成年癌症患者生育力保存决策体验质性研究的Meta整合

目的 系统整合癌症患者生育力保存决策体验的质性研究,为辅助癌症患者做决策及改进现有决策支持体系提供循证依据。方法 计算机检索PubMed、EMbase、The Cochrane Library、CINAHL、Web of Science、PsycINFO、Scopus、中国知网、万方数据库、维普数据库关于癌症患者生育力保存决策的质性研究,检索时限为建库至2022年8月。采用JBI循证卫生保健中心质性研究质量评价标准对文献进行质量评价,采用Meta整合中汇集性整合方法对结果进行整合。结果 共纳入18篇文献,提炼出67个研究结果,将相似结果归纳成7个新的类别,并综合成3个整合结果：对生育力保存风险-收益的艰难权衡,紧迫决策下复杂的心理变化过程,决策过程的干扰。结论 医护人员及相关卫生机构应重视癌症患者生育力保存决策的心理体验和信息需求,优化决策程序、开发决策辅助方案,促进患者尽快完成决策。     

癌症患者抚养未成年子女体验质性研究的Meta整合

目的 探讨癌症患者抚养未成年子女的感受,为临床改善患者心理体验提供参考。 方法 检索国内外数据库中有关癌症患者抚养未成年子女真实体验的质性研究文献,检索时限为建库至2022年10月,采用Meta整合方法对研究结果进行整合归纳。 结果 共纳入12项研究,提炼52个结果,归纳后形成13个类别,整合成4个结果：癌症患者抚养未成年子女情感体验复杂、癌症患者育儿的担忧和挑战、癌症患者适应双重角色并有所收获、癌症患者抚养未成年子女的过程中有多方面的养育需求。 结论 患癌父母育儿体验复杂,心理压力较大,渴望得到帮助。医护人员应重视该群体的特殊需求,并制定针对性护理支持,减轻患者心理压力和负担。     

女性终末期肾病患者疾病体验质性研究的Meta整合

目的 系统整合女性终末期肾病患者疾病体验，为医护人员优化过渡期护理，改善患者生活质量提供参考。 方法 计算机检索PsycINFO、PubMed、Embase、CINAHL和中国知网、中国生物医学文献数据库、万方数据库，收集关于女性终末期肾病患者疾病体验的质性研究，检索时限为建库至2022年12月。运用JBI质性研究质量评价标准评价纳入文献的质量，采用汇集性整合方法对结果进行整合。 结果 共纳入8篇文献，提炼出28个完好明确的研究结果，将相似结果归纳为8个新的类别，并综合成3个整合结果：过渡期疾病体验、女性角色功能受损、妊娠风险决策。 结论 医护人员应重视女性终末期肾病患者疾病体验，优化过渡期护理，提升患者角色适应水平，改善育龄期患者妊娠决策辅助，最终提升患者长期生活质量。     

国内肾移植术后患者心理体验的质性Meta整合

目的系统评价肾移植患者术后心理体验。方法计算机检索数据库中国知网、万方数据库、维普数据库、中国生物医学文献数据库,搜索关于肾移植患者术后真实体验的质性研究,检索时限从建库至2018年5月。进行文献质量评价后,采用Meta整合方法对研究结果进行归纳、诠释。结果共纳入8篇文献,提炼出52个结果、6个类别和3个整合结果,分别为肾移植术后患者消极心理、肾移植术后患者对未来与生命的心理感受、肾移植术后患者的自身健康需求与期望。结论医护人员应充分了解肾移植术后患者心理体验,做好针对性心理干预,引导患者调整认知和行为方式,提高患者的术后生活质量,并且增强患者对未来生活的心理资本。     

分娩时肛门括约肌损伤产妇真实体验的Meta整合

目的 系统评价分娩时肛门括约肌损伤产妇的真实体验,为制订针对性护理措施提供参考。方法计算机检索PubMed、Embase、Web of Science、Medline、中国知网、万方、维普等中英文数据库,检索关于分娩时肛门括约肌损伤产妇真实体验和心理感受的质性研究,检索时限为建库至2022年1月。依据2016版澳大利亚JBI循证卫生保健中心质性研究质量评价标准评价文献质量,利用汇集性整合法进行结果整合。结果共纳入10篇研究,提炼出91研究结果,将相似结果归纳形成8个新类别,最终得出4个整合结果：对日常生活的影响,对身心方面的影响,产妇缺乏医疗支持与互动,积极恢复、继续生活。结论护理人员应关注和了解分娩时肛门括约肌损伤产妇的真实体验,识别肛门括约肌损伤高危因素,给予针对性干预措施,同时建立多学科产后随访团队,协助产妇更好地重返社会,提高生活质量。     

