“It Is Always on My Mind”: Women's Experiences of Their Bodies When Living With Hirsutism

Many women suffer from excessive hair growth, often in combination with polycystic ovarian syndrome (PCOS). It is unclear how hirsutism influences such women's experiences of their bodies. Our aim is to describe and interpret women's experiences of their bodies when living with hirsutism. Interviews were conducted with 10 women with hirsutism. We used a qualitative latent content analysis. Four closely intertwined themes were disclosed: the body was experienced as a yoke, a freak, a disgrace, and as a prison. Hirsutism deeply affects women's experiences of their bodies in a negative way.     

Living “In-between”—Vietnamese Canadian Women's Experiences: Implications for Health Care Practice

Intercultural living—a living that dwells “in-between” spaces of cultures—how it is conceptualized and what its lived experiences might mean, can give the direction for how we ought to care for one another. Drawing from my research with Vietnamese Canadian women, I argue that many immigrant women live and practice health care in “in-between” spaces, spaces that belong neither to East nor to West. Thus, supporting immigrant women's health care practices requires the removal of social ideologies that set apart the West and the “Other.” To provide equal and quality health care, caring should occur within in-between spaces, spaces that belong to both those who provide and those who receive health care services.     

“I Didn't Know”: Pregnant Women's Oral Health Literacy Experiences and Future Intervention Preferences

ObjectiveThis study explored women's 1) experiences in accessing, understanding, appraising, and applying oral health information and services, and 2) preferences regarding oral health promotion during pregnancy.MethodsPregnant women ages 18 to 45 were recruited from an obstetrics and gynecology clinic at a large university hospital. Focus groups were conducted using the four domains of the integrated model of health literacy (access, understand, appraise, apply) and were audio-recorded and professionally transcribed. Thematic analysis was employed using Atlas.ti.ResultsParticipants (n = 17) were Hispanic (53%), married (67%), college educated (87%), employed (80%), and insured (100%). Most participants reported not accessing or receiving oral health information during pregnancy, with limited information received from less trustworthy sources (Internet; friends/family) and focusing on symptoms or myths. Participants revealed gaps in basic oral health understanding and demonstrated limited ability to evaluate or apply information, such as engaging in positive oral health behaviors, according to their needs and personal health status. Participants strongly desired that oral health promotion be integrated into prenatal care.ConclusionsParticipants described missed opportunities to improve oral health literacy and desire future health messages that facilitate patient–provider communication on oral health during prenatal care visits. Future health interventions should convey the importance and associated risks, be time efficient and patient centered, and include patient activation to prompt oral health–seeking behaviors during pregnancy.     

“You Know the Medicine,I Know My Kid”: How Parents Advocate for Their Children Living With Complex Chronic Conditions

Caring for a child with a chronic condition has received considerable attention in the pediatric health literature. Today, approximately 1 out of 5 North American children are diagnosed with a chronic condition that requires parents to become caregivers and advocates. Although advocacy is regarded as a significant aspect to parental caregiving, more research is needed to better define this oversimplified and misrepresented concept in clinical practice and research. Subsequently, we interviewed 35 parents of children diagnosed with complex chronic conditions. Within our analysis, we identified three themes that elaborate upon how parental advocacy is socially constructed through communication behaviors and partnerships with other people (e.g., medical professionals, family, school educators). We also discuss the emotional side of advocacy, and proffer suggestions to practitioners who work with parents to form collaborative care teams.     

“I Will Communicate With You,But Let Me Be In Control”: Understanding How Parents Manage Private Information About Their Chronically Ill Children

Parents have a significant role in the management of a child’s chronic condition. Parents are often the only consistent individuals managing a child’s health across his or her childhood and adolescence (e.g., present for all appointments and medical procedures). Many of the responsibilities required of parents involve communication work, where parents must strategically and actively design messages as they interact with medical professionals, other family, and friends. Using communication privacy management theory, we analyzed interviews conducted with 35 parents to understand the motivations and strategies involved in their regulation of information about their child’s chronic condition. These findings have important practical implications because parental involvement in a chronically ill child’s care has direct effects on familial adaptation and adjustment.     

