Which chronic conditions are associated with better or poorer quality of life?

The objective of the present study is to compare the QL of a wide range of chronic disease patients. Secondary analysis of eight existing data sets, including over 15,000 patients, was performed. The studies were conducted between 1993 and 1996 and included population-based samples, referred samples, consecutive samples, and/or consecutive samples. The SF-36 or SF-24 were employed as generic QL instruments. Patients who were older, female, had a low level of education, were not living with a partner, and had at least one comorbid condition, in general, reported the poorest level of QL. On the basis of rank ordering across the QL dimensions, three broad categories could be distinguished. Urogenital conditions, hearing impairments, psychiatric disorders, and dermatologic conditions were found to result in relatively favorable functioning. A group of disease clusters assuming an intermediate position encompassed cardiovascular conditions, cancer, endocrinologic conditions, visual impairments, and chronic respiratory diseases. Gastrointestinal conditions, cerebrovascular/neurologic conditions, renal diseases, and musculoskeletal conditions led to the most adverse sequelae. This categorization reflects the combined result of the diseases and comorbid conditions. If these results are replicated and validated in future studies, they can be considered in addition to information on the prevalence of the diseases, potential benefits of care, and current disease-specific expenditures. This combined information will help to better plan and allocate resources for research, training, and health care.     

Young children’s screen habits are associated with consumption of sweetened beverages independently of parental norms

Objectives

This study investigated the associations between children’s screen habits and their consumption of sweetened beverages. Because parents might be disposed to regulate their child’s screen and dietary habits in a similar direction, our specific aim was to examine whether these associations were independent of parental norms.

Methods

In the Swedish sample of the European Identification and prevention of dietary and lifestyle-induced health effects in children and infants (IDEFICS) study, parents filled in questionnaires about their 2 to 9-year-old children’s (n = 1,733) lifestyle and diets.

Results

Associations between screen habits and sweetened beverage consumption were found independent of parental norms regarding sweetened beverages. A longitudinal analysis revealed that sweetened beverage consumption at 2-year follow-up was predicted by exposure to commercial TV at baseline (OR 1.4, 95 % CI 1.1–1.9). Cross-sectional analysis showed that the likelihood of consuming sweetened beverages at least 1–3 times per week increased for each hour/day watching television (OR 1.5, 95 % CI 1.2–1.9), and for being exposed to commercials (OR 1.6, 95 % CI 1.3–2.1). TV viewing time and commercial exposure contributed to the associations independently of each other.

Conclusions

The results strengthen the assumption that it is possible to influence children’s dietary habits through their TV habits.     

Stress in parents of children with cerebral palsy: what sources of stress are we talking about?

Background Parents of children with cerebral palsy (CP) often experience high levels of stress. Little is known however on the different sources of stress parents experience. The purpose of the present study was to explore the relation between aspects of parental distress in the parenting role and the child's limitations in functional skills and the child's behavioural difficulties, in parents of children with CP. Methods A cross‐sectional study among 42 parents of ambulatory children with CP (age 3–8 years; GMFCS levels I–III) was performed, using the Parenting Stress Index (PSI), the Paediatric Evaluation of Disability Inventory (PEDI) and the Vineland Adaptive Behaviour Scales (VABS). Results Regression analysis revealed that the PEDI Functional Skills and VABS Maladaptive behaviour scores explained 27% of the total variance in the PSI Parent domain total stress score. Maladaptive behaviour did significantly contribute to parental stress scores for the Parent domain subscales Attachment, Relationship with spouse, Depression, and, in particular, Sense of competence. Conclusions Parents' functioning can be affected by behavioural aspects of the child with CP, and sense of competence could be an important variable in this relation. This emphasizes the importance of the development of specific interventions that support the family as a whole.     

Eternal Children? Professionals’ Constructions of Women with an Intellectual Disability Who are Victims of Sexual Crime

In this study intersecting meanings of age, intellectual disability, gender and sexuality, used by different professionals are explored. The main questions are: How do professionals working with individuals with ID use the concept of age? What purpose does the use of age have in their talks and reflections about persons with ID? What discourses can be identified? The analyses are based on five separate individual interviews and one group interview with professionals working in the police force, habilitation centers and special schools and who have experiences of meeting and working with individuals with ID around issues relating to sexual exposure, prostitution or similar areas, and in consequence of being a victim of crime. The results reveal that individuals with ID are constructed through the participants’ comparisons between and use of both chronological and perceived age. Vulnerability is found to be a truth regime in the discourse of the participants, and that this regime supports both a protection discourse and victim discourse. In the criminal trials of non-disabled male offenders, notions of physical age are used to portray women with ID as ideal victims. Within the protection discourse, a change of behaviour among individuals with ID is promoted as a means of avoiding risk-taking behaviours. This includes strategies of fostering and education. The fostering strategy encompasses a shared understanding that as professionals they have the power to change behaviors. The education strategy encompasses the idea that persons with ID should be empowered and able to change their behavior by means of the knowledge and information provided by professionals. This study points towards power relations between groups with and without ID. It is concluded that further discussions as to how the UN declarations of Human Rights and Disability can be implemented among individuals with ID are needed.     

