Longitudinal study of hearing loss in childhood: Relationship between Hearing Impairment,Poor Learning and Family Background

Of the Dutch school population 0.1% suffer from a hearing loss which makes it necessary for them to attend a special school. This permanent, binaural hearing impairment is of a moderate to severe degree (degrees II and III) and adversely affects the child's linguistic skills and school performance. Of the pupils attending ordinary schools 4–5% suffer from a hearing loss which, according to the Dutch audiologist Huizing, lies on the borderline of a slight to moderate hearing impairment (degrees I and II). This loss is characterised by its temporary nature, the fact that it is monaural in 71% of the cases and that there is no evidence for its clearly affecting the learning process. The risk of hearing impairment is predominantly determined by the child's family background.     

Experienced Health,Life Satisfaction,Sense of Coherence,and Coping Resources in Individuals Living with Heart Failure

The purpose of this study was to explore relationships between experienced health, sense of coherence, coping resources, and life satisfaction in individuals living with heart failure. Twenty-two patients--12 men and 10 women--were included in the study. All subjects were admitted to a eight-week programme of aerobic training. Four questionnaires were used: the Minnesota Living with Heart Failure Questionnaire (MHLF), the Sense of Coherence scale (SOC), the Coping Resources Inventory (CRI), and the Life Satisfaction Checklist of Fugl-Meyer et al. After the exercise programme the mean score of MLHF was significantly lower as compared with the start of the programme. The majority of the individuals reported that they were satisfied with life as a whole, family life, partnership relation contact with friends, and their psychological state of health. Only one-third were satisfied with their sexual life. A high sense of coherence and coping resources characterized the subjects. There was a slight tendency for those who reported satisfaction with life as whole to report a stronger sense of coherence, a higher degree of coping resources, and a lower degree of symptoms of heart failure. A conclusion was that clinicians should emphasize that patients can continue to remain active and enjoy a reasonable quality of life.     

Participation of patients and family members in healthcare services at the service and national levels: A lesson learned in Dublin,Ireland

ObjectiveIdentify the current amount and intensity of patient and family participation at the patient, service and national levels from a diabetes and a psychiatric service perspective. Establish the current level of support for greater participation and related characteristics.MethodResearcher-administered questionnaires were conducted with 738 patients and family members in an outpatient type 2 diabetes service and an outpatient psychiatric service, both in Dublin, Ireland.ResultsPatient and family participation at the service and national levels are restricted to the provision of information. Typically no involvement in discussions or the decision -making process is reported. The majority of participants favour greater patient participation at the service level (537/669; 80.3%) and the national level (561/651; 86.2%). Greater support for patient and family member participation is significantly associated with participant’s age, service satisfaction and level of education.ConclusionPatient and family participation is greatest at the patient level. The majority of patients and family members support greater participation at the service and national levels.Practice implicationsThe best way to implement participation needs to be identified. There needs to be a greater focus on participation at the service level. The role of family members also needs to be investigated further.     

Fulfilling the psychological and information need of the family members of critically ill patients using interactive mobile technology: A randomised controlled trial

BackgroundIntensive care nurses may have an important role in empowering families by providing psychological support and fulfilling the family's pivotal need for information.AimTo determine whether ‘education of families by tab’ about the patient’s condition was more associated with improved anxiety, stress, and depression levels than the ‘education of families by routine’.Research designA randomized control trial of 74 main family caregivers (intervention: 39; control: 35).SettingAn adult intensive care unit.Main outcome measuresDepression Anxiety Stress Scale, and Communication and Physical Comfort Scale.ResultsAlthough information need satisfaction was not significantly different between intervention and control groups, the former reported significantly better depression score on Depression Anxiety Stress Scale comparing to the control group (p < 0.01; η² = 0.09) with a medium effect size. Reduction of anxiety in the intervention group were clinically significant.ConclusionThe results suggest that use of ‘education of family by tab’ is promising for intensive care nurses to provide psychological support for family members. More studies are needed to investigate this aspect of family care for better psychological support and information need satisfaction that contributes to the evidence-based practice of intensive care nursing.     

Maternal Mentoring

Abstract

As more and more women enter family businesses, or begin their own, the pool of talent available from “Moms” to mentor their adult children increases. This article discusses this relatively new phenomena and comments on the general differences noted between the mentoring styles of mothers and fathers of their own progeny. There is almost no literature about this, so the references are sparse. Relevant family dynamics in the context of family businesses are also discussed.     

A patient in the clinic; a person in the world. Why shared decision making needs to center on the person rather than the medical encounter

Interest in shared decision making (SDM) has increased and become widely promoted. However, from both practical and measurement perspectives, SDM’s origin as an outgrowth of patient autonomy has resulted in narrowly conceptualizing and operationalizing decision making. The narrow focus on individual patient autonomy fails in four main ways: 1) excluding several facets of the roles, actions, and influences of decision partners in decision making; 2) focusing solely on the medical encounter; 3) ignoring the informational environment to which patients have access; and 4) treating each encounter as independent of all others. In addition to creating a research agenda that could answer important outstanding questions about how decisions are made and the consequences thereof, reconceiving SDM as centered on the person rather than the medical encounter has the potential to transform how illness is experienced by patients and families and how clinicians find meaning in their work.     

系统性红斑狼疮患者的家庭护理指导

目的:探讨家庭护理指导对系统性红斑狼疮患者康复效果的影响。方法:将2010年1月~2014年1月我院收治的88例系统性红斑狼疮患者等分为对照组和观察组,观察组家庭护理指导小组每周去患者家中进行护理指导,对照组患者每两周接受责任护士电话随访1次。结果:观察组的用药正确度、生活质量及对医院满意度均优于对照组,差异具有统计学意义(P0.05)。结论:对系统性红斑狼疮患者进行家庭护理指导,有助于满足患者及其家属对疾病相关知识的需求,提升家庭护理水平,促进患者康复,提高患者生活质量。     

护士职业延迟满足的特征研究

目的了解护士职业延迟满足的现状,探讨护士职业延迟满足能力的影响因素,为护理管理提供科学有效的管理依据。方法用国内通用职业延迟满足量表对225名综合医院在职护士进行调查,采用SPSS并进行差异性的相关分析。结果护士的年龄和护龄的职业延迟满足过程存在显著性差异(F=3.08,3.93;P<0.05),且随着年龄和护龄的增加而递减;受教育程度高低的职业延迟特质有显著性差异(F=2.93,P<0.05),且受教育程度越高,职业延迟特质就越高;婚否的延迟满足总分也存在显著性差异(t=-2.6,P<0.05),而独身子女和户口性质对职业延迟总分没有统计学影响(t=-0.54,-0.08;P>0.05)。结论①随着年龄的增大、工作年限的延长,护士的延迟满足能力会降低;②低学历护士的延迟满足能力比高学历的低,应给予更多的关注;③未婚护士的职业延迟满足能力优于已婚护士。