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Nishita Maganty Muneeb Ilyas Nan Zhang Amit Sharma 《Patient education and counseling》2018,101(4):738-742
Objective
To evaluate the effectiveness of a game-based learning (GBL) intervention, Tapamole, in improving recognition of the features of melanoma (MM) compared to a written education intervention.Methods
Tapamole, an online education intervention, was developed using GBL. Participants were voluntarily recruited from the Dermatology waiting room and randomized to three groups: game, pamphlet, and no intervention. Participants completed a pre-intervention survey, post-intervention survey, and test on MM recognition. Clustered binary data equations were used to calculate sensitivity, specificity, and accuracy for each group and GEE model with log link was used to compare measures between groups.Results
Sixty participants were recruited. The sensitivity for MM recognition in the game group was 100% compared to 95% for the pamphlet group. The specificity (40.8% vs 53.3%) and accuracy (60.6% vs 67.2%) of the game and pamphlet groups were similar. Participants in the game group reported higher enjoyment than those in the pamphlet group.Conclusion
GBL was as effective as the written intervention in identifying features of MM.Practice implications
With increasing use of the Internet for health information, it is critical to have effective online education interventions. GBL education tools are effective, enjoyable, and should be used to improve MM patient education. 相似文献3.
Molly E. Waring David D. McManus Daniel J. Amante Chad E. Darling Catarina I. Kiefe 《Patient education and counseling》2018,101(11):1973-1981
Objective
To describe characteristics associated with online health information-seeking and discussing resulting information with healthcare providers among adults with acute coronary syndromes (ACS).Methods
Consecutive patients hospitalized with ACS in 6 hospitals in Massachusetts and Georgia who reported Internet use in the past 4 weeks (online patients) were asked about online health information-seeking and whether they discussed information with healthcare providers. Participants reported demographic and psychosocial characteristics; clinical characteristics were abstracted from medical records. Logistic regression models estimated associations with information-seeking and provider communication.Results
Online patients (N?=?1142) were on average aged 58.8 (SD: 10.6) years, 30.3% female, and 82.8% non-Hispanic white; 56.7% reported online health information-seeking. Patients with higher education and difficulty accessing medical care were more likely to report information-seeking; patients hospitalized with myocardial infarction, and those with impaired health numeracy and limited social networks were less likely. Among information-seekers, 33.9% discussed information with healthcare providers. More education and more frequent online information-seeking were associated with provider discussions.Conclusion
Over half of online patients with ACS seek health information online, but only 1 in 3 of these discuss information with healthcare providers.Practice implications
Clinician awareness of patient information-seeking may enhance communication including referral to evidence-based online resources. 相似文献4.
Annemiek J. Linn Liset van Dijk Julia C.M. van Weert Beniam G. Gebeyehu Ad. A. van Bodegraven Edith G. Smit 《Patient education and counseling》2018,101(8):1419-1426
Objective
Improving adherence is a challenge and multiple barriers are likely to explain non-adherence. These barriers differ per patient and over course of the regimen. Hence, personalized interventions tailored to the specific barriers are needed. In a theoretical and evidence-based Tailored Multimedia Intervention, technology (online preparatory assessment, text messaging) was used as an add-on to a tailored counseling session (learned during a communication skills training), with the expectation of synergistic effects.Methods
A cluster randomized controlled trial was conducted in six hospitals, eight nurses and 160 chronic patients. Patient satisfaction with communication, beliefs about medication, self-efficacy and medication adherence were assessed at initiation of the treatment and after six months.Results
Intervention effects were found for patient satisfaction with nurses’ affective communication and self-efficacy at the initiation of treatment. The effect on self-efficacy remained after six months.Conclusion
By combining tailored counseling with technology, this intervention resulted in positive changes in important prerequisites of medication adherence.Practical implications
Technology can contribute significantly to health care providers’ ability to tailor information to the patients’ needs. 相似文献5.
