“Eyes Wide Shut”: Narratives of Women Living with Hepatitis C in Australia

ABSTRACT

Hepatitis C is the leading notifiable infectious disease in Australia and in the last few years, the number of new diagnoses among young women is beginning to outnumber men. For many, infection with hepatitis C virus (HCV) results in a chronic condition, which, in addition to a range of symptoms, carries with it the stigma attached to injecting drug use. Despite the growing prevalence of HCV, women's health has barely begun to address the gender specific impact of this illness on women. We report the results of a qualitative study of young women's experiences of living with HCV with a specific focus on the meaning of this condition and its impact on their lives. In 1999–2000, twenty-five in-depth interviews were conducted with women between the ages of 18 and 43 years, who were current or past injecting drug users and who had been diagnosed with HCV. One focus group discussion was held with health workers who provide treatment and care to this population. A number of key issues were identified that women believed impacted negatively on their lived experiences of HCV. Of most concern was the meaning of HCV and the social stigma attached. Stigma coupled with the lack of knowledge and awareness among health professionals and the high cost of treatment contributed to women's reluctance to seek support and care. HCV has yet to be taken up by the women's health movement as a key issue, especially for young women and we argue that this trend needs to be reversed.     

ON EMPOWERING WOMEN: A SENATOR'S PERSPECTIVE ON POLICIES IN THAILAND

Childbirth is significantly influenced by women's cultural perceptions, beliefs, expectations, fears, and cultural practices. Our purpose in conducting this focused ethnography was to determine the perceptions of Ghanaian childbearing women. Twenty-four mothers who received health care at the Salvation Army Clinic in Wiamoase, Ashanti, Ghana, participated in audiotaped interviews. Patterns of thought and behaviors were analyzed, describing the realities of the lives of Ghanaian childbearing women. Themes included centering on motherhood, accessing health care, using biomedicine, ethnomedicine, and spiritual cures; viewing childbirth as a dangerous passage; experiencing the pain of childbirth; and fearing the influence of witchcraft on birth outcomes. Culturally specific knowledge obtained in this study can be utilized by health care providers, health policymakers, and those designing health care interventions to improve the health and well-being of childbearing women in developing countries.     

Envisioning Women-Centered HIV Care: Perspectives from Women Living with HIV in Canada

BackgroundWomen comprise nearly one-quarter of people living with human immunodeficiency virus (HIV) in Canada. Compared with men, women living with HIV experience inequities in HIV care and health outcomes, prompting a need for gendered and tailored approaches to HIV care.MethodPeer and academic researchers from the Canadian HIV Women's Sexual and Reproductive Health Cohort Study conducted focus groups to understand women's experience of seeking care, with the purpose of identifying key characteristics that define a women-centered approach to HIV care. Eleven focus groups were conducted with 77 women living with HIV across Quebec, Ontario, and British Columbia, Canada.ResultsWomen envisioned three central characteristics of women-centered HIV care, including i) coordinated and integrated services that address both HIV and women's health care priorities, and protect against exclusion from care due to HIV-related stigma, ii) care that recognizes and responds to structural barriers that limit women's access to care, such as violence, poverty, motherhood, HIV-related stigma, and challenges to safe disclosure, and iii) care that fosters peer support and peer leadership in its design and delivery to honor the diversity of women's experiences, overcome women's isolation, and prioritize women's ownership over the decisions that affect their lives.ConclusionDespite advances in HIV treatment and care, the current care landscape is inadequate to meet women's comprehensive care needs. A women-centered approach to HIV care, as envisioned by women living with HIV, is central to guiding policy and practice to improve care and outcomes for women living with HIV in Canada.     

PREGNANCY,BIRTH, AND DISABILITY: WOMEN'S HEALTH CARE EXPERIENCES

This qualitative study examined the pregnancy, birth and postpartum experiences of 12 women with mobility-limiting physical disabilities. Analysis of semi-structured interviews of one to two hours revealed that the women's experiences were influenced by their own perspectives and the characteristics of health care system within which they were treated. The woman's experience included the effect of her disability, her resources, and her personality and approach. Health care system factors included provider attitudes, knowledge     

Perceptions of stress and resilience among Latina women enrolled in prenatal care in Metro Atlanta through an ecosocial lens

Stress across the life course is highly prevalent, particularly among immigrant and racial/ethnic minority women who face adversities associated with structural and interpersonal racism. Understanding how women perceive and describe stress and resilience can provide cultural context to inform interventions to improve health among pregnant women facing adversity. The goal of this project was to examine how external stressors and coping strategies prior to and during pregnancy are reflected in Latina women's narratives about their lives through an Ecosocial framework. This mixed methods research study explores pregnant Latina women's psychosocial well-being before and during pregnancy based on Ecosocial theory. We conducted 111 surveys with Latina women receiving prenatal care in Atlanta, Georgia in 2017–2018. We conducted 24 in-depth interviews, chosen purposively from survey respondents, collecting narratives of stress and resilience over the course of pregnancy. We purposively sampled equal numbers of women who did and did not report an ongoing stressor in the survey. The survey and interview guide were focused on domains of stress, psychosocial being, coping and resilience. The majority of survey participants spoke Spanish (86%) and were born in Mexico (42%) or Guatemala (27%). Less than half (37%) reported ongoing stress, most commonly from a loved one's illness or work-related problem. The majority of women felt they should control emotional responses to external stressors during pregnancy to protect their baby's health. Women described motherhood and previous challenges as sources of maturity and improved coping. Familial financial and emotional support were perceived as critical to women's successful coping.     

