Deferred decision making: patients' reliance on family and physicians for CPR decisions in critical care

The aim of this study was to investigate factors associated with seriously ill patients' preferences for their family and physicians making resuscitation decisions on their behalf. Using SUPPORT II data, the study revealed that, among 362 seriously ill patients who were experiencing pain, 277 (77%) answered that they would want their family and physicians to make resuscitation decisions for them instead of their own wishes being followed if they were to lose decision-making capacity. Even after controlling for other variables, patients who preferred the option of undergoing cardiopulmonary resuscitation (CPR) in the future were twice as likely, and those who had had ventilator treatment were four-fifths less likely, to rely on their family and physicians than those who did not want CPR (odds ratio (OR) = 2.28; 95% confidence interval (CI) 1.18-4.38) or those who had not received ventilator treatment (OR = 0.23; 95% CI 0.06-0.90). Psychological variables (anxiety, quality of life, and depression), symptomatic variables (severity of pain and activities of daily living) and the existence of surrogates were not significantly associated with patients' preferences for having their family and physicians make resuscitation decisions for them. Age was not a significant factor for predicting the decision-making role after controlling for other variables.     

Patient participation in decision making about care.

The purpose of this study was to find out how cancer patients perceive patient participation in decision-making and to see which factors in their view facilitate and restrict participation. Data were collected in focus group interviews with 25 patients, most of whom had breast cancer. Data interpretation was based on the method of qualitative content analysis. The results showed that patients, nurses and physicians all play a part in terms of how patients participate in decision-making. Patients defined participation in decision-making in terms of asking questions, obtaining/providing information and choosing from/presenting different alternatives. Among the factors that were thought to promote participation in decision-making were the patient's activity, the presence of a primary nurse/physician, the encouragement of nurses and physicians to participate, the treatment of patients as equals, and nurses and physicians having enough time for patients. As for factors hindering participation in decision-making, reference was made to patient ignorance, physical and mental imbalance and shyness on the part of the patient. Obstacles to participating in decision-making that originated in the nurses and physicians were the tendency for them to treat patients as objects, to fall in a routine, problems with information dissemination and lack of time.     

The challenges of caring in a technological environment: critical care nurses' experiences

Purpose. This paper presents and discusses the findings from a phenomenological study which illuminated the lived experiences of experienced critical care nurses caring within a technological environment. Background. While nursing practice is interwoven with technology, much of the literature in this area is speculative. Moreover, there is a debate as to whether and how ‘high tech’ and ‘high touch’ are reconcilable; this orientation is referred to as the optimism vs. pessimism debate. On a personal level, the motivation for this study came from the author's 13 years’ experience in the critical care area. Method. Following ethical approval, 10 experienced nurses from two cardiothoracic critical care units in Ireland participated in the study. A Heideggerian phenomenological methodology was used. Data collection consisted of unstructured interviews. A method of data analysis described by Walters was used. Findings. The findings provide research‐based evidence to illuminate further the optimistic/pessimistic debate on technology in nursing. While the study demonstrates that the debate is far from resolved, it reveals a new finding: life‐saving technology that supports the lives of critically ill patients can bring experienced nurses very close to their patients/families. The three main themes that emerged: ‘alien environment’, ‘pulling together’ and ‘sharing the journey’ were linked by a common thread of caring. Conclusion. Experienced critical care nurses are able to transcend the obtrusive nature of technology to deliver expert caring to their patients. However, the journey to proficiency in technology is very demanding and novice nurses have difficulty in caring with technology. Relevance to clinical practice. It is recommended that more emphasis be placed on supporting, assisting and educating inexperienced nurses in the critical care area and that the use of technology in nursing be given serious consideration.     

Critical care nurses' decision making: sedation assessment and management in intensive care

Aims. This study was designed to examine the decision making processes that nurses use when assessing and managing sedation for a critically ill patient, specifically the attributes and concepts used to determine sedation needs and the influence of a sedation guideline on the decision making processes. Background. Sedation management forms an integral component of the care of critical care patients. Despite this, there is little understanding of how nurses make decisions regarding assessment and management of intensive care patients’ sedation requirements. Appropriate nursing assessment and management of sedation therapy is essential to quality patient care. Design. Observational study. Methods. Nurses providing sedation management for a critically ill patient were observed and asked to think aloud during two separate occasions for two hours of care. Follow‐up interviews were conducted to collect data from five expert critical care nurses pre‐ and postimplementation of a sedation guideline. Data from all sources were integrated, with data analysis identifying the type and number of attributes and concepts used to form decisions. Results. Attributes and concepts most frequently used related to sedation and sedatives, anxiety and agitation, pain and comfort and neurological status. On average each participant raised 48 attributes related to sedation assessment and management in the preintervention phase and 57 attributes postintervention. These attributes related to assessment (pre, 58%; post, 65%), physiology (pre, 10%; post, 9%) and treatment (pre, 31%; post, 26%) aspects of care. Conclusions. Decision making in this setting is highly complex, incorporating a wide range of attributes that concentrate primarily on assessment aspects of care. Relevance to clinical practice. Clinical guidelines should provide support for strategies known to positively influence practice. Further, the education of nurses to use such guidelines optimally must take into account the highly complex iterative process and wide range of data sources used to make decisions.     