Shrinkhala Dawadi Janet Takefman Phyllis Zelkowitz 《Patient education and counseling》2018,101(10):1852-1858
Objectives
To examine the provision of information by health care providers (HCPs) to fertility patients about accessing psychological resources.Methods
This study utilized data from a cross-sectional survey of 659 male and female patients seeking fertility treatment at clinics in Toronto and Montreal. Regression analyses were used to assess if sociodemographic and treatment variables were associated with the receipt of information, the desire for information, the helpfulness of the information, and the likelihood that participants had sought counselling.Results
The majority of respondents (79.8%) said that their HCP had not given them information about accessing psychological resources. Of the patients who did not receive this information, most (60%) said that they wanted it. Regression analysis revealed that immigrants, women, and patients with higher perceived stress scores were significantly more likely to desire this information. Furthermore, having received this information was associated with increased odds of counselling seeking (odds ratio?=?3.31, p?=?0.013).Conclusion
Fertility patients demonstrated an unmet need for information about accessing psychological resources, and HCPs may play an integral role in bridging this information gap.Practice Implications
To improve the patient-centeredness of fertility care, HCPs should be proactive in informing all patients about how to access psychological resources. 相似文献6.
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Chloe Grimmett Karen Pickett Jonathan Shepherd Karen Welch Alejandra Recio-Saucedo Elke Streit Helen Seers Anne Armstrong Ramsey I. Cutress D. Gareth Evans Ellen Copson Bettina Meiser Diana Eccles Claire Foster 《Patient education and counseling》2018,101(5):779-788
Objective
Identify existing resources developed and/or evaluated empirically in the published literature designed to support women with breast cancer making decisions regarding genetic testing for BRCA1/2 mutations.Methods
Systematic review of seven electronic databases. Studies were included if they described or evaluated resources that were designed to support women with breast cancer in making a decision to have genetic counselling or testing for familial breast cancer. Outcome and process evaluations, using any type of study design, as well as articles reporting the development of decision aids, were eligible for inclusion.Results
Total of 9 publications, describing 6 resources were identified. Resources were effective at increasing knowledge or understanding of hereditary breast cancer. Satisfaction with resources was high. There was no evidence that any resource increased distress, worry or decisional conflict. Few resources included active functionalities for example, values-based exercises, to support decision-making.Conclusion
Tailored resources supporting decision-making may be helpful and valued by patients and increase knowledge of hereditary breast cancer, without causing additional distress.Practice implications
Clinicians should provide supportive written information to patients where it is available. However, there is a need for robustly developed decision tools to support decision-making around genetic testing in women with breast cancer. 相似文献8.
M. Gemma Cherry Ian Fletcher Damon Berridge Helen O’Sullivan 《Patient education and counseling》2018,101(4):659-664
Objective
To investigate whether and how doctors’ attachment styles and emotional intelligence (EI) might influence patients’ emotional expressions in general practice consultations.Methods
Video recordings of 26 junior doctors consulting with 173 patients were coded using the Verona Coding Definition of Emotional Sequences (VR-CoDES). Doctors’ attachment style was scored across two dimensions, avoidance and anxiety, using the Experiences in Close Relationships: Short Form questionnaire. EI was assessed with the Mayer-Salovey-Caruso Emotional Intelligence Test. Multilevel Poisson regressions modelled the probability of patients’ expressing emotional distress, considering doctors’ attachment styles and EI and demographic and contextual factors.Results
Both attachment styles and EI were significantly associated with frequency of patients’ cues, with patient- and doctor-level explanatory variables accounting for 42% of the variance in patients’ cues. The relative contribution of attachment styles and EI varied depending on whether patients’ presenting complaints were physical or psychosocial in nature.Conclusion
Doctors’ attachment styles and levels of EI are associated with patients’ emotional expressions in primary care consultations. Further research is needed to investigate how these two variables interact and influence provider responses and patient outcomes.Practice implications
Understanding how doctors’ psychological characteristics influence PPC may help to optimise undergraduate and postgraduate medical education. 相似文献9.
Tsuyoshi Okuhara Hirono Ishikawa Masahumi Okada Mio Kato Takahiro Kiuchi 《Patient education and counseling》2018,101(3):406-413
Objective
In Japan, the human papillomavirus (HPV) vaccination rate has sharply fallen to nearly 0% due to sensational media reports of adverse events. Online anti-HPV-vaccination activists often warn readers of the vaccine’s dangers. Here, we aimed to examine frequently appearing contents on pro- and anti-HPV vaccination websites.Methods
We conducted online searches via two major search engines (Google Japan and Yahoo! Japan). Targeted websites were classified as “pro,” “anti,” or “neutral” according to their claims, with the author(s) classified as “health professionals,” “mass media,” or “laypersons.” We then conducted a text mining analysis.Results
Of the 270 sites analyzed, 16 contents were identified. The most frequently appearing contents on pro websites were vaccine side effects, preventable effect of vaccination, and cause of cervical cancer. The most frequently appearing contents on anti websites were vaccine side effects, vaccine toxicity, and girls who suffer from vaccine side effects. Main disseminators of each content according to the author’s expertise were also revealed.Conclusion
Pro-HPV vaccination websites should supplement deficient contents and respond to frequent contents on anti-HPV websites.Practice implications
Effective tactics are needed to better communicate susceptibility to cervical cancer, frequency of side effects, and responses to vaccine toxicity and conspiracy theories. 相似文献10.
