The Effects of Education Alone and in Combination with Pulmonary Rehabilitation on Self-Efficacy in Patients with COPD

This study compared the effects on self-efficacy of participation by patients with chronic obstructive pulmonary disease (COPD) in a pulmonary rehabilitation program that combined education and supervised exercise training with the results demonstrated by participation in a program that provided education alone. Thirty-seven patients participated in the pulmonary rehabilitation program, and 22 patients participated in the education-only program. Self-efficacy, as it effects managing or avoiding breathing difficulty, was measured before and after the programs. Patients' self-efficacy scores significantly improved after the pulmonary rehabilitation program and remained significantly improved 6 months later. Education alone was also effective in significantly improving self-efficacy scores, but patients' scores 6 months later were not significantly better than preprogram scores. This study indicates that a rehabilitation program that combines education and exercise training is more effective in improving long-term self-efficacy in patients with COPD.     

Better Respiratory Education and Treatment Help Empower (BREATHE) study: Methodology and baseline characteristics of a randomized controlled trial testing a transitional care program to improve patient-centered care delivery among chronic obstructive pulmonary disease patients

BackgroundChronic Obstructive Pulmonary Disease (COPD) is a leading cause of hospitalizations. Interventional studies focusing on the hospital-to-home transition for COPD patients are few. In the BREATHE (Better Respiratory Education and Treatment Help Empower) study, we developed and tested a patient and family-centered transitional care program that helps prepare hospitalized COPD patients and their family caregivers to manage COPD at home.MethodsIn the study's initial phase, we co-developed the BREATHE transitional care program with COPD patients, family-caregivers, and stakeholders. The program offers tailored services to address individual patients' needs and priorities at the hospital and for 3 months post discharge. We tested the program in a single-blinded RCT with 240 COPD patients who were randomized to receive the program or ‘usual care’. Program participants were offered the opportunity to invite a family caregiver, if available, to enroll with them into the study. The primary outcomes were the combined number of COPD-related hospitalizations and Emergency Department (ED) visits per participant at 6 months post discharge, and the change in health-related quality of life over the 6 months study period. Other measures include ‘all cause’ hospitalizations and ED visits; patient activation; self-efficacy; and, self-care behaviors.DiscussionUnlike 1 month transitional care programs that focus on patients' post-acute care needs, the BREATHE program helps hospitalized COPD patients manage the post discharge period as well as prepare them for long term self-management of COPD. If proven effective, this program may offer a timely solution for hospitals in their attempts to reduce COPD rehospitalizations.     

慢性阻塞性肺疾病患者运动能力与生活质量的相关性研究

目的:探讨慢性阻塞性肺疾病(chronic obstructive pulmonary disease,COPD)患者运动能力、生活质量现状及相关性。方法:2018年9月至2019年5月对复旦大学附属中山医院154例COPD患者进行横断面调查,采用6 min行走距离(six-minute walk distance,6 MWD)评估患者运动能力,使用一般资料调查表、圣·乔治呼吸问卷(SGRQ)进行调查分析。结果:患者6 MWD为(379.65±121.05)m; SGRQ问卷得分为(42.12±17.54)分;6 MWD与SGRQ得分负相关,差异有统计学意义(r=-0.422,P0.001);患者的年龄、体质量指数(BMI)、吸烟指数、疾病严重程度和6 MWD对生活质量(SGRQ得分)有影响;6 MWD、高龄、吸烟指数和BMI是患者生活质量水平的影响因素。结论:COPD患者生活质量、运动能力处于较低水平。生活质量与运动能力、年龄、BMI等显著相关。     

慢性阻塞性肺疾病患者生活质量与自我效能相关性研究

目的:探讨慢性阻塞性肺疾病(COPD)患者生活质量与自我效能的相关性。方法:于2011年4-11月采用便利抽样的方法,选取广州市某医院病情稳定、准许出院的患者和门诊患者进行调查,分别使用圣乔治呼吸问卷和COPD自我效能量表对患者的生活质量和自我效能进行测评。结果:COPD患者生活质量的症状评分与自我效能的负面影响、极端的情绪激动、体力活动、天气/环境维度评分均具有相关性(r=0.28～0.33,P<0.05)。COPD患者生活质量的活动评分、影响评分及总分评分与患者自我效能的各维度评分均具有相关性(r=0.38～0.58,P<0.01)。结论:COPD患者的生活质量与自我效能存在关联,患者的自我效能水平越高,其生活质量也越高,提示可以从提高患者的自我效能水平着手,改善COPD患者的生活质量。     

How do patients with exacerbated chronic obstructive pulmonary disease experience care in the intensive care unit?

