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Amanda Johnson RN DipT MHScEd Esther Chang RN MEdAdmin PhD John Daly RN PhD FRCNA Kathleen Harrison BHlthSc Michael Noel MBBS FaChPM Karen Hancock BSc PhD Sally Easterbrook RN BSocSci On behalf of the Palliative Care Dementia Interface investigators 《International journal of nursing practice》2009,15(5):467-474
This paper discusses one aspect from the findings of an Australian study aimed at understanding the needs of people with advanced dementia. Specifically, this paper focuses on the communication issues that might potentially inhibit the implementation of a palliative care approach for a person with advanced dementia in a residential aged care facility (RACF). Six focus groups consisting of 34 participants and 24 semistructured interviews were conducted. Participants were drawn from palliative care specialty staff, palliative care volunteers, designated aged or dementia specialist staff from an area health service, general practitioners, RACF staff and family carers. The findings show communication issues identified by the participants were a significant factor impacting on their capacity to adopt a palliative care approach in caring for people with advanced dementia. The findings support the need for education, skill development and networking to occur among the key providers of care in RACFs to ensure the provision of 'best practice' palliative care to residents with advanced dementia and their families. 相似文献
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Esther Chang RN BAppSc MEdAdmin PhD John Daly RN PhD FRCNA Amanda Johnson RN DipT MHScEd Kathleen Harrison BHlth Sc Sally Easterbrook RN BSocSci John Bidewell BSc MPsych PhD Heather Stewart MB BS Dip RACOG Michael Noel MBBS FaChPM Karen Hancock BSc PhD 《International journal of nursing practice》2009,15(1):41-47
Qualitative methodology based on action research identified challenges when caring for persons with advanced dementia, as perceived by key professional providers. Data collection was via five focus groups (total n = 24) and 20 follow-up individual interviews. Participants included palliative care, aged care and dementia specialist nurses, medical specialists from an area health service, residential aged care staff and general medical practitioners. Responses emphasized the need for improved knowledge and skills, and clearer policy. Concerns included accurate assessment, especially of pain, owing to the inability of people with advanced dementia to communicate their symptoms. Assessment, managing physical and behavioural symptoms, and communicating with family presented as further challenges. Conclusions are that the need for a palliative approach to care in advanced dementia should be recognized. Aged care staff can deliver palliative care to people with advanced dementia only if the staff receive relevant education and training beyond their generalist competencies. 相似文献
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