青少年非自杀性自伤体验质性研究的Meta整合

目的 系统评价有关青少年非自杀性自伤真实体验与感受的质性研究,为制定个性化干预方案提供参考,帮助青少年回归家庭与社会。方法 检索中英文数据库从建库到2023年6月1日有关青少年非自杀性自伤体验的质性研究,采用澳大利亚JBI循证卫生保健中心定性研究质量评价标准对纳入的研究进行评价,运用Meta整合方法进行结果整合。结果 共纳入13项研究,包含226名青少年,提炼42个研究结果,整合成11个新类别,最终归纳为3个整合结果：非自杀性自伤的导火索,非自杀性自伤多维度体验,对治疗与帮助的看法。结论 青少年非自杀性自伤的早期经历各异,身心体验复杂。应加强对青少年非自杀性自伤的重视,建立家庭-学校-医疗机构互助联络网,做到信息共享、早期预防、联合应对,促进青少年心理健康发展。     

脊髓损伤患者创伤后成长体验质性研究的Meta整合

目的 对脊髓损伤患者创伤后成长体验的质性研究进行系统评价和Meta整合。 方法 计算机检索PubMed、Cochrane图书馆、Web of Science、中国知网（CNKI）、万方数据库、维普网、中国生物医学文献服务系统（SinoMed）等国内外数据库中关于脊髓损伤患者创伤后成长真实心理体验的质性研究文献。检索时限均为建库至2018年12月。采用澳大利亚JBI循证卫生保健中心质性研究质量评价标准（2016）对文献进行评价,并采用汇集性整合方法对结果进行整合与分析。结果 综合分析后形成3个整合结果：脊髓损伤患者创伤后成长历程曲折,需要经历绝望中的挣扎、对自我存在意义的反思获得成长;个人资源、认知加工、参加有意义的活动和社会支持都是脊髓损伤患者创伤后成长的保护性因素;脊髓损伤患者在认知行为层面的应对策略。结论 医护人员、家属及社会应相互协作,挖掘患者个人有利资源,采取干预措施,提高患者创伤后成长水平,使其积极面对疾病及生活,力争早日重返社会。     

癌症患者诊断知情心理体验质性研究的Meta整合

目的 系统评价癌症患者诊断知情心理体验,为临床制订更全面和更有针对性的疾病告知方式提供参考.方法 计算机检索PubMed、The Cochrane Library、Medline、中国知网、万方数据等数据库,检索癌症患者诊断知情心理体验质性研究文献,检索时限为建库至2020年12月,采用质性研究质量评价标准进行文献质量评价,并对文献进行Meta整合.结果 纳入18项研究,将文献提炼出的62个主题归纳成12个新的类别,综合成3个整合结果,即多重因素影响癌症患者对诊断的接受度、诊断告知方式方法、获悉患病信息后的改变.结论 癌症患者诊断知情的开展受多种因素影响,不同患者获知疾病诊断后的反应不同.医护务人员开展疾病告知前应充分做好评估,选择适宜的病情告知模式,减少患者获知疾病诊断所致的伤害.     

癌症患者家属对真实病情告知态度质性研究的Meta整合

目的 了解癌症患者家属对真实病情告知的态度,为临床进行真实病情信息告知提供参考.方法 检索PubMed、Embase、Web of Science、CINAHL及中国知网、万方数据、维普网7个中英文数据库,搜集有关癌症患者家属对真实病情告知态度的质性研究,检索时限均为建库至2020年12月28日.采用JBI的汇集性整合方法对结果进行整合.结果 共纳入12篇文献,提炼出49个结果,归纳出13个新类别,得到3个整合结果,分别为真实病情完全告知、真实病情部分告知、避免真实病情告知.结论 家属对于真实病情告知的态度存在差异.临床医护人员可在积极提高自我沟通能力的基础上,动态、持续地评估患者及家属对真实病情告知的态度及意愿,提供充分的信息支持与社会支持,既促进患者知情权与决定权的实现,又能满足患者需求,降低家属心理负担.     

