An Exploratory Study of Oncology Specialists' Understanding of the Preferences of Young People Living With Cancer

Awareness about the specific needs of Adolescents and Young Adults (AYA) aged 15–25 with a diagnosis of cancer has grown rapidly over the past 10 years. To improve outcomes for these patients it is essential that services are developed within youth friendly models. This requires awareness by healthcare professionals of unique biological, genetic, epidemiological, psychological, social, and cultural factors that affect the AYA population. This study sought to explore oncology professionals understanding of the healthcare preferences of AYAs with cancer receiving treatment at a specialist cancer centre. Participants comprised 60 professionals in allied health (n = 15); nursing (n = 32); oncology (n = 6) and those from the Victorian AYA Cancer Service (n = 7). A questionnaire, developed from pilot work, collected demographic information, investigated professionals' top five perceived issues for AYAs, and examined perceptions in the areas of communication; information provision; environment; services; education, employment and social life, fertility and sexuality; support and survivorship. Results illustrate that, with a strong focus on survival and physical wellbeing, professionals significantly underestimate the breadth of AYA psychosocial concerns. The findings further indicate: that young people report different healthcare preferences compared to those reported by professionals; there are varying levels of professional skill, experience and confidence; there are significant workforce development and support needs for professionals; and AYA models of care require rigorous evaluation to ensure the improvement of outcomes for young people living with cancer.     

Improving Psychosocial Health in Hemodialysis Patients After a Disaster

Twenty-two social workers implemented a cognitive-behavioral intervention with 69 patients in 22 dialysis units in Louisiana to improve psychosocial health following Hurricanes Katrina and Rita. Pre- and post-intervention questionnaires measured psychosocial status domains (general health status, social functioning, burden of kidney disease, depressed mood, anxiety, and mastery). Participants rated their general health status (p < .05) and social functioning (p < .05) significantly higher after the intervention. Participants who listened to the class Managing stress through communication and problem solving and discussed it with their social worker, had significant improvement in depressed mood score (p < .05) after completing the program, compared to participants who did not discuss this material with their social worker. Sixty-five percent had scores indicating depressed mood before the program, compared with 56% following. The more positive participants' program evaluation, the higher their quality of life (lower perceived burden of kidney disease [p = .05]).     

Exploring Smoking Prevalence,Quit Attempts,and Readiness to Quit Cigarette Use Among Women in Substance Abuse Treatment

Client questionnaires from 38 gender-specific substance abuse facilities throughout Ohio were analyzed to explore smoking prevalence, quit attempts, and readiness to quit cigarette use. The analysis revealed 79.7% of women used cigarettes at the time of the survey, 33.5% of current smokers had made at least one quit attempt within the past 12 months, and 55.2% of current smokers reported either contemplating or preparing to make a quit attempt. A multinomial logistic regression revealed that clients who experienced a past quit attempt were more likely to be in the contemplation and preparation stages and clients who smoked 30 out of the past 30 days were least likely to be in the preparation stage. Clients who reported smoking between 10–15 cigarettes a day were more likely to be in the contemplation stage than those who reported smoking <10 cigarettes a day. A three-pronged approach that examines the physiological, emotional, and social components of addiction is recommended.     

Social Determinants and Health Service Use Among Racial and Ethnic Minorities: Findings From a Community Sample

Multiple models conceptualizing the relationship between social determinants and health exist, but little research has examined the relationship between social determinants and health service use. Using previously collected survey data from racial and linguistic minorities from high-crime communities in a Midwestern urban area, this study uses the Commission on Social Determinants of Health framework to test the structural and intermediary determinants of health service use. The results indicate that perceived discrimination and neighborhood cohesion increase the likelihood of a person using health services. Implications for social work practice, advocacy, and research to address intermediary social determinants are discussed.     

HIV/AIDS Scholarship: An Analysis of Groundbreaking Programs and Individuals

The authors report on a bibliometric study of human immunodeficiency virus (HIV)/acquired immune deficiency syndrome (AIDS) scholarship among scholars in schools of social work in the United States. A sample of these HIV/AIDS scholars were accumulated from the faculty interest pages at social work programs accredited by the Council on Social Work Education. From this sample, the publication records, including citations, were examined and those individuals meeting the operational definition of “scholar” were ranked in the final analysis. Social work institutions are also ranked in terms of productivity and impact. Last, the journal outlets that publish the work of social work HIV/AIDS scholars are ranked by publication productivity. The article concludes with a discussion of the strengths and limitations of the method used and future research directions.     

