斜视患儿父母心理体验的质性研究

目的探讨斜视患儿父母的心理感受。方法采用质性研究中的现象学研究方法,对20例斜视患儿父母进行半结构式访谈,并用Colaizzi现象学研究法对资料进行分析。结果斜视患儿照顾者的照顾感受可归纳为4个主题:负性情绪体验、亲子关系障碍、社会交往障碍、支持系统缺乏。结论依据斜视患儿父母的真实体验及内心感受,医护人员应主动关注患儿父母的心理活动,给予父母必要的知识指导和心理护理,从而减轻父母的心理压力,提高其生存质量,促进患儿康复。     

儿童及青少年脊柱肿瘤患儿父母负性情绪的质性研究

目的了解儿童及青少年脊柱肿瘤患儿父母的负性情绪和压力。方法采用目的抽样法,选取2015年7-12月第二军医大学附属长征医院就诊的17名脊柱肿瘤患儿父母为访谈对象,运用半结构式访谈,并采用Colaizzi的现象学资料7步分析法对访谈资料进行整理分析。结果分析出5大主题,即情绪反应复杂、承受压力大、担心方面多、影响范围广、照顾需求多样化。结论脊柱肿瘤患儿父母有焦虑、紧张等负性情绪,承受一定的压力。护理人员应关注患儿父母的心理问题,提供疾病相关照护知识培训,以提高其心理承受能力,使其能给患儿带来更好的照护与支持。同时,护士也要掌握心理护理技巧,为患儿父母提供个性化的心理护理,而构建医患交流网络平台可能是今后医务人员提供心理辅导和感情支持的有效途径。     

川崎病患儿父母照护体验的质性研究

[目的]深入了解川崎病患儿父母照护患儿过程中的体验。[方法]运用质性现象学研究方法,对20例川崎病患儿父母进行深度的半结构访谈,并采用Colaizzi的现象学分析法进行分析。[结果]通过对访谈资料进行分析,得出负性情绪、知识缺乏、疾病相关知识重复提供、经济负担重4个主题。[结论]深入了解川崎病患儿父母的真实照顾体验,有利于护理人员对其提供专业照护、知识指导及心理疏导,以促进其身心健康和患儿康复,从而更好地实现优质护理。     

重度烧伤患儿不同病期父母照护体验的质性研究

目的深入了解重度烧伤患儿父母在患儿烧伤不同病期的照护体验,以期为提供适合患儿父母需求的护理服务提供依据。方法 2014年7月至2015年1月,采用目的抽样法,选取解放军第181医院烧伤科收治的16名重度以上烧伤患儿父母作为访谈对象,采用质性研究中的现象学研究法,对16名重度烧伤患儿父母进行面对面、半结构式的深入访谈,并以Colaizzi现象学研究法进行资料分析。结果提炼出关于重度烧伤患儿父母在患儿烧伤不同病期的照护体验的主要主题共6个,即承受较重的心理负担、生活重心转移、承受多重压力、信息支持不足、被患儿的护理问题困扰及期待心理。结论重度烧伤患儿父母在患儿烧伤不同病期的照护体验各有不同且动态变化,医护人员应及时为其提供情感支持,满足患儿父母的信息和技能需求;同时,呼吁建立完善的社会保障体系,普及公众烧伤预防和急救知识,为患儿及其家人提供一定的经济、社会及专业支持。     

先天性胆道闭锁患儿母亲自我感受的质性研究

目的探讨先天性胆道闭锁患儿母亲的自我感受,以期为护理人员更符合满足患儿母亲身心需求的护理措施提供临床依据。方法 2015年6月,采用目的抽样法选择在解放军第302医院肝纤维化诊疗中心治疗的先天性胆道闭锁患儿的母亲10名为研究对象。采用质性研究中的现象学研究方法对其进行半结构式访谈,并采用Colaizzi 7步分析法对访谈资料进行分析、整理、提炼主题。结果患儿母亲的自我感受可归纳为以下4个主题:心理压力过大,经济负担过重,社会支持薄弱,疾病知识欠缺。结论护士应主动了解患儿母亲的真实感受,帮助其获得更多的理解和支持,并有针对性的提供相关的护理。     