Johanna Granhagen Jungner Elisabet Tiselius Marika Wenemark Klas Blomgren Kim Lützén Pernilla Pergert 《Patient education and counseling》2018,101(9):1661-1668
Objective
To develop a valid and reliable questionnaire addressing the experiences of healthcare personnel of communicating over language barriers and using interpreters in paediatric healthcare.Methods
A multiple- methods approach to develop and evaluate the questionnaire, including focus groups, cognitive interviews, a pilot test and test-retest. The methods were chosen in accordance with questionnaire development methodology to ensure validity and reliability.Results
The development procedure showed that the issues identified were highly relevant to paediatric healthcare personnel and resulted in a valid and reliable Communication over Language Barriers questionnaire (CoLB-q) with 27 questions.Conclusion
The CoLB-q is perceived as relevant, important and easy to respond to by respondents and has satisfactory validity and reliability.Practice implications
The CoLB-q can be used to map how healthcare personnel overcome language barriers through communication tools and to identify problems encountered in paediatric healthcare. Furthermore, the transparently described process could be used as a guide for developing similar questionnaires. 相似文献11.
Jenna Petersen Cathryn Koptiuch Yelena P. Wu Ryan Mooney Ashley Elrick Kathryn Szczotka Megan Keener Lisa Pappas Priyanka Kanth Andrew Soisson Wendy Kohlmann Kimberly A. Kaphingst 《Patient education and counseling》2018,101(11):2011-2017
Objectives
To explore patterns of communication among families with a Lynch syndrome diagnosis and understand what resources could facilitate family communication.Methods
127 probands (i.e., first person in family with identified mutation) and family members participated in semi-structured interviews about: how they learned about the Lynch syndrome diagnosis, with whom they shared genetic test results, confidence in sharing results with other family members, and helpfulness of educational resources.Results
Both probands and family members were most likely to share genetic test results with parents and siblings, and least likely to share results with aunts, uncles, and cousins. Most participants felt very confident sharing their test results with family members, but reported that certain topics such as cancer risk were challenging to convey. Probands reported the most helpful resources to be access to a specialty clinic or website, while family members described general printed materials as most helpful.Conclusions
Families affected by Lynch syndrome may experience barriers to communication with more distant relatives, and may benefit from receiving specific resources (e.g., websites about Lynch syndrome, print materials) to facilitate family communication.Practice implications
Providers could emphasize the need to share information with more distant family members and provide appropriate supportive resources. 相似文献12.
Introduction
Patients are increasingly accessing online health information and have become more participatory in their engagement with the advent of social media (SM). This study explored how patients’ use of SM impacted their interactions with healthcare professionals (HCPs).Methods
Focus groups (n = 5) were conducted with 36 patients with chronic conditions and on medication who used SM for health-related purposes. The discussions lasted 60–90 min, were audio-recorded, transcribed verbatim, and thematically analysed.Results
Participants did not interact with HCPs on SM and were not expecting to do so as they used SM exclusively for peer interactions. Most reported improvement in the patient-HCP relationship due to increased knowledge, better communication, and empowerment. Participants supplemented HCP-provided information with peer interactions on SM, and prepared themselves for consultations. They shared online health information with HCPs, during consultations, to validate it and to actively participate in the decision-making. Although some participants reported HCP support for their online activities, most perceived overt or tacit opposition.Conclusion
Participants perceived that their SM use positively impacted relationships with HCPs. They felt empowered and were more assertive in participating in decision-making.Practice implications
HCPs should be aware of patients’ activities and expectations, and support them in their online activities. 相似文献13.