“Far as I Get Is the Clothesline”: The Impact of Leisure on Women's Health and Unpaid Caregiving Experiences in Nova Scotia,Canada

This qualitative study explored the unique ways in which caregiving and leisure are conceptualized and mediated among diverse groups of female caregivers (n = 98) in the province of Nova Scotia, Canada. Data were obtained through 17 focus group discussions between March and June of 2002. Findings reveal that the contexts within which caregivers experience the health effects of caregiving create meanings, opportunities, and challenges for leisure. This study of diverse caregiving experiences fills a significant gap in the existing literature by integrating considerations of subjectivity and the ways in which caregiving influences women's perceptions and engagement in leisure pursuits. Constructivism guides the interpretive framework upon which the data were analyzed; results inform recommendations relative to policy and program audiences associated with unpaid caregiving.     

‘Nobody Can Help Me...I am Living Through it Alone’: Experiences of Caring for People Diagnosed with Mental Illness in Ethno-Cultural and Linguistic Minority Communities

Caregivers of people diagnosed with mental illness in ethno-cultural and linguistic minority communities (ECLMCs) face considerable demands and difficulties in their day-to-day caring role. Data from interviews with 20 caregivers from Polish, Croatian, Bosnian, and Chinese communities, undertaken in Perth, Western Australia, explore the roles caregivers play in the lives of their relatives and illustrate their use and non-use of support services. A diverse array of challenges confronts caregivers across the different ECLMCs. Although not an unequivocally negative experience, caring for a relative diagnosed with mental illness was found to frequently disrupt family relationships and to lead to physical and mental exhaustion as well as social isolation. The stigma associated with mental illness in ECLMCs is a significant factor dissuading people from seeking assistance from external agencies. Many mainstream services are seen as inappropriate, which appears to be a factor in their under-utilization. If mental health policies and community services are to seriously address the issue of appropriate support for caregivers from ECLMCs, it is important that they are aware of the nature of the considerable demands placed on such caregivers as they endeavor to support their dependent relatives.     

“It's Not Like a Job Now; It's Part of Me”: Exploring African Women's Experiences in the Irish Childcare Sector

A small-scale qualitative research study was recently carried out in the West of Ireland to explore the experiences of African childminders who had established new childcare services. The intention of the study was to explore the issues, concerns and challenges of this group of providers given their unique position as recently settled, ethnic minority women in Ireland. Twelve women were interviewed as part of this study, all of whom had arrived with considerable educational and employment experiences from their home countries in West Africa. The research illustrates a number of key processes and characteristics within this sub-sector of childminding. It reveals that, in terms of pathways to work, these women had struggled to find employment in their new communities such that childcare provided a viable route that the women pursued with enthusiasm and commitment. Most had developed their services in a largely unintentional way to begin with. Having made a conscious decision to set up their services, this group appeared to demonstrate a strong determination to succeed by seeking out formal support, through advice and training, in order to enhance their services and adhere to professional regulations. They also encountered the need to proactively develop strategies that would overcome perceived barriers and broaden their appeal. While the women placed much emphasis on providing a high-quality service and adopting a professional approach, the group claimed to offer broader support and encouragement to parents in practical and emotional ways. In discussing the relationship the participants had with the families, the childminders felt that they provided a range of supportive services to the families with whom they worked. In documenting the reported experience and perspectives of these childminders, this research seeks to add to our understanding of what we conclude is a valuable yet potentially marginalised sector of childcare provision.     

