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1.
Hussan Zeb RN BSN MSPH Ahtisham Younas RN BSN MN Israr Ahmed RN BSN Anwar Ali MBBS FCPS MRCP 《Health & social care in the community》2021,29(5):e174-e183
Self-care enables patients in improving quality of life and reducing hospital admissions. Research explored the experiences of patients about breathlessness, sleep problems and complication management in chronic obstructive pulmonary disease (COPD). However, the self-care experiences and the role of the family in self-care are underexplored. This study aimed to understand the self-care experiences of patients with COPD and explore the role of the family in self-care. An interpretive phenomenological inquiry was used, and 13 patients were interviewed in 2019 from two hospitals in Pakistan. The inclusion criteria were patients above 30 years of age at any stage of COPD, who received a confirmed diagnosis of COPD and were receiving the treatment, and engaged in self-care at their homes or communities. The interviews lasted for 35–60 min. Ricoeur's interpretation theory was used for data analysis comprising steps explanation, naive understanding and in-depth understanding. Self-care emerged as a complex individual and familial endeavour affected by personal, social and economic factors. Poverty was one of the core determinants of self-care. Patients emphasised the spiritual, cultural and traditional approaches to self-care. Future research is warranted to develop better understanding of spiritual and cultural self-care and how these dimensions of self-care affect patients’ self-care behaviours. 相似文献
2.
Identification of novel CYP1B1 gene mutations in patients with primary congenital and primary open‐angle glaucoma
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![点击此处可从《Clinical & experimental ophthalmology》网站下载免费的PDF全文](/ch/ext_images/free.gif)
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Eavan McGovern MD Tamara Pringsheim MD Alex Medina MD Carlos Cosentino MD Ali Shalash MD Zomer Sardar FCPS Victor S.C. Fung PhD FRACP Manju A. Kurian PhD Emmanuel Roze MD MDS Task Force on Pediatrics 《Movement disorders》2021,36(6):1316-1324
Childhood-onset movement disorders represent a heterogenous group of conditions. Given the complexity of these disorders, the transition of care from pediatric to adult medicine is an important consideration. We performed a scoping review of the literature on transitional care in chronic neurological disease, exploring key transitional issues and proposed transitional care models. Our aim was to describe the current knowledge and gaps about the transition process of young adults with chronic neurological disorders, paying special attention to childhood onset movement disorders. A total of 64 articles were included in the qualitative synthesis; 56 articles reported on transitional care issues, and 8 articles reported on transitional care models. Only 2 articles included patients with movement disorders. The following 4 main transitional issues were identified following synthesis of the available literature: (1) inadequate preparation for the transition process, (2) inappropriate and inconsistent transition practices, (3) inadequate adult services, and (4) heightened emotional response surrounding transition. Of the reported transitional care models, multidisciplinary ambulatory care was the most common approach. In studies evaluating patient-related outcomes, positive health, educational, and vocational outcomes were found. The available literature provides insights on issues that can arise during transition that should be addressed to improve patient and caregiver comfort and satisfaction with care. Further research is needed to evaluate how transitional care programs affect outcomes and their cost effectiveness. More studies are required to determine the needs and outcomes specific to patients with childhood onset movement disorders. © 2020 International Parkinson and Movement Disorder Society 相似文献
4.
Point‐of‐care testing facilitates screening and treatment for anaemia in women and children in rural Pakistan
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5.
Dhayan Timbadia Ashlynn Ler Faizus Sazzad MBBS MS FCPS FACS Christos Alexiou MD PhD FRCS FRCS CCST Theo Kofidis MD PD FRCS FAHA FAMS 《Journal of cardiac surgery》2020,35(10):2785-2793
6.
Oliver M. Barry MD Fatima Ali FCPS Miguel Ronderos MD Abish Sudhaker MA R. Krishna Kumar MD Marhisham C. Mood MD Carlos Corona-Villalobos MD Dinh Toai Nguyen MD Kaitlin Doherty-Schmeck BS Lisa Bergersen MD MPH Kimberlee Gauvreau ScD Kathy J. Jenkins MD MPH Babar S. Hasan MD 《Catheterization and cardiovascular interventions》2021,97(1):127-134
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