Katherine K.W. Lam William H.C. Li O.K. Chung K.Y. Ho S.Y. Chiu H.S. Lam Godfrey C.F. Chan 《Patient education and counseling》2018,101(11):1947-1956
Objective
This study examined the effectiveness of an integrated programme in promoting physical activity, reducing fatigue, enhancing physical activity self-efficacy, muscle strength and quality of life among Chinese children with cancer.Methods
A randomised controlled trial was conducted in a Hong Kong public hospital. Seventy eligible children were randomly assigned to an experimental group (n?=?37) or a control group (n?=?33). The experimental group received an integrated programme with 28 home visits from coaches over a 6-month period. The control group received a placebo intervention. The primary outcome was fatigue at 9 months (3 months after intervention completion). Secondary outcomes were physical activity levels, physical activity self-efficacy, muscle strength and quality of life at 9 months, assessed at baseline, and 6 and 9 months after starting the intervention.Results
The experimental group reported significantly lower levels of cancer-related fatigue, higher levels of physical activity and physical activity self-efficacy, greater right- and left-hand grip strength and better quality of life than the control group at 9 months.Conclusion
The programme is effective and feasible to implement among children with cancer and offers an alternative means of ameliorating the healthcare burden.Practice implications
Healthcare professionals should build multidisciplinary partnerships to sustain such programmes. 相似文献14.
Claudia Sinoo Sylvia van der Pal Olivier A. Blanson Henkemans Anouk Keizer Bert P.B. Bierman Rosemarijn Looije Mark A. Neerincx 《Patient education and counseling》2018,101(7):1248-1255
Objective
The PAL project develops a conversational agent with a physical (robot) and virtual (avatar) embodiment to support diabetes self-management of children ubiquitously. This paper assesses 1) the effect of perceived similarity between robot and avatar on children’s’ friendship towards the avatar, and 2) the effect of this friendship on usability of a self-management application containing the avatar (a) and children’s motivation to play with it (b).Methods
During a four-day diabetes camp in the Netherlands, 21 children participated in interactions with both agent embodiments. Questionnaires measured perceived similarity, friendship, motivation to play with the app and its usability.Results
Children felt stronger friendship towards the physical robot than towards the avatar. The more children perceived the robot and its avatar as the same agency, the stronger their friendship with the avatar was. The stronger their friendship with the avatar, the more they were motivated to play with the app and the higher the app scored on usability.Conclusion
The combination of physical and virtual embodiments seems to provide a unique opportunity for building ubiquitous long-term child-agent friendships.Practice implications
an avatar complementing a physical robot in health care could increase children’s motivation and adherence to use self-management support systems. 相似文献15.
Veerle Duprez Dimitri Beeckman Sofie Verhaeghe Ann Van Hecke 《Patient education and counseling》2018,101(2):276-284
Objective
To explore nurses’ self-perceived behavior of supporting patients’ self-management, and its association with person-related and socio-structural factors.Methods
Correlational study in a sample of nurses from nine general hospitals, three community healthcare organizations, and six private community practices. Nurses with >50% of their patients living with a chronic condition were eligible to participate. Data were collected at two time-points. Self-management support behavior was measured by the SEPSS-36 instrument. The person-related and socio-structural associated factors were derived from behavioral theories and measured by validated questionnaires.Results
Nurses (N = 477) scored overall low on self-management support behavior. Nurses lacked mainly competencies in collaborative goalsetting, shared decision making and organizing follow-up. Factors predicting nurses’ behavior in supporting patients’ self-management were self-efficacy, priority, perceived supervisor support and training in self-management support. This model explained 51.7% of the variance in nurses’ behavior.Conclusion
To date, nurses do not optimally fulfil their role in supporting patients’ self-management. Self-management support is practiced from a narrow medical point of view and primarily consists of informing patients, which is the lowest level of patient participation.Practice implications
It is essential to better prepare and support nurses ? and by extend all healthcare professionals ? for the challenges of supporting patients’ self-management. 相似文献16.
Kristina Luhr Marie Holmefur Kersti Theander Ann Catrine Eldh 《Patient education and counseling》2018,101(6):1137-1142
Objective
Patient participation is facilitated by patients’ ability to take responsibility for and engage in health issues. Yet, there is limited research as to the promotion of these aspects of patient participation in long-term healthcare interactions. This paper describes patient participation as experienced by patients with chronic obstructive pulmonary disease (COPD) or chronic heart failure (CHF); the aim was to describe if and how a self-management programme in primary healthcare influenced patient participation.Methods
Patients who had participated in a self-management programme were interviewed in nine focus groups (36 patients). Data was analysed using qualitative content analysis.Results
Patients described equality in personal interactions, opportunities to share and discuss, and a willingness to share and learn to facilitate patient participation in a self-management programme. Consequently, patient participation was promoted by a match between the individuals’ personal traits and the context.Conclusion
Features facilitating patient participation by means of sharing and assimilating knowledge and insights should be included in self-management programmes and in the care for patients with COPD and CHF.Practice implications
A self-management programme can complement regular primary care regarding enhanced understanding of one’s disease and support patient participation and the patient’s own resources in self-management. 相似文献17.