The aim was to gain insight into how patients with advanced chronic obstructive pulmonary disease (COPD) experience care in the acute phase. The study has a qualitative design with a phenomenological approach. The empirics consist of qualitative in‐depth interviews with ten patients admitted to the intensive care units in two Norwegian hospitals. The interviews were carried out from November 2009 to June 2011. The data have been analysed through meaning condensation, in accordance with Amadeo Giorgi's four‐step method. Kari Martinsen's phenomenological philosophy of nursing has inspired the study. An essential structure of the patients' experiences of care in the intensive care unit by acute COPD‐exacerbation may be described as: Feelings of being trapped in a life‐threatening situation in which the care system assumes control over their lives. This experience is conditioned not only by the medical treatment, but also by the entire interaction with the caregivers. The essence of the phenomenon is presented through three themes which describe the patient's lived experience: preserving the breath of life, vulnerable interactions and opportunities for better health. Acute COPD‐exacerbation is a traumatic experience and the patients become particularly vulnerable when they depend on others for breathing support. The phenomenological analysis shows that the patients experience good care during breath of life preservation when the care is performed in a way that gives patients more insight into their illness and gives new opportunities for the future.     

Methodological issues encountered in a study of hospitalized COPD patients

A study with hospitalized chronic obstructive pulmonary disease (COPD) patients determined the feasibility of providing and evaluating a tailored education program. This article describes two methodological issues encountered. Issues included recruitment and retention, and selection of outcome measures. The COPD Self-Efficacy Scale (CSES) and Dartmouth Functional Health Status (FHS) charts provided data on evaluation and outcome measurements. Of 67 patients, 55% met eligibility criteria, 73% (n = 27) agreed to participate, and 74% (n = 20) completed the study. Results revealed acceptance and satisfaction with the educational intervention. The median CSES score, significantly (z = 3.51,p = .004) improved from 53% to 82%. In FHS, a 20% improvement occurred in all except social support. Methodological concerns with the CSES reinforced the need for further investigation of the reliability and validity for hospitalized COPD patients. Researchers' observations may assist in planning educational interventions and program evaluations with hospitalized COPD patients.     

Respiratory pattern of diaphragmatic breathing and pilates breathing in COPD subjects

BACKGROUND:

Diaphragmatic breathing (DB) is widely used in pulmonary rehabilitation (PR) of patients with chronic obstructive pulmonary disease (COPD), however it has been little studied in the scientific literature. The Pilates breathing (PB) method has also been used in the rehabilitation area and has been little studied in the scientific literature and in COPD.

OBJECTIVES:

To compare ventilatory parameters during DB and PB in COPD patients and healthy adults.

METHOD:

Fifteen COPD patients (COPD group) and fifteen healthy patients (healthy group) performed three types of respiration: natural breathing (NB), DB, and PB, with the respiratory pattern being analyzed by respiratory inductive plethysmography. The parameters of time, volume, and thoracoabdominal coordination were evaluated. After the Shapiro-Wilk normality test, ANOVA was applied followed by Tukey''s test (intragroup analysis) and Student''s t-test (intergroup analysis; p<0.05).

RESULTS:

DB promoted increase in respiratory volumes, times, and SpO₂ as well as decrease in respiratory rate in both groups. PB increased respiratory volumes in healthy group, with no additional benefits of respiratory pattern in the COPD group. With respect to thoracoabdominal coordination, both groups presented higher asynchrony during DB, with a greater increase in the healthy group.