After critical care: a study to explore patients' experiences of a follow-up service

Aims and objectives. To establish patients’ experiences after discharge from critical care and to evaluate implementation of a follow‐up service. Background. Government recommendations advise critical care follow‐up to prevent readmission and address problems after discharge. Admission to critical care results in significant psychological and physiological sequelae. Design. A prospective, longitudinal and exploratory study of surgical cancer patients requiring >48 hours in critical care. Qualitative interviews were conducted and short questionnaires were used. Methods. Patient Expert Advisory Groups were invited to participate in research design. Patients were visited in the ward at days 1 and 5 after discharge, invited to nurse‐led follow‐up clinic and interviewed at three and six months. Short questionnaires were administered at six and 12 months. Findings. Twenty‐seven patients participated in the study. All patients experienced benefit from the service. Emergent themes included: rehabilitation from critical care: physiological issues and needs, memories: real and unreal, uncertainty and fear and empathy. A core theme of reassurance was underlying through the research. Issues while in critical care included: the need for nursing presence, nightmares, delusions, confusion, fear of ward transfer, inability to remember, disorientation and being prepared for the experience. After discharge, issues shifted to longer term needs. Psychological support, in the form of the follow‐up clinic, proved useful. The ability to move on with life after discharge varied and uncertainty about the future and their cancer had an impact upon this. Recovery was made easier through the follow‐up clinic. Patients required reassurances that their experiences were valid and also wanted reassurances about their cancer. Conclusion. Critical care causes various difficulties for patients that may impinge on recovery. Incorporating patients into the design process helps identify needs more closely. Follow‐up proved beneficial and highlighted the role nurses have in improving patient experiences after discharge from critical care. Nurses should be vigilant for both immediate and longer‐term needs. Relevance to clinical practice. This research into nurse‐led follow‐up clinics after critical care highlights an important, and often neglected, part of the critical illness continuum. Attending such clinics may help reassure patients after discharge from critical care.     

Triage nurses' clinical decision making. An observational study of urgency assessment

BACKGROUND: Researchers have described both the various decision tasks performed by triage nurses using self-report methods and identified time as a factor influencing the quality of triage decisions. However, little is known about the decision tasks performed by triage nurses when making acuity assessments, or the factors influencing triage duration in the real world. AIMS: The aims of this study were to: describe the data triage nurses collect from patients in order to allocate a triage priority using the Australasian Triage Scale (ATS); describe the duration of nurses' decision making for ATS categories 2-5; and to explore the impact of patient and nurse variables on the duration of the triage nurses' decision making in the clinical setting. DESIGN: A structured observational study was employed to address the research aims. Observational data was collected in one adult emergency department located in metropolitan Melbourne, Australia. A total of 26 triage nurses consented and were observed performing 404 occasions of triage. Data was collected by a single observer using a 20-item instrument that recorded the performance frequencies of a range of decision tasks and a number of observable patient, nurse and environmental variables. Additionally, the nurse-patient interaction was recorded as time in minutes. RESULTS: It was found that there was limited use of objective physiological data collected by the nurses' in order to decide patient acuity, and large variability in the duration of triage decisions observed. In addition, analysis of variance indicated strong evidence of a true difference between triage duration and a range of nurse, patient and environmental variables. CONCLUSION: These findings have implications for the development of practice standards and triage education. In particular, it is argued that practice standards should include routine measurement of physiological parameters in all but the collapsed or obviously unwell patient, where further delay may impede the delivery of time-critical intervention. Furthermore, the inclusion of arbitrary time frames for triage assessment in practice standards are not an appropriate method of evaluating triage decision making in the real world.     

Cancer patients' views and experiences of participation in care and decision making

The purpose of this study was to explore the views and experiences of adult cancer patients about patient participation in care and decision making and the preconditions for this participation. The data were collected by means of focused interviews; in addition the patients completed depression and problem-solving instruments. The sample comprised 34 cancer patients from the haematological and oncological wards of one university hospital in Finland. The results revealed considerable variation in the patients' views on their participation in care and decision making. Some of the patients understood participation either in terms of contributing to the decision making or in terms of expressing their views on treatment options. Some considered that their participation in care was impossible. Patient participation in care and decision making was promoted by good health, access to information, assertiveness, good interactive relationships with nurses and physicians, and encouragement by nurses and physicians to participate. Factors restricting such patient participation were poor health, ignorance, anxiety, age, time pressures of staff, lack of time, high staff turnover and poor interactive relationships. With regard to participation in medical decision making, the patients were divided into three groups: (1) active participants (n = 7), (2) patients giving active consent (n = 9), and (3) patients giving passive consent to medical decisions (n = 18).     