Institutionalizing women's oppression: The inherent risk in health policy that fosters community participation

Current Canadian health policy is based on the implicit assumption that women are available to provide care in the home to the dependent, the ill, the elderly, and the physically and mentally disabled. Women are socialized from birth to accept caring roles within a traditional family structure, and current societal expectations and social policy reinforce this value system. Women's health can only be understood within the context of their lived experience of social inequity, medicalization, and family caregiving. Health care professionals are complicit in sustaining women's oppression by reinforcing these institutions of social control. For health policy to be responsive to women's needs, it must be based on research that considers the social complexity of ordinary women's lives.     

Menstrual Problems and Health Seeking in Sri Lanka

Menstruation is associated with some morbidity, although it is a normal physiological event. In this article, we draw on qualitative research conducted in Sri Lanka in 2006–2007, which included eight key informant interviews with healthcare providers, six focus group discussions with eight women in each, and five case studies. We describe and analyze women's perceptions of menstruation and menstrual problems, their help-seeking behaviors to reduce these health problems, and the consequences of them on their lives. The majority of women perceived menstruation as a physiological process and related problems to changes in hormone levels, pathological conditions of the uterus, and the side effects of contraceptive methods. Menstrual problems significantly affected their daily activities, mental well-being, social life, and sexual life, but few sought medical advice to resolve these problems. Implications of the findings included the need for health care providers and educators to provide accurate information on menstruation to girls and women to enable them to identify normal variation of menstruation and to take appropriate action regarding health care.     

Perspectives of African-American Women on Infant Mortality

ABSTRACT

Twice as many African-American infants die each year when compared to White infants. This study explores the lived experiences of African-American women to identify factors related to this racial gap in infant mortality. Thirteen African-American women from two Virginia towns participated in either a focus group or in-depth interviews. Content and interpretive analysis revealed several themes. Participants indicated that the experiences of stress and racism are constant factors in African-American women's lives and are inseparable from their pregnancy experiences. Participants noted the importance of social support and the health care provider–client relationship for positive pregnancy outcomes.     

Women Veterans’ Attrition from the VA Health Care System

PurposePatient attrition from the Veterans Health Administration (VA) health care system could undercut its mission to ensure care for eligible veterans. Attrition of women veterans could exacerbate their minority status and impede systemic efforts to provide high-quality care. We obtained women veterans’ perspectives on why they left or continued to use VA health care.MethodsA sampling frame of new women veteran VA patients was stratified by those who discontinued (attriters) and those who continued (non-attriters) using VA care. Semistructured interviews were conducted from 2017 to 2018. Transcribed interviews were coded for women's decision-making, contexts, and recommendations related to health care use.ResultsFifty-one women veterans (25 attriters and 26 non-attriters) completed interviews. Reasons for attrition included challenging patient care experiences (e.g., provider turnover, claim processing challenges) and the availability of private health insurance. Personal experiences with VA care (e.g., gender-specific care) were impactful in women's decision to use VA. The affordability of VA care was influential for both groups to stay connected to services. More than one-third of women originally categorized as attriters described subsequently reentering or planning to reenter VA care. Suggestions to decrease attrition included increasing outreach, improving access, and continuing to tailor care delivery to women veterans' needs.ConclusionsUnderstanding the drivers of patients’ decisions to use or not use the VA is critical for the development of strategies to improve retention of current patients and optimize health outcomes for veterans. Women veterans described complex reasons why they left or continued using VA, with cost/affordability playing an important role even in considerations of returning to VA after a long hiatus.     

Perception of Health Care Delivery in Israel: Women's Voices

In this article, we describe the results of nine focus groups in which women were asked to discuss their perception of the women's health care delivery system in Israel. The focus groups, held in Israel in 2001, included nearly 150 women with diverse demographic characteristics. This project solicited focused input from women of different ages from the periphery as well as highly populated areas. The responses were categorized into designated themes and are presented here to demonstrate the range of women's feelings toward health care. The qualitative findings of this research show that place of residence affects the women's sense of responsibility for their health and their use of private care. Age was found to affect knowledge and use of health information, the frequency of visits to the doctor, and the general level of satisfaction with the system. These findings are important to improve health care delivery and can serve as a basis for forging policy changes in Israel.     