CONCLUSIONS:

DB showed positive effects such as increase in lung volumes, respiratory motion, and SpO₂ and reduction in respiratory rate. Although there were no changes in volume and time measurements during PB in COPD, this breathing pattern increased volumes in the healthy subjects and increased oxygenation in both groups. In this context, the acute benefits of DB are emphasized as a supporting treatment in respiratory rehabilitation programs.     

Metatarsalgia

Abstract

Recognition of chronic obstructive pulmonary disease (COPD) is often missed or delayed in primary care. Once recognized, COPD is often undertreated or episodically treated, focusing on acute exacerbations without establishing maintenance treatment to control ongoing disease. Diagnostic and therapeutic pessimism result in missed opportunities to reduce exacerbations, maintain physical functioning, and reduce emergent health care requirements. Proactive diagnosis and evidence-based management can alleviate the impact of COPD on patients' lives. Smoking cessation has been proven to slow the rate of lung function decline. Maintenance pharmacotherapy and immunizations reduce exacerbations. Pulmonary rehabilitation improves respiratory symptoms and physical functioning and reduces rehospitalizations after exacerbations. Self-management education improves health-related quality of life and reduces inpatient and emergency care usage. Maintenance treatment with long-acting inhaled bronchodilators is appropriate beginning in moderate COPD to maintain airway patency and reduce exacerbations. Tiotropium is US Food and Drug Administration (FDA) approved to treat bronchospasm and reduce exacerbations in patients with COPD; salmeterol/fluticasone is FDA approved to treat airflow obstruction in COPD and reduce exacerbations in patients with a history of exacerbations. Other maintenance long-acting bronchodilators—salmeterol, formoterol, and budesonide/formoterol—are FDA approved to treat airway obstruction in COPD but lack an approved indication against exacerbations. FDA warnings on the use of long-acting beta-adrenergic agents (LABAs) in asthma specifically exempt COPD and do not apply to LABA/inhaled corticosteroid combinations used in COPD. The actual effectiveness achieved in practice with any COPD therapies depends on patients' inhaler technique, adherence, and persistence. Medication usage rates and inhaler proficiency may be improved by concordance, in which the health care provider and patient collaborate to make treatment plans sustainable in the patient's daily life. Practice redesign for whole-patient primary care provides additional tools for comprehensive COPD management. Innovations such as group visits and the patient-centered medical home provide newer ways to interact with COPD patients and their families. Patient-focused and evidence-based options enable primary care practices to manage COPD longitudinally and improve patient outcomes through the course of the disease.     

The Norwegian version of the chronic obstructive pulmonary disease self‐efficacy scale (CSES): a validation and reliability study

Scand J Caring Sci; 2010; 24; 600–609
The Norwegian version of the chronic obstructive pulmonary disease self‐efficacy scale (CSES): a validation and reliability study The aim of this study was to evaluate the feasibility, internal consistency and face and construct validity of the Norwegian version of the Chronic Obstructive Pulmonary Disease Self‐Efficacy Scale (CSES). The CSES was translated into Norwegian according to standard procedures for forward and backward translation, and administered to 100 patients with chronic obstructive pulmonary disease (COPD) (51% men, mean age 66.1 years, range 42–82) prior to their participation in an outpatient pulmonary rehabilitation programme. The CSES‐N (translated version) consists of 34 items comprising five subscales describing negative affect, intense emotional arousal, physical exertion, weather/environment and behavioural risk factors. Each scale ranges from 1 to 5, with higher scores indicating better self‐efficacy. For validation purposes, we measured lung function (FEV₁, FEV₁% predicted) and exercise capacity (ISWT), and administered the St. George’s Respiratory Questionnaire (SGRQ) and Hospital Anxiety and Depression Scale (HADS). A pilot study confirmed that the CSES‐N was clear, understandable and easy to self‐administer. Cronbach’s alpha was 0.98 for the total score (0.80–0.96 for subscales). Results showed small to medium negative correlations between all CSES‐N scales and anxiety, depression (HADS), physical activity, psychosocial impact of disease and total health status (SGRQ) (?0.20 to ?0.49). Small or negligible negative correlations between different CSES‐N scales and respiratory symptoms (SGRQ) (?0.03 to ?0.23) were found. Any correlations among exercise capacity, lung function and different socio‐demographic variables (age, gender and education) and CSES‐N were also small or negligible (0.00 to 0.23). This study shows acceptable feasibility, internal consistency and face and construct validity for the CSES‐N in a sample of Norwegian COPD patients.     