先天性垂体发育不良患儿父母疾病负担与护理服务需求的质性研究

目的：了解先天性垂体发育不良患儿父母疾病相关的负担体验及护理服务需求,以期为后续制订相应的护理干预方案提供依据。方法：2019年6月1日～2019年8月30日,采用目的抽样法抽取上海市某医院内分泌科就诊的10名先天性垂体发育不良患儿父母为研究对象,采用现场象学研究方法对其进行半结构式访谈,现场录音,根据Colaizzi 7步分析法对访谈资料进行分析,提炼主题。结果：本研究共提取3个主题,即患儿父母心理负担重,表现为无处诉说的压力,对患儿未来的担忧,对患儿的愧疚及对治疗信心不足;消极的应对方式,表现为隐瞒和逃避及治疗依从性不佳;多样化的需求,具体为心理支持、就医及疾病知识方面的需求。结论：先天性垂体发育不良患儿父母心理负担重,负性情绪复杂,应对方式消极,医护人员应及时给予有效的心理干预、适当的疾病知识指导,帮助其正确认识疾病,树立治疗信心,缓解心理压力,减轻其疾病相关照护负担体验,提高治疗依从性与生活质量。     

维吾尔族脑性瘫痪母亲照顾体验的质性研究

[目的]探讨维吾尔族脑性瘫痪患儿母亲的照顾体验。[方法]采用半结构式访谈,访谈维吾尔族脑瘫患儿母亲12名,采用Colaizzi现象学研究法分析资料。[结果]维吾尔族脑瘫患儿母亲的照顾感受可归纳为4个主题:心理负担过重、承受照顾负荷、家庭照护知识缺乏、社会支持系统薄弱。[结论]了解维吾尔族脑瘫患儿母亲照顾脑瘫患儿的真实体验及内心感受,可协助护理人员提供个性化护理。对其提供专业的居家照护知识和康复指导及心理疏导,以减轻照顾母亲心理负担,提高其母亲的生活质量,促进患儿康复。     

哮喘患儿父母照顾体验的现象学研究

目的深入了解哮喘患儿父母的照顾体验,为护理人员制订居家护理支持方案提供依据。方法采用质性研究中的现象学研究方法,对14名哮喘患儿父母进行半结构式访谈,以Colaizzi7步分析法分析资料。结果哮喘患儿父母照顾负担可归纳为5个主题:透支时间和精力、经济负担较重、照护知识缺乏、负性情绪及益处发现。结论临床护理工作者通过了解哮喘患儿父母的照顾体验,了解其身心反应。可在哮喘患儿入院时构建个性化的延续护理方案,合理安排其出院后日常生活;培训父母各项专业操作,训练其心理调适技巧,而且可通过挖掘其自身资源促进父母体验积极心理变化,以实现良好心理适应,促进患儿康复,提高其生活质量。     

颅脑外伤患儿主要照顾者早期心理状况的质性研究

[目的]了解颅脑外伤患儿主要照顾者的早期心理感受,为护士提供有效护理干预提供依据。[方法]采用质性研究方法对10名颅脑外伤患儿主要照顾者进行半结构式访谈,并用LoBiondo-Wood分析法进行资料分析。[结果]通过阅读、分析,得出4个主题,即心理压力过大、承受照顾负荷、医疗护理服务的高需求、对未来的不确定感。[结论]作为主要照顾者,受访者在访谈中表达了强烈的情感和迫切的照顾需求。护士应及早了解患儿主要照顾者心理状态并进行疏导,减轻其心理负担,同时重视对照护需求的评估,加强医护沟通合作及知识宣教,鼓励照顾者参与医疗活动,帮助其获得更多外部支持,促进患儿早日康复。     