Do Trajectories of At-Home Dementia Caregiving Account for Burden After Nursing Home Placement? A Growth Curve Analysis

Transitioning to the nursing home setting is a complex process for family caregivers of older adults with dementia. While nursing home placement (NHP) can alleviate certain caregiving responsibilities, new stressors can also emerge. In the present study, the researchers examined how care-related factors can change leading up to NHP and how these factors influence caregiver outcomes following NHP. A sample of 634 family dementia caregivers (n = 634) were surveyed at three six-month intervals prior to NHP and once during the 12 month period following institutionalization. Growth curve modeling revealed dynamic changes in certain factors leading up to NHP (e.g., caregivers' perceived health), while other factors remained stable (e.g., caregiver burden). Several factors emerged as significant predictors of caregiver burden following NHP, including pre-placement burden and adult day service utilization. For geriatric social workers, these findings may be useful in assessing family caregivers, and in the development and utilization of appropriate interventions.     

Medical Clowning: Even Adults Deserve a Dream

The article examines the significance of the integration of medical clowns as an intervention strategy with adult outpatients suffering from chronic illnesses. The study is based on content analysis of the documentation of the work of two medical clowns over two years. The dominant theme involves the definition of the clown's role and includes perspectives on his integration into the hospital's multidisciplinary medical staff and his impact on the staff and on patients and their families. The finding is discussed in light of the dual role of the medical social worker as coordinator and as a case manager, and the challenge of integrating medical clowns in treatment of adult patients. There is room for further exploration of the contribution of medical clowns to assisting and improving the quality of life for patients and hospital staff.     

Lives Deferred? Exploring Social Disconnection and Perceived Quality of Life Among Young Adults Residing in a Long-Term Care Facility

This qualitative study explores the perceptions of young adults concerning their experiences in a long-term care facility. Qualitative data were gathered via 15 intensive semistructured interviews with participants ages 18–45. Three dominant themes emerged: (a) social and family disengagement, (b) nonstimulating activities, (c) inadequate finances, and (d) the nature of resident/staff relations. Theoretical implications of empowerment theory, as well as implications for increasing social support and reducing barriers to service delivery for younger underserved residents, are discussed.     

Social Challenges for Children With Hemophilia: Child and Parent Perspectives

The impact of pediatric chronic illness on peer relations and social adjustment in nine school-aged boys with hemophilia was examined using qualitative interview methods. Literature on boys' psychosocial development provided a theoretical perspective to interpret findings. Three main themes emerged from the interviews: Awareness of difference, efforts to conceal difference, and efforts to connect with peers and friends. Findings suggest that hemophilia may be a socially stigmatizing condition for many boys because it limits gender-typical interactions with same-sex peers. Recommendations are offered for research on interventions to assist children in communicating with peers about their health condition and to involve close friends and parents in such interventions.     

“It seems kinda like a different language to us”: Homeless youths’ attitudes and experiences pertaining to condoms and contraceptives

Homeless youth become pregnant or involved in pregnancies at high rates. There are many ways by which unintended pregnancies may be prevented, including the use of condoms and other contraceptives. However, there is a dearth of research regarding contraceptive use among this vulnerable youth population, and especially through lenses that consider homeless youths’ diverse gender identities, expressions, and sexualities. This study qualitatively explores homeless youths’ attitudes and experiences regarding condom and other contraceptive use. Data were obtained from interviews with 30 youth experiencing homelessness, ages 18–21. Youth reported inconsistent use of condoms and other contraceptives, which youth often attributed to their perceptions of contraceptive inaccessibility and exorbitant cost. Most youth also did not know where to obtain contraceptive information and services, and reported transportation barriers and fear of being stigmatized in health care settings, particularly in relation to their gender identities and sexualities. Findings suggest that reproductive and sexual health information and services are urgently needed by all homeless young people, and from low-barrier, non-judgmental, and empathetic sources.