Trapped in my lungs and fighting a losing battle. A phenomenological study of patients living with chronic obstructive and pulmonary disease

Chronic obstructive and pulmonary disease (COPD) has detrimental effects on individuals with the disease. COPD causes breathlessness, morbidity and associated psychosocial distress. This study was guided by the phenomenological question what is it like to have COPD and situated in Van Manen's phenomenology of practice. Experiential material was gathered through phenomenological interviews. Four themes emerged from the lived experiences of patients living with COPD: breath as a possibility; being vigilant; fighting a losing battle; and feeling isolated from others. For patients with COPD, breathing becomes ever-present and shifts from the invisible background of daily living to the central activity around which everyday life is organised. COPD patients always monitor their own breath and scrutinise the environment on possible dangers that can affect their breathing. Whenever moving or being involved in an activity, a part of their mind is preoccupied with the breathing. Although COPD patients realise that no amount of good behaviour will matter and that the decline of their lungs is inevitable, they make every effort to take good care of their body. They anticipate and avoid triggers of breathlessness isolating them from social interactions and activities. The appearance of the body as a source of social embarrassment also has an isolating effect. This study shows that breathlessness is a constant horizon that frames the experience of COPD patients. It is a limiting factor and determines their entire life. A more profound understanding of these experiences in healthcare professionals will contribute to person-centred care for COPD patients.     

呼吸困难鉴别指数在慢性阻塞性肺病的应用

目的:探讨呼吸困难鉴别指数(dyspnea differentiation index,DDI)在慢性阻塞性肺病(chronic obstructive pulmonary disease,COPD)病情评估中的应用。方法:测定62例COPD患者(吸烟者32例、非吸烟者30例)的PaO2和PEF值,根据Rajesh K. Ailani等创立的公式计算呼吸困难鉴别指数DDI,用治疗前后的DDI与二组(吸烟组、非吸烟组)气急患者改善情况分别进行对比,观察其相关性。结果:DDI值与吸烟组COPD患者的临床严重度分级标准呈明显相关性,与非吸烟组COPD患者的病情改善相关不确定。结论:用DDI判别吸烟组COPD病情是一种敏感、简便可行的方法,值得临床上应用。     

The Effectiveness of Nurse‐Led,Home‐Based Pulmonary Rehabilitation in Patients with COPD in Turkey

The goal of this study was to determine the effectiveness of nurse‐led, home‐based pulmonary rehabilitation in patients with stage 3 or 4 chronic obstructive pulmonary disease (COPD), according to the Global Initiative for COPD (GOLD) staging system. The study consisted of 32 patients—a nurse‐led, home‐based pulmonary rehabilitation group (16) and a control group (16). In the rehabilitation program, patients received education about their diseases and performed breathing exercises and lower‐ and upper‐extremity aerobic exercises at their homes during the 3‐month period of the study. There was meaningful improvement in the rehabilitation group in terms of pulmonary function tests (FEV₁% predicted value), artery blood gases (PaCO₂), quality of life, dyspnea, and functional capacity. On the other hand, no meaningful change was observed in the control group. The study showed that the nurse‐led, home‐based pulmonary rehabilitation program had positive effects on the patients with COPD.     

Use of self-efficacy and dyspnea perceptions to predict functional performance in people with COPD.