慢性肾脏病患者饮食管理体验质性研究的Meta整合

目的 深入了解慢性肾脏病患者饮食管理过程的真实体验，以期为慢性肾脏病患者展开针对性的饮食干预提供依据。方法 检索PubMed、Web of Science、EBSCO、ScienceDirect及中国知网、万方数据库、中国生物医学文献数据库等数据库从建库至2020年2月慢性肾脏病患者饮食管理相关的质性研究。根据澳大利亚JBI循证卫生保健中心质性研究质量评价标准进行文献质量评价，采用汇集性整合的方法进行整合。结果 共纳入15篇文献，提炼63个结果，归纳形成9个类别，整合出3个结果，即慢性肾脏病饮食对患者造成的影响（疾病造成的饮食相关症状困扰、情感体验，生活限制和文化冲突）、应对方式（积极应对和消极应对）、需求（需要知识与技能、需要专业人员支持、需要家庭与朋友支持）。结论 慢性肾脏病饮食对患者身心、生活、社交等多方面造成一定影响，医务工作人员在患者饮食管理过程中应该重视患者的应对方式，情感体验与不同需求，针对患者需求，给予患者指导与帮助，以树立患者饮食管理信念，引导患者积极应对，提高慢性肾脏病饮食管理的有效性。     

Parent experiences and psychosocial support needs 6 months following paediatric critical injury: A qualitative study

IntroductionParents of critically injured children can experience high levels of psychological distress post-injury, however little is known about their experiences and needs following injury. This study aimed to explore parent experiences and psychosocial support needs in the six months following child critical injury.MethodsAn interpretive qualitative design was used. Semi-structured interviews were conducted with 30 parents of 23 critically injured children. Interviews explored parent experiences and psychosocial support needs. Qualitative data were managed using NVIVO 10 and analysed thematically.ResultsFour themes were identified: integrating back into home life; adjusting mentally and emotionally to injury; coping with injury as a family; and navigating resources to meet family needs. Parents and families experienced substantial ongoing emotional impacts at 6 months following child injury. Parents were unprepared for the negative changes in their child’s psychological wellbeing and behaviour post injury, and parents’ mental health was negatively impacted, with mothers more likely to seek emotional support than fathers. Parents reported receiving no psychosocial follow-up from the hospital and limited information about community services and accessing local community resources on returning home.ConclusionsThere is a need to include all family members in discharge planning, and to use a family-centred continuity-of-care approach from the time of child injury through to post-discharge recovery. To strengthen parent and family wellbeing, a biopsychosocial holistic approach is recommended, including cognitive-behavioural and other psychological strategies to help reduce distress for parents and all family members and strengthen their coping capacity. A dedicated family support coordinator role to facilitate care over the child recovery trajectory, and development of accessible online and e-psychosocial support resources for parents and families are recommended.     

Children at birth,children growing up. Integration between healthcare and family educational care

This research is based on the assumption that in order to improve the quality of life of children with major health problems in the early stage of their life, especially in the case of disability, it is necessary to ensure the continuity and proper two-way integration of early childhood educational planning and health care, both provided by the adults involved, that is parents and professionals. Therefore, we tried to explore and piece together the complex set of family support experiences, both in the process of forming an attachment and affiliation to the newborn and in the construction of a common evolutionary history, aimed at the well-being of the entire family unit. We considered the context and actors of the first few days and months in the lives of children with a difficult life course, in a city of Northern Italy. By means of qualitative investigation, we carried out observations in the neonatal intensive care units of hospitals over a period of 10 months. Our observations continued in the local healthcare, social, and educational services, entrusted with providing care to children and support to parents after hospital discharge. We also carried out observations in nursery schools, in order to highlight early forms of individualised educational planning, drawn up by the educators together with the family.     

The role of burn camp in the recovery of young people from burn injury: A qualitative study using long-term follow-up interviews with parents and participants

BackgroundChildren and adolescents recovering from burn injury are at heightened risk of psychosocial problems. An integrative form of psychosocial intervention is burn camp. However, evidence about burn camp effectiveness is equivocal.ObjectivesThis study examined the role of therapeutic camp experiences in the recovery journeys of children and adolescents who had experienced burn injury and been treated in a tertiary pediatric hospital in Brisbane, Australia.MethodsRetrospective semi-structured interviews were conducted with youths and parents. Inductive reflexive thematic analysis was used with pooled interview data.ResultsThe participants were eight youths who attended at least one burns camp (between 2009 and 2019) and 15 parents of youth campers. An overwhelming majority (96%) reported a positive experience of camp, that they would return, and that they recommended the camp to other youth with burns. The four strengths of the camp experience were fun, adventurous activities; social relatedness (friendships, socializing); camp setting and experience; and acceptance. The four impacts of the camp on youth campers were normalizing (“I’m not the only one”, shared experience); social support (making new friendships, social confidence, mentoring others); psychological recovery (happier, mentally stronger, more resilient, independence building); and confidence (increased self-confidence, increased social confidence, leadership development).ConclusionsAlthough this is the first known research about burn camp in Australia, the findings are similar to a handful of other qualitative studies about burn camp experiences and impacts. Recommendations include future research on aspects of camp experiences that contribute to targeted outcomes, the role of staff and previous camp participants as mentors, and comparisons with other psychosocial interventions for youth burn survivors.     

