC Meaghen Hagarty MD CCFP Krystal Kehoe MacLeod PhD Natalie C. Ernecoff PhD MPH Rex Pattison Mona Kornberg PhD Adrianna Bruni MD MSc CCFP Shirley H. Bush MBBS MRCGP FAChPM Kerry Kuluski MSW PhD Valerie Fiset RN PhD Cecilia Li MDCM CCFP FRCPC Henrique A. Parsons MD MSc Geneviève Lalumière RN BScN MN Tara Connolly BEd MA RP Colleen Webber PhD Sarina R. Isenberg MA PhD 《Health expectations》2024,27(2):e14002
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‘The onus is on me’: primary care patient views of Medicare‐funded team care in chronic disease management in Australia 下载免费PDF全文
Michele M. Foster PhD B SocWk Geoffrey K. Mitchell MBBS PhD FRACGP FAChPM 《Health expectations》2015,18(5):879-891