This correlational and comparative study explored whether self-reports of self-efficacy and dyspnea perceptions predict the perceived level of functional performance in adults who have chronic obstructive pulmonary disease (COPD). The convenience sample included 97 Caucasian men (52) and women (45). Participants had to have a forced expiratory volume in 1 second (FEV1) of less than 70% predicted, and a FEV1/forced vital capacity (FVC) of less than 70%. Participants were recruited from pulmonary function laboratories and from better breather support groups in a Midwestern state. Three standardized, self-report instruments, COPD Self-Efficacy Scale (CSES), the Pulmonary Functional Status and Dyspnea Questionnaire (PFSDQ), and Functional Performance Inventory (FPI) were used to measure the participants' self-report of their perceptions of self-efficacy, dyspnea, and functional performance. Dyspnea predicted 38.1% of the variance in functional performance, with self-efficacy contributing an additional 6.5% to the variance in the total sample. Self-efficacy predicted 36.5% of the variance in functional performance in men, with dyspnea contributing an additional 7.2% to the variance. However, in women, only dyspnea was a significant predictor of functional performance, at 48.5% when both dyspnea and self-efficacy were entered as independent variables. To improve patients' perceptions of functional performance, nurses can use methods such as breathing techniques and upper- and lower-body exercises that increase optimal management of dyspnea. Nurses may increase the self-efficacy of managing dyspnea by helping patients master breathing techniques and exercise through coaching and providing vicarious experiences through patient support groups or pulmonary rehabilitation programs.     

Danish version of 'The COPD self-efficacy scale': translation and psychometric properties

The aim of the study was to translate 'The COPD self-efficacy scale' (CSES) into Danish and to evaluate the psychometric properties of the Danish version (CSES-DK). CSES enables assessment of self-efficacy in individuals with chronic obstructive pulmonary disease (COPD). The scale consists of 34 items, describing situations which may cause dyspnoea in patients with COPD. The CSES was translated into Danish using a standard forward-backward translation procedure. To estimate the reliability, measurements of internal consistency and repeatability were applied. The validity of the Danish version was evaluated by examining the associations between the CSES-DK score and socio-demographic variables (age, gender, education, disease severity and self-rated health). Factor analysis was conducted to compare the internal structure of the Danish version and the American source version. The study included 151 patients with COPD, recruited from three outpatient clinics. Estimates of reliability were in accordance with the original version of CSES (Cronbach's α = 0.97, test-retest r = 0.82, p < 0.001). Significant correlations were obtained between the CSES-DK total score and vocational training and education (r = 0.27, p = 0.001), disease severity (r = -0.27, p = 0.001) and self-rated health (r = -0.41, p < 0.001), indicating construct validity. Five factors were extracted from both versions of CSES. However, in the CSES-DK, only one factor concerns emotions, whereas two factors describing emotions were obtained for the original scale. Furthermore, important discrepancies exist with respect to the direction of the scoring of CSES. In some studies, a high score indicates high self-efficacy, whereas it indicates low self-efficacy in other studies, which complicates the comparison of studies. The Danish version of CSES showed acceptable measurements of reliability and validity. Potential limitations of the scale were identified, and discrepancies exist between the factor structure of the original and Danish version. Consequently, more studies of the factor structure should be conducted on both the original CSES and the translated versions of the instrument.     

Breathing efficiency during inspiratory threshold loading in patients with chronic obstructive pulmonary disease

Patients with chronic obstructive pulmonary disease (COPD) demonstrate an increased oxygen cost of breathing. It is as yet unclear whether this is related to a decreased breathing efficiency. The aim of the present study was to compare breathing efficiency in 16 patients with COPD (11 men, five women) and 16 healthy elderly subjects (seven men, nine women), and to investigate a possible relationship between breathing efficiency and resting energy expenditure (REE). REE was measured using a ventilated hood system. Breathing efficiency was assessed by measuring oxygen consumption (V ^′O ₂), mean inspiratory mouth pressure (MIP) and flow during breathing at rest and subsequently during breathing against an inspiratory threshold (40% of maximal inspiratory pressure). During loaded breathing there was a significant increase in V ^′O ₂, MIP, and external work of breathing compared with unloaded breathing in both groups. As intended, ventilation did not increase significantly during the breathing efficiency test in the patients with COPD. The breathing efficiency (median, range) of the patients with COPD was similar (3·7%, 1·4–8·7%) to that of the healthy elderly subjects (3·2%, 1·7–8·3%). Breathing efficiency was not correlated with REE in either group. In the present study, in which dynamic hyperinflation was probably prevented, no difference in breathing efficiency was found between healthy elderly subjects and COPD patients when breathing against an external inspiratory threshold. Furthermore, breathing efficiency was not related to REE in both groups.     