“It's Being Compassionate,Not Making Assumptions”: Transmasculine and Nonbinary Young Adults' Experiences of “Women's” Health Care Settings

BackgroundTransgender and nonbinary (TNB) individuals assigned female sex at birth experience discrimination, misgendering, problems with insurance, and denial of services when accessing health care. This study aimed to understand the experiences of TNB young adults in accessing “women's” health care—a form of care that is structurally gendered that few studies have investigated.MethodsIn 2015, we conducted in-depth interviews with 20 TNB young (ages 18–29) adults assigned female sex at birth. We thematically analyzed the data.ResultsParticipants described feelings of comfort and trust—and lack thereof—at every step of the health care–seeking process, including scheduling, checking in, waiting, and interactions with clinicians and other staff. Gendered language served as a constant stressor; participants—especially nonbinary participants—noted few opportunities to provide their correct pronouns and names. Participants relayed negative experiences associated with waiting rooms in “women's” health care spaces, where TNB patients are forced to disclose their identity simply through their presence or owing to actions of staff that out them. These concerns deterred some from seeking care, with most expressing discomfort or anxiety that caused them to feel unsafe. Participants described “women's” health care providers making assumptions about their anatomy, reproductive desires, sexual orientation, and sexual practices, as well as inappropriately and harmfully emphasizing their bodies and TNB identities during health care interactions. Clinician competence and humility engendered participants' feelings of safety and undergirded their interest in engaging with “women's” health care.ConclusionsA lack of patient-centered, TNB-competent care in structurally gendered health settings exacerbates health care and health inequities for TNB young adults.     

“I'm not the woman I was”: Women's perceptions of the effects of fibromyalgia on private life

In this qualitative study, we explored how gender shapes women's experiences of living with fibromyalgia and how it affects their private lives. Through thematic analysis of data from 13 in-depth interviews in Spain, we identified seven themes which reflect that these women feel remorse and frustration for not being able to continue to fulfill the gender expectation of caring for others and for the home. This research contributes to a better understanding of what suffering from fibromyalgia implies for women and provides insights into how families and providers can support women with fibromyalgia in order to achieve a beneficial lifestyle.     

Gender Based Violence: A “Thorn” in the Experiences of Sexuality of Women with Disabilities in Zimbabwe

Gender based violence is reportedly a “thorn” in the experiences of sexuality of women with disabilities in Zimbabwe. Complex intersections of disability, culture, religion and normative gender roles and power relations within heteronormative relationships facilitate the vulnerability of women with disabilities to various forms of gender based violence, thereby perpetuating inequitable, unsafe and coercive sexual practices to the detriment of the women’s health and well-being. Whilst some women with disabilities may be unable to defend themselves, others are not passive recipients of gender based violence, but they claim their agency and seek to “protect” themselves in diverse ways. Nevertheless, some participants who may be at risk of experiencing gender based violence and acquiring HIV maybe unwilling to defy or to “flee” from such challenges, alongside a traditional belief that the ability of a woman to bear hardships earns her respect and good repute, within a framework of the lower status of women in an African patriarchal context. These findings arise from a broad qualitative narrative pilot study which explored the experiences of sexuality of women with disabilities in Zimbabwe. Sixteen women with physical, mental and sensory disabilities were selected through snowball sampling techniques to participate in the study. The three sub-sessions of the biographic narrative interpretive method were used to generate data and such data was analysed through both the narrative analysis and the analysis of narratives approaches. This paper is located within a critical feminist disability studies theoretical framework.     

“Abortion—It Is My Own Body”: Women's Narratives About Influences on Their Abortion Decisions in Ghana

Globally, abortion has emerged as a critical determinant of maternal morbidity and mortality. The Ghana government amended the country's abortion law in 1985 to promote safe abortion. This article discusses the findings of a qualitative study that explored the decision-making experiences of 28 female abortion seekers aged between 15 and 30 years in Ghana. Key findings from the study are that individuals claimed autonomy in their abortion decisions; underlying the abortion decisions were pragmatic concerns such as economic difficulties, child spacing, and fear of parental reaction. In conclusion, we examine the health implications of Ghanaian women's abortion decisions.     