血液透析合并退缩人综合征患者心理感受的质性研究

目的 探讨和了解血液透析合并退缩人综合征(shrinking man syndrome,SMS)患者的真实心理感受,以引导护士为患者提供更为有效的护理干预措施.方法 采用现象学研究方法探讨5名血液透析合并退缩人综合征患者的心理感受,以半结构式的深入访谈法取得访谈资料,对访谈资料进行缩减、分类、理解、诠释和分析,提炼主题,同时采用治疗性持续沟通技巧,加强与患者及家属的交流.结果 血液透析合并退缩人综合征患者的心理感受主要有:患者对家属的愧疚心理,出现社交退缩现象,形象改变导致自卑易怒心理,渴望家人陪伴及精神支持,对治疗效果信心不足.结论 护士应了解血液透析合并退缩人综合征患者的心理状态,加强有针对性的心理支持和心理护理,以提高患者的生活质量.     

喉气道疾病患儿父母创伤后成长的影响因素

目的探讨喉气道疾病患儿父母创伤后成长的影响因素。方法采用便利抽样法,选择2015年1-11月上海某三级甲等医院耳鼻喉头颈外科收治的96名喉气道疾病患儿父母为研究对象。采用自行编制的一般资料调查表、自我表露、简体中文版事件相关反刍性沉思问卷、简体中文版创伤后成长评定量表、领悟社会支持量表等,调查了喉气道疾病患儿父母的创伤后成长、自我表露、反刍性沉思及社会支持得分情况,并分析其主要影响因素。结果本组患儿父母创伤后成长得分为(43.09±19.399),多元回归分析结果显示,表露经历、目的性反刍性沉思是父母创伤后成长的正向预测因素,可解释其40.1%的总变异(F=32.858,P0.001)。结论本组患儿父母创伤后成长水平相对较低,父母的表露经历及目的性反刍性沉思是其主要影响因素,提示曾经与他人谈论内心感受、且已开始建构创伤事件(孩子患病经历)意义的目的性认知加工的父母,其创伤后成长水平越高。医护人员可为父母提供一个较安全放松的环境,鼓励或引导患儿父母总结应对经验,思考对人生的意义等积极认知加工,进而提升其创伤后成长水平,最终实现良好心理适应。     

前列腺癌患者子女照护体验的质性研究

目的了解前列腺癌患者子女在照护患者期间的真实感受,为护士对患者子女进行心理支持提供依据。方法采用目的抽样法选取2009年3月至2012年2月在丽水市中心医院接受手术治疗的前列腺癌患者子女12人,采用质性研究中的深度访谈法收集资料,并用现象学分析法进行资料分析。结果前列腺癌患者子女照护体验主要有5个主题:承受较重的心理负荷,承受繁重的照顾任务,经济负担过重,工作压力过大,被患者的护理问题所困扰。结论在前列腺癌患者的治疗过程中,应积极帮助与指导患者子女,教授其必要的知识技能并为其提供人文关怀和情感支持,为其更好地照护患者提供必要帮助,以提高前列腺癌患者的治疗效果及生活质量。     

Parental reports of changes and challenges that result from parenting a child with cancer

Cancer in a child leads to a more stressful family life, including problems in adjusting to the situation. The aim of this study was to identify the parents' experience of problems related to their child's/adolescent's cancer and the effect of those problems on the parents' life situation. Swedish parents of 15 children and adolescents with varying diagnoses and treatments were interviewed using qualitative methods. The interview data were analyzed by two researchers using a constant comparative method. The results included eight categories of problems influencing the parents' life situation: watching our child suffer; being governed by our child's disease; behaving differently as a family member; experiencing strong feelings and reactions; trying to cope; dealing with the reactions of others; finding support from others; and evaluating the quality of care. Seven of these categories validate previously reported parental concerns, but one, evaluating the quality of care, has not been previously reported. Study findings can be used to help sensitize health care personnel to the problems experienced by parents of children and adolescents with cancer and the capacity parents have to deal with the problems.     

