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David B. Nicholas PhD Karlee D. Fellner MEd BA Donna Koller PhD Karen Fontana Chow MN RN Leanne Brister BA CCLS 《Social work in health care》2013,52(3):215-229
This study evaluated videophones as a means of support among families who had limited access to their hospitalized children due to geographic separation. These videophones facilitated video-mediated communication between the hospital and the family home. Qualitative interviews explored the outcomes and processes related to videophone use for a subsample of 14 participants. Content analysis identified six themes: being in hospital far from home is “draining,” vicarious growth and the recalibration of priorities, “it's like you're right there,” source of happiness in a hard place, ease of videophone use, and limitations of the videophone. Participants reported that family separation during pediatric hospitalization was very difficult, and use of the videophones mitigated these effects through decreasing feelings of isolation and anxiety, and increasing feelings of connection between family members. 相似文献
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Sbrocchi AM Rauch F Matzinger M Feber J Ward LM 《Pediatric nephrology (Berlin, Germany)》2011,26(1):139-142
Glucocorticoids (GCs) are associated with fragility fractures in children with various chronic illnesses. The impact of GCs
on bone health in children with nephrotic syndrome (NS) is less well understood. Here we report skeletal findings in a 10-year-old
boy with steroid-sensitive NS who presented with back pain due to vertebral fractures 5 years after NS diagnosis. Spine radiographs
showed a Genant grade 2 fracture at T7 and a grade 1 fracture at T8. Dual-energy X-ray absorptiometry (DXA) revealed a lumbar
spine areal bone mineral density (BMD) Z-score of −0.5 and a total body areal BMD Z-score of −0.4. Quantitative transiliac
bone histomorphometry revealed low trabecular bone volume and cortical width but no osteomalacia. Our findings show the potential
for significant bone morbidity due to osteoporosis in steroid-sensitive NS treated with intermittent GC therapy and emphasize
that vertebral fractures may be an underrecognized complication. Furthermore, our report highlights that vertebral fractures
can be associated with normal spine areal BMD in this context, suggesting that DXA-based, anteroposterior areal BMD should
not be relied upon exclusively for assessing bone health and disease in children with steroid-sensitive NS. 相似文献
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Rebecca Schnall James J Cimino Leanne M Currie Suzanne Bakken 《J Am Med Inform Assoc》2011,18(3):305-308
Objective
The goals of this study were to explore the information needs of case managers who provide services to persons living with HIV (PLWH) and to assess the applicability of the Information Needs Event Taxonomy in a new population.Design
The study design was observational with data collection via an online survey.Measurements
Responses to open-ended survey questions about the information needs of case managers (n=94) related to PLWH of three levels of care complexity were categorized using the Information Needs Event Taxonomy.Results
The most frequently identified needs were related to patient education resources (33%), patient data (23%), and referral resources (22%) accounting for 79% of all (N=282) information needs.Limitations
Study limitations include selection bias, recall bias, and a relatively narrow focus of the study on case-manager information needs in the context of caring for PLWH.Conclusion
The study findings contribute to the evidence base regarding information needs in the context of patient interactions by: (1) supporting the applicability of the Information Needs Event Taxonomy and extending it through addition of a new generic question; (2) providing a foundation for the addition of context-specific links to external information resources within information systems; (3) applying a new approach for elicitation of information needs; and (4) expanding the literature regarding addressing information needs in community-based settings for HIV services. 相似文献998.
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van der Kop ML Pearce MS Dahlgren L Synnes A Sadovnick D Sayao AL Tremlett H 《Annals of neurology》2011,70(1):41-50