“Eyes Wide Shut”: Narratives of Women Living with Hepatitis C in Australia

ABSTRACT

Hepatitis C is the leading notifiable infectious disease in Australia and in the last few years, the number of new diagnoses among young women is beginning to outnumber men. For many, infection with hepatitis C virus (HCV) results in a chronic condition, which, in addition to a range of symptoms, carries with it the stigma attached to injecting drug use. Despite the growing prevalence of HCV, women's health has barely begun to address the gender specific impact of this illness on women. We report the results of a qualitative study of young women's experiences of living with HCV with a specific focus on the meaning of this condition and its impact on their lives. In 1999–2000, twenty-five in-depth interviews were conducted with women between the ages of 18 and 43 years, who were current or past injecting drug users and who had been diagnosed with HCV. One focus group discussion was held with health workers who provide treatment and care to this population. A number of key issues were identified that women believed impacted negatively on their lived experiences of HCV. Of most concern was the meaning of HCV and the social stigma attached. Stigma coupled with the lack of knowledge and awareness among health professionals and the high cost of treatment contributed to women's reluctance to seek support and care. HCV has yet to be taken up by the women's health movement as a key issue, especially for young women and we argue that this trend needs to be reversed.     

“It Was Scary,But Then It Was Kind of Exciting”: Young Women’s Experiences with Choking During Sex

Choking/strangulation during sex is prevalent among young adults, with one study finding that 58% of women college students had ever been choked during sex. However, no qualitative study has examined women’s experiences with choking/strangulation during sex outside of intimate partner violence. The purpose of our qualitative interview study was to investigate women’s experiences with choking and/or being choked during partnered sex. Through in-depth interviews with 24 undergraduate and graduate women students ages 18 to 33, we sought to understand how women communicate about choking, their learning about and initiation into choking, their feelings about being choked and choking others, as well as consent and safety practices used in relation to choking. We found that women had first learned about choking through diverse sources including pornography, erotic stories, magazines, social media, friends, and partners. While all 24 women had been choked during sex, only 13 of 24 had ever choked a partner. They described having engaged in choking with men as well as women and with committed as well as more casual partner types. Participants described consensual and non-consensual choking experiences. While many women enjoyed choking, others did it largely to please their sexual partner. Women described different methods and intensities of having been choked. Although very few had ever sought out information on safety practices or risk reduction, and only some had established safe words or safe gestures with partners, participants consistently expressed a belief that the ways in which they and their partner(s) engaged in choking were safe.

     

“He Doesn't Love Me Less. He Loves Me More”: Perceptions of Women Living With HIV/AIDS of Partner Support in Childbearing Decision-Making

Our purpose in this study was to understand the importance of male partner support in the childbearing decision-making processes of women living with HIV/AIDS (WLHA) by exploring their perceptions of support after disclosure, prepartum, and postpartum. We conducted in-depth interviews with 15 WLHA who were receiving clinical HIV care at a teaching hospital in Lagos. Results show that all male partners were consistently supportive, except the partner of the only unmarried participant. Other subthemes that emerged include the following: emotional support and reassurance; partnership and faith; and tangible support. We reveal important implications for HIV treatment and care programs.     

“I Didn't Know I Could Turn Colors”: Health Problems and Health Care Experiences of Women Strangled by an Intimate Partner

Strangulation is a unique and particularly pernicious form of intimate partner violence. To increase the relatively little that is known about strangulation survivors, focus groups and interviews were conducted as part of a practice–research engagement with a domestic violence shelter. All of the participants had been strangled and, among them, almost all were strangled multiple times. The loss of consciousness was common. Participants associated “choking” with use of body parts and “strangling” with use of objects. Although some minimized the assault, most considered strangulation to be serious and reported a variety of medical conditions following the assault. Few sought medical care. Of those who did, few disclosed the assault, or were asked about strangulation, which commonly resulted in misdirected treatment. Implications for improving detection and treatment are discussed.