Carma L. Bylund Smita C. Banerjee Philip A. Bialer Ruth Manna Tomer T. Levin Patricia A. Parker Elizabeth Schofield Yuelin Li Abraham Bartell Alexander Chou Shira A. Hichenberg Maura Dickler David W. Kissane 《Patient education and counseling》2018,101(11):1924-1933
Objective
Integrating education about physician-patient communication into oncology specialists’ education is important to improve quality of care. Our aim was to rigorously evaluate a 4-year institutionally-based patient communication skills program for oncology post-graduate trainees.Methods
Trainees from 10 specialties in the U.S. participated in patient communication skills modules tailored to sub-specialties. The program was evaluated by comparing pre-post scores on hierarchical outcomes: course evaluation, self-confidence, skills uptake in standardized and real patient encounters, and patient evaluations of satisfaction with communication. We examined breadth of skill usage as key outcome. Generalized estimating equations were used in data analysis.Results
Two hundred and sixty-two trainees’ data were analyzed, resulting in 984 standardized and 753 real patient encounters. Participants reported high satisfaction and demonstrated significant skill growth with standardized patients, but transfer of these skills into real patient encounters was incomplete. Participants with lower baseline scores had larger improvements with both standardized and real patients.Conclusion
The program was well received and increased participant skills in the simulated setting without effective transfer to real patient encounters.Practice Implications
Future work should allocate proportionally greater resources to trainees with lower baseline scores and measure breadth of participant skill usage as an outcome. 相似文献18.
Bronwyn Hemsley Megan Rollo Andrew Georgiou Susan Balandin Sophie Hill 《Patient education and counseling》2018,101(1):2-15
Objective
To integrate the findings of research on electronic personal health records (e-PHRs) for an understanding of their health literacy demands on both patients and providers.Methods
We sought peer-reviewed primary research in English addressing the health literacy demands of e-PHRs that are online and allow patients any degree of control or input to the record. A synthesis of three theoretical models was used to frame the analysis of 24 studies.Results
e-PHRs pose a wide range of health literacy demands on both patients and health service providers. Patient participation in e-PHRs relies not only on their level of education and computer literacy, and attitudes to sharing health information, but also upon their executive function, verbal expression, and understanding of spoken and written language.Conclusion
The multiple health literacy demands of e-PHRs must be considered when implementing population-wide initiatives for storing and sharing health information using these systems.Practice implications
The health literacy demands of e-PHRs are high and could potentially exclude many patients unless strategies are adopted to support their use of these systems. Developing strategies for all patients to meet or reduce the high health literacy demands of e-PHRs will be important in population-wide implementation. 相似文献19.
Allison Gates Jocelyn Shulhan Robin Featherstone Shannon D. Scott Lisa Hartling 《Patient education and counseling》2018,101(7):1207-1215
Objective
As a first step toward the development of an animated video and infographic to increase parents’ knowledge of pediatric urinary tract infections (UTIs), we conducted a systematic review of their experiences and information needs.Methods
We searched Ovid Medline, Ovid PsycINFO, CINAHL, and ProQuest Dissertations and Theses Global for studies published in 2000 or thereafter. We appraised quality using the Mixed Methods Appraisal Tool. We summarised the quantitative data narratively and the qualitative data thematically.Results
We identified 1493 records and included four. Sample size ranged from 20 to 2726 parents. The children ranged from <1 to 12 years old and had experienced one to >10 UTIs. Parents were not always aware of UTI symptoms and generally received little information. Parents sought information online, and desired it via other means. Some parents were not confident in healthcare providers’ (HCPs’) knowledge of UTIs. Inadequate information about diagnostic tests sometimes resulted in fear and non-compliance.Conclusions
From the limited literature, it appears that parents would like information about prevention, diagnosis, treatment, and prognosis, but do not always consider HCPs good information sources.Practice implications
Care providers should communicate information in ways that suit parents’ self-identified needs. 相似文献20.
Helen Hall Matthew J. Leach Caragh Brosnan Robyn Cant Melissa Collins 《Patient education and counseling》2018,101(8):1403-1409