Hong Kong patients' experiences of intensive care after surgery: nurses' and patients' views.

This study was designed to explore the lived experience of patients after elective surgery when they were being cared for in a surgical intensive care unit (ICU) in the immediate post-operative period. A phenomenological approach using unstructured interviews was employed and 10 ICU nurses and 10 patients were recruited for the study. Thematic data analysis was used. Most of the nurses believed that patients had memories of their ICU stay. Two clear categories emerged from the nurses' responses: 'perceptions of the feelings experienced by the patients' and 'perceptions of what patients experienced as support'. The nurses expressed that patients had feelings related to anxiety, pain and tiredness and they were frightened by the environment and the unknown. The nurses provided support to the patients by pre-operative visits, continuous and repeated explanation, encouraging family visits and ensuring adequate pain relief and sleep. All the patients could remember at least some of what happened during their stay in ICU. The 2 main categories which emerged from patients' responses were 'feelings experienced' and 'needs during the stay'. The patients recalled the feeling of anxiety about the reason for admission and a feeling of being safe in ICU. Six patients suffered from moderate to severe pain during movement and procedures and 2 patients complained of sleeping problems. They appreciated the preoperative visit and preferred the open unit design and flexible visiting hours. The four sub-categories: pain, sleep, pre-operative visits and family visits are discussed in detail and are reviewed in the light of other studies to compare the results. Ideas for nursing interventions to help overcome these problems are outlined and recommendations for future research are presented.     

Critical care nurses' judgement of pain status: a case study design

In the performance of their professional activities, critical care nurses routinely make important judgements based on uncertain, fallible and inter-substitutable data. It is anticipated that this study will make visible the strategy by which critical care nurses use and combine multiple fallible cues, of which little is known, to reach a judgement about the pain status of the ventilated patient after coronary artery bypass graft (CABG) surgery. The study was conducted in one intensive care unit in a large university hospital with thirty critical care nurses and thirty ventilated patients. Nurses providing care for critically ill ventilated patients post CABG surgery were asked to think aloud, whilst the researcher simultaneously observed patient pain behaviours. For the purposes of this article, two contrasting pain episodes will be presented, namely, incident pain related to repositioning (initial hour) versus pain at rest (five hours later) post CABG surgery. Critical care nurses utilised different combinations of pain cues to make a judgement that the ventilated patient was either at 'risk for acute pain' during repositioning (initial hour) or was 'in acute pain' at rest (five hours) post CABG surgery. The combinations were: a 'primary preventative pain cue pattern' and a 'pain behaviour cue pattern', which were reliant on the critical care nurse's constant surveillance at the bedside linked with a theoretical and practical understanding of how pain, against a background of rapidly changing haemodynamics, could lead to a swift deterioration in a ventilated patient post CABG surgery.     

Best interests: a review of issues that affect nurses' decision making

'Best interests' is a term that is often misunderstood and incorrectly applied in practice. This article is the first of three dedicated to an explanation of the legal principles and practical applications of the term when applied to the provision of treatment and care of patients. Elements of the debate are explored that relate to aspects of daily treatment and care and to circumstances where the issue(s) relate to end of life considerations. This first article aims to raise awareness of issues that relate to the idea of acting in a person's best interests. Potential areas of concern and apprehension on the part of healthcare providers are reviewed with the aim of preparing the reader for the more legally concentrated second article, and further to alert the reader to the possibility of uncomfortable reflection to be undertaken in a professional vein.     

A philosophical yet user-friendly framework for ethical decision making in critical care nursing.

Nurses must frequently make ethical decisions. These decisions require judgment, knowledge, and skills. This article will provide one framework for ethical decision making and provide several examples of the process.     

Quality of life in cancer care: patients' experiences and nurses' contribution.

People with cancer experience great changes in their lives. Disease, treatment and prognosis affect their quality of life. The aim of this literature review was to ascertain how the illness affects patients' quality of life and to what extent nurses can influence or improve this experience. Twenty-two research articles were reviewed, the majority of which were qualitative in nature, studies that allow patients to portray their experiences in their own words. The concept of quality of life was defined as consisting of well-being in four core domains, psychological, social, physical and spiritual. It was found that patients' quality of life is affected in all four core domains and that these domains are overlapping and interdependent. The qualitative data also highlighted that each patient's experience is unique to that patient. Nurses have to be aware of this and remain sensitive to the individual patient's needs. Few of the articles reviewed examined nursing care from the patient's point of view. Tentative conclusions were that nurses can improve patients' quality of life by ensuring they are competent in daily practice, by giving patients a feeling of security and by treating them with respect as individuals and human beings.