Improving self‐care efficacy and quality of life with a self‐management program among patients with chronic obstructive pulmonary disease: A quasi‐experimental study

Self‐management helps patients understand their illnesses and learn about disease‐related skills so they can better manage their situation. However, published studies on the effectiveness of self‐management for chronic obstructive pulmonary disease (COPD) are heterogeneous. Quasi‐experimental design was used to investigate the effectiveness of a self‐management program in self‐care efficacy and quality of life in patients with COPD. Sixty participants who had experienced COPD were assigned to control group (usual care) or experimental group (self‐care program) (1:1 ratio) according to a purposeful sampling at a Medical Center in Taiwan. The Medical Research Council dyspnea scale, the COPD Self‐Efficacy Scale, the Clinical COPD Questionnaire were used to analyze data. The Medical Research Council dyspnea scale was more significant improvement in the 2 months after discharge in the experimental group than in the control group. The COPD Self‐Efficacy Scale and Clinical COPD Questionnaire scores in the experimental group within 3 months after discharge were significantly improved compared with the control group. These findings demonstrate the application and initial effect of this self‐management program.     

Pulmonary Rehabilitation,Psychosocial Adjustment,and Use of Healthcare Services

Chronic obstructive pulmonary disease (COPD) is the second most significant illness in those who are in their middle-to-late adult years. Pulmonary rehabilitation is one means of working with individuals with COPD to improve their quality of life. Nurses are often the facilitators and coordinators of pulmonary rehabilitation. Evaluation of the effects of pulmonary rehabilitation is an essential aspect of providing quality care. The purpose of this study was to evaluate the relationship of pulmonary rehabilitation to individuals' use of healthcare services and to their psychosocial adjustment to COPD. A convenience sample was obtained from an outpatient pulmonary rehabilitation program associated with a rural regional medical center in the southwestern United States. The sample consisted of 13 individuals who had no formal pulmonary rehabilitation and 17 individuals who had completed a formal pulmonary rehabilitation program. Psychosocial adjustment was measured by the Psychosocial Adjustment to Medical Illness Scale-Self Reporting (PAIS-SR). No significant statistical difference was found between the two groups in their PAIS-SR scores or use of healthcare services, as measured by the number of days spent in the hospital during the previous year.     

"Ineffective breathing pattern" care for COPD patients

Chronic obstructive pulmonary disease (COPD) is a long-term, chronic respiratory disease from which patients never fully recover. COPD patients usually face abnormal aeration caused by the disease. Patients that are unable to breathe and aspirate adequately and maintain lung appropriate expansion and contraction are considered to have ineffective breathing patterns. This causes physical, psychological and behavioral changes in COPD patients and impacts their emotional condition, daily activities and quality of life. Nurses who care for COPD patients with ineffective breathing patters can improve breathing muscle functions, improve respiration and keep the airway clean. In this paper, the author reviews and integrates relevant findings on this subject from the empirical literature in order to assist clinical nurses responsible for the care of COPD patients.     

6min步行联合呼吸训练法在慢性阻塞性肺疾病患者康复护理中的应用

目的:评价6 min步行联合呼吸训练在慢性阻塞性肺疾病(COPD)患者康复护理中的应用效果。方法:将56例COPD患者随机分为治疗组和对照组,每组各28例。在采用同样药物治疗方案的同时,对治疗组进行6 min步行联合呼吸训练,并评价两组训练前后呼吸困难改善情况和6 min最大步行距离。结果:治疗组在经过6周的训练后呼吸困难改善情况优于对照组,6 min步行距离增加(P<0.05)。结论:6 min步行联合呼吸训练对COPD患者是安全、可行、简易有效的康复训练方法。