Physician Practices in Response to Intimate Partner Violence in Southern India: Insights from a Qualitative Study

Health care providers in India are often the only institutional contact for women experiencing intimate partner violence, a pervasive public health problem with adverse health outcomes. This qualitative study was among the first to examine Indian primary care physicians' intimate partner violence practices. Between July 2007 and January 2008, 30 in-depth interviews were conducted with physicians serving low-to-middle income women aged 18–30 in southern India. A modified grounded theory approach was used for data collection and analysis. Study findings revealed a distinct subset of ‘physician champions’ who responded to intimate partner violence more consistently, informed women of their rights, and facilitated their utilization of support services. Findings also offered insights into physicians' ability to identify indications of intimate partner violence and use of potentially culturally appropriate practices to respond to intimate partner violence, even without training. However, physician practices were mediated by individual attitudes. Although not generalizable, findings offer some useful lessons which may be transferable for adaptation to other settings. A potential starting point is to study physicians' current practices, focusing on their safety and efficacy, as well as enhancing these practices through appropriate training. Further research is also needed on women's perspectives on the appropriateness of physicians' practices, and women's recommendations for intimate partner violence intervention strategies.     

Disrupted Lives,Fragmented Care: Illness Experiences of Criminalized Women

ABSTRACT

Thirty-three women recently released from a Massachusetts correctional facility were included in a qualitative study, carried out between January and July 2007, in which semi-structured, open-ended, individual interviews were conducted. The women described lives repeatedly disrupted, typically by sexual and physical violence, and then again by homelessness, joblessness, bad relationships, loss of their children, legal troubles, fractured physical and mental health, and fragmented medical attention by a large, disjointed variety of providers and facilities. This article argues that rather than repairing life disruptions, the women's fragmented health care histories tended to echo or even become part of that fragmentation. We suggest that criminalization and medicalization actually served as two sides of the same coin in the women's life experiences.     

Psychological Well-Being in Women with Heart Failure: Can Social Roles Make a Difference?

I performed this study to examine whether the quality of women's social roles influences the impact of heart failure (HF) on their psychological well-being. Survey questionnaires measuring social role quality, physical health, and psychological well-being were completed by 169 midlife, older, and late-life women. Hierarchical multiple regression indicated that, after controlling for age, income, and physical health, social role quality accounted for a significant proportion of variance in multiple well-being outcomes. The quality of women's social roles may be an important consideration in the development of interventions to help women with HF live satisfying and productive lives.     

Choice as a risk to women's health

“Choice” has long been a principal demand of the women's health movement. This paper explores some ways in which current trends in biomedicine and health care may be transforming the concept of choice, and the choices provided to women, into risks to our well-being. The trends examined include the continuing neglect of structural constraints on women's abilities to choose; the framing of choice solely as an expression of individualism; and a vision of health care choices for women as ways to stimulate the economy. These trends present special risks for women because they co-opt our demands for gender-based health policies to support the commercialisation of health and health care. To counter these trends_' women will have to participate actively in the processes that determine what options are developed and made available to us, ensuring that the contexts of women's lives and our understandings of risks are addressed. Only then might choice be authentic, and not a risk for health.     

Occupational Hazards and Coping Strategies of Sex Workers in Southwestern Nigeria

The purpose of this article is to share with nurses around the world the findings of a phenomenological study of the meaning of menopause as experienced by modern Korean women. Four rhythmical patterns of the process of menopause were found: from suffering to comfort, from oppression to freedom, from being a good wife and mother to becoming a woman, and from a productive life to a transformed life. This unique nursing perspective on women's experience of menopause can further nurses' understanding of this human health experience and contribute to their participation in the quality of women's lives.     

Social isolation and health in widowhood: A qualitative study of Nepali widows' experiences

Little research exists on social isolation and health among widows despite their marginalization in South Asia. Using a conceptual framework that delineates distinct forms of social support, our results provide a preliminary analysis of the role social support plays in the well-being of Nepali widows. Between 2011 and 2012, we conducted 42 in-depth interviews in the Kathmandu valley and Surkhet district. Low social support was a common theme, principally lacking in the domains of emotional and instrumental support and was described as increasing women's vulnerability to mistreatment and economic insecurity. Policies and programs that foster these types of support may have positive effects on widows' well-being.     

“You Really Do Something Useful with Kids”: Mothering and Experienced Health and Illness in a Group of Elderly Swedish Women

This article is based on in-dept interviews with 20 elderly Swedish women, and deals with mother's child-caring work and related health and illness. Mothering included invisible work as well as physically heavy tasks, both aspects often neglected in research. The attitude of the children's father had a great impact on the work. Feelings of success or failure at bringing up their children affected the women's experience of health/ill health throughout their lives. Their health as elderly women depended on the health and happiness of their, now adult, children.     

Gender,self and pleasure: young women's discourse on masturbation in contemporary Shanghai

This study examines views and experiences of young Shanghai women with respect to masturbation. Through in-depth interviews with forty young women in Shanghai aged 22 to 39 from May 2004 to July 2007, the study explores women's understandings of masturbation, their desires and their lives as modern Chinese women. The focus of the analysis is on how women talk about their masturbation experiences and make sense of their experiences in the context of their sexual relationships and lifestyle choices. By analysing women's narratives about masturbation, the paper suggests that women's self-articulation is actually an engagement in self-image construction. The strategies they use to position themselves in relation to different social discourses on masturbation, how they describe and perform the acts and how they articulate their experiences of masturbation are examined to illustrate how young women in Shanghai perform gender and sexual intimacies in a fast changing city.