How are we doing with physical activity?

An estimated 60% of U.S. adults are inactive or underactive, and nearly half of America's youth (aged 12 to 21 years) are not vigorously active on a regular basis. Downstream interventions provide individual strategies that effectively increase short-term participation in physical activity by 10% to 25%. Downstream and midstream approaches tailored to individual preferences have greater success. Packaging and disseminating physical activity programs for community, worksite, and health care settings are not as far along as for other areas, although inactivity prevalence is about twice that of smoking, and both risk factors have substantial morbidity and mortality. Less is known about effectiveness of upstream approaches, which have potential for the greatest public health impact. Suggestions include continued promotion of moderate-intensity physical activity, greater dissemination of successful programs, and investigation of physical environment influences.     

Proxy assessment of quality of life in patients with prostate cancer: how accurate are partners and urologists?

OBJECTIVES: To assess the ability of partners and clinicians to make proxy judgements on behalf of patients with prostate cancer relating to selection of life priorities and quality of life (QoL). DESIGN: 47 consecutive patients with histologically proven adenocarcinoma, and their partners, were recruited. The partners were asked to assess, by proxy, the QoL of the patient by completion of a series of interview-led questionnaires assessing global QoL (SEIQoL-DW), health-related QoL (FACT-P) and overall QoL (visual analogue score [VAS]). The patients' clinicians were asked to complete the SEIQoL-DW and VAS by proxy as soon as possible after a consultation with the patient. SETTING: Patients with histologically proven adenocarcinoma, their partners and their clinicians. MAIN OUTCOME MEASURES: Proxy scores for SEIQoL-DW, FACT-P and VAS, as provided by partners and clinicians. RESULTS: 25 partners made a proxy assessment of the patients. The results showed that partners were able to select similar QoL cues to those of the patients (Spearman-Rank correlation 0.89). Comparison of the QoL scores obtained from patients and partners in proxy using the questionnaires showed no statistically significant difference (paired t-test). Urologists were poor predictors of areas of life (cues) that were important to their patients. The doctors overemphasized the importance of survival, postoperative complications, urinary symptoms, sexual ability, activities of daily living and finance, but underestimated the importance of wife, family, home and religion. Comparison of the QoL scores obtained from patients and urologists by proxy showed a significantly lower score when assessed by urologists using the SEIQoL-DW questionnaire. CONCLUSIONS: Partners are able to accurately assess, by proxy, the areas of life that are of importance to patients. Clinicians, however, who are charged with making decisions on behalf of patients, are very poor judges of their patients' life priorities and QoL. This illustrates that conventional views held by most doctors regarding the priorities patients set themselves when planning treatment should be called into question and consequently suggests that the way in which doctors and patients arrive at treatment decisions must be reviewed.     

Children's bite size and intake of an entrée are greater with large portions than with age-appropriate or self-selected portions

BACKGROUND: Whether large portion sizes affect children's eating behavior has rarely been studied. OBJECTIVES: Our objectives were 1) to determine the effects of repeated exposure to a large portion of an entrée on preschool-aged children's awareness of portion size, self-selected portion size, and food intake and 2) to evaluate associations of children's responsiveness to portion size with weight status and overeating. DESIGN: Energy intake, bite size, and comments about portion size were evaluated among 30 children at 2 series of lunches in which either an age-appropriate portion or a large portion of an entrée was served. On separate occasions, the children's self-served portions, weight, height, and tendency to overeat were assessed. RESULTS: Doubling an age-appropriate portion of an entrée increased entrée and total energy intakes at lunch by 25% and 15%, respectively. Changes were attributable to increases in the average size of the children's bites of the entrée without compensatory decreases in the intake of other foods served at the meal. These increases were seen even though observational data indicated that the children were largely unaware of changes in portion size. Greater responsiveness to portion size was associated with higher levels of overeating. The children consumed 25% less of the entrée when allowed to serve themselves than when served a large entrée portion. CONCLUSIONS: Large entrée portions may constitute an "obesigenic" environmental influence for preschool-aged children by producing excessive intake at meals. Children with satiety deficits may be most susceptible to large portions. Allowing children to select their own portion size may circumvent the effects of exposure to large portions on children's eating.