An exploratory investigation of quality of life in adult liver transplant recipients

Quality of life is an important outcome indicator of experiences associated with liver transplantation. Unfortunately, quality of life has been defined in many different ways, causing confusion and misconceptions among practitioners, researchers, policy makers, and patients. This exploratory qualitative study was initiated to gain greater understanding regarding the adult transplant recipients' experiences with liver transplantation in order to direct future studies with this population and to assist in selection of a relevant quality of life survey tool for quantitative investigation. Twelve informants (7 women, 5 men) shared their experiences in face-to-face interviews conducted by the researcher. Analysis of these interviews reveals the importance of physiologic, psychological, social, spiritual, family, and socioeconomic aspects of quality of life for liver transplant recipients.     

心脏骤停幸存者真实体验质性研究的Meta整合

目的 总结心脏骤停幸存者的真实体验,为有针对性地提供心脏骤停急救护理提供参考.方法 计算机检索PubMed、Embase、Web of Science、The Cochrane Library、CINAHL、中国知网、维普数据库和万方数据库,搜集有关心脏骤停幸存者真实体验的质性研究.检索时限为建库至2020年8月.采用...     

Experiences of men with breast cancer: a qualitative study

Background

Recent reports indicate that male breast cancer rates are increasing in North America. While there have been numerous large-scale studies examining women's experiences with breast cancer, to date there have been no North American studies examining what a man experiences with a breast cancer diagnosis. The objective of this qualitative study was to describe the experiences of a sample of Canadian men diagnosed with breast cancer.

Methods

After written informed consent, unstructured audio-taped interviews were conducted with 20 men. Since little is known about a man's experience with breast cancer, an exploratory qualitative approach was utilized.

Results

Participants experienced concerns related to the lack of awareness of male breast cancer within both public and health professional groups. Many men suffered stress related to the cancer diagnosis, body image concerns and role strain. The lack of male-specific breast cancer information was identified as a major concern. All denied interest in traditional support groups. In retrospect, a number of men felt the breast cancer experience vastly improved their lives.

Conclusions

Needs identified by participants include increased public and health professional awareness of male breast cancer, written information specific for men, and male participation in breast cancer research. Further study is also necessary to identify supports considered helpful by men with breast cancer and other malignancies.     

Core psychosocial issues for children and adolescents in the context of limb lengthening and reconstruction surgery treatment

PurposeAddressing the psychosocial needs of adolescents can improve surgical outcomes. The aim of this retrospective comparative study was to understand the core psychosocial factors that shaped the experiences of adolescents who underwent multiple limb lengthening/reconstruction surgeries (LLRS).MethodsA novel 62-question survey was developed and administered to 31 patients from the study institution. Data was obtained using a self-report inventory assessing medical care, communication/connection to doctor, peer relations, physical space, self-esteem, counselling/clergy, physical/emotional support, school issues and concerns about future. This survey and demographic questions were administered to young adults (now aged 18 to 30 years) who underwent LLRS treatment between the ages of 11 to 20 years.ResultsPsychosocial needs were determined to be within the categories of body image/self-esteem, subjective perception of treatment, patient-physician relationship, role of parents, peer interactions, academic performance and hospital experience. Patients valued parental involvement while also wanting their surgeon to speak directly to them. They preferred to be in private rooms on the paediatric floor and to not socialize while in the hospital. They were indifferent to keeping up with friends, speaking to a counsellor and having their surgeon inquire about their emotions. They expressed concern about pain, carrying out activities and the financial impact of surgery.ConclusionsAdolescent LLRS patients value focused psychosocial support from their surgeon and caregivers. This perceived level of support influences their ability to cope with their condition. These findings helped us understand the psychological issues and preferences of adolescents who underwent LLRS and can assist orthopaedic surgeons in providing holistic care.Level of EvidenceIV     

Experiences of guilt,shame and blame in those affected by burns: A qualitative systematic review

Background

A significant burn can severely impact the lives of survivors and their carers. This systematic review sought to incorporate the experiences of guilt, blame and shame across the lifespan for burn survivors, their families as well as the experiences of the parents of burned children.