Parents of adult children with long-term mental disorder: Their experiences of the mental health professionals' approach and feelings of alienation – A cross sectional study

The aim was to describe how parents of adult children suffering from long-term mental disorder experience the mental health professionals' approach and any feelings of alienation regarding the provision of care. A further aim was to investigate any differences according to the parents' gender or the child's age. 93 mothers and 37 fathers participated. A majority experienced the mental health professionals' approach toward them as being negative and they felt alienated from the professional care. Regardless of the age of the children, parents have a considerable need for a positive approach from the professionals that can enable them to choose how they should act and what they should do, in order to help and support their adult child.     

Examining the Needs of Bereaved Parents in the Pediatric Intensive Care Unit: A Qualitative Study

The pediatric intensive care unit (PICU) is a high-tech setting aimed at restoring health to critically ill children. When childhood death occurs in the PICU, it constitutes a special context for parent bereavement. The purpose of this interdisciplinary qualitative research was to gain a deeper understanding of parents' needs around the time of their child's death in the PICU. Through interviews and focus groups with bereaved parents and hospital chaplains, categories of parents' needs emerged. Deeper understanding of parents' needs will allow health professionals to better support parents during bereavement as well as to provide more customized care.     

Raising an Autistic Child: Perspectives From Turkish Mothers

PROBLEM: Autism is an illness with severe deficits in reciprocal social interactions, imagination, communication, and restricted or unusual behavioral repertories that affect all areas of a child's life such as daily living activities, home/school life, and relationships with family members and others. Yet, there is much to be learned about the impact of this disorder on parents' experiences, and ways in which their lives are altered and ways that they can be assisted to better manage the home environment. METHODS: The purpose of this study was to explore and categorize the experiences of mothers having an autistic child using a phenomenological design in the qualitative tradition. Semistructured interviews were conducted with 43 mothers regarding their experiences with their autistic children. Data were analyzed with deductive content analysis based on coding, and were grouped into categories based on common themes. The distributions of common responses in categories were presented as percentages. FINDINGS: Based on this qualitative study, mothers expressed feelings of burden and stress because of their child's behaviors associated with autism, as well as their own role and future expectations, and the complexity of care needed by their children at home. CONCLUSIONS: This study provided new knowledge about the difficulties and experiences of mothers of autistic children in Turkey. The results underscored the needs of mothers who require support from family members, healthcare organizations, and society. The findings support the need for training programs for mothers and parents conducted by nurses and other healthcare professionals who have special knowledge and skill to provide education and modeling of therapeutic interventions.     

Do Thai parents discuss sex and AIDS with young adolescents? A qualitative study

This qualitative study explored parents' and young adolescents' perceptions of communication related to sex and HIV/AIDS. Focus group discussions and group discussion were conducted among 67 adolescents and 30 parents. For the adolescents, group discussion using participatory activities was conducted, followed by five focus group discussions. Group discussions using participatory activities were conducted among parents. Thematic analysis indicated that the adolescents received inadequate information about sex and AIDS from their parents, whom they feared as providing negative judgment, and this represented a key barrier to such discussions. Their parents, on the other hand, reported that they believed their children were still too young to learn about and engage in sexual activities. The parents perceived barriers to communication included a lack of confidence and feelings of embarrassment. Nevertheless, they also recognized their important role in their child's sexual education. Collectively, these results draw attention to the need for a culturally appropriate program to strengthen parent–child communication skills for the topics of sex and HIV/AIDS.     

The life experiences of Korean children and adolescents with complex congenital heart disease: A qualitative study

This exploratory study analyzed the life experiences of Korean children and adolescents with complex congenital heart disease in a sociocultural context and undertook in‐depth interviews. Participants were 10 patients who ranged in age from 14 to 22 years, who were recruited at a hospital in Seoul, Korea. Our content analysis showed that the participants were initially unaware of the true nature of their conditions. After entering school, they realized that they were different from peers because of their physical limitations and their parents' overprotectiveness. Generally, health providers tend to convey information about congenital heart disease to parents, and not the patients. Therefore, most of our participants lacked knowledge about their disease and its management, and tended to have feelings of isolation and guilt. Healthcare providers of children and adolescents should provide disease and management information not only to parents, but also to patients, and should set aside specific times for communication with patients with complex congenital heart disease.