共查询到8条相似文献,搜索用时 15 毫秒
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Adolescents’ Health Awareness and Understanding of Cancer and Tumor Prevention: When and Why an Adolescent Decides to Consult a Physician
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Chiara Magni MD Chiara Segrè PhD Cosimo Finzi Laura Veneroni PsyD Carlo Alfredo Clerici MD Maura Massimino MD Michela Casanova MD Vera Martinella Stefano Chiaravalli MD Angelo Ricci Andrea Biondi MD Andrea Ferrari MD 《Pediatric blood & cancer》2016,63(8):1357-1361
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《Academic pediatrics》2022,22(6):1041-1048
ObjectiveChildren with complex health needs (CCHN) have both medical (eg, chronic conditions) and health-related social needs (eg, potentially adverse social determinants of health) that require ongoing health care and support from multiple community service providers. National standards developed for populations defined by health needs (CYSHCN) provide a framework for stakeholders to plan system-level improvements in care delivery for CCHN, but improvement efforts should reflect the priorities of their families and providers. This article describes a process of prioritizing system-level efforts to improve the health and well-being of CCHN and families in North Carolina (NC), using systematic stakeholder engagement and modified Delphi expert ratings.MethodsWe surveyed stakeholders with experience caring for CCHN using an open-ended, 3-item instrument to identify opportunities to improve systems of care. Using directed qualitative content analysis, we synthesized responses into a master list of potential improvement topics. Using a modified Delphi approach, a 16-member advisory committee rated all topics for importance and urgency, on 9-point Likert scales over 2 rounds; then ratings for each topic were ranked (low, medium, high) to establish relative priority.ResultsForty seven individuals from 31 counties around NC provided survey responses, yielding 59 improvement topics in 10 domains. Through the modified Delphi method process, 21 topics (36%) received the highest rankings, largely representing access to community- and home-based services, equity, and enhancement of the pediatric workforce.ConclusionsPriorities identified by stakeholders will inform advocacy, policy, and improvement efforts. Next steps for the coalition include developing improvement projects to implement stakeholder-recommended actions for the highest-priority topics. 相似文献
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Cecily L. Betz Kathryn Smith Alex Van Speybroeck Robert A. Jacobs Natalie Rivera Jeannie Lee Saba Saghhafi Benjamin Nguyen Hao Tu 《Journal of pediatric health care》2018,32(3):273-284
Global efforts are underway to develop, implement and test health care transition (HCT) models of care. Most studies have focused on the transfer of care models. In contrast, the nurse-led interdisciplinary HCT model, Movin' On Up, provides comprehensive HCT services beginning in early adolescence. A retrospective analysis was conducted of data extracted from HCT records of 146 adolescents and emerging adults with spina bifida (with a mean age of 13.91 years) who were provided services in the Movin' On Up HCT program. Data were categorized based on the Health Care Transition Research Consortium HCT model and the Omaha System framework and as to type of direct HCT services provided by the HCT Specialist and nurse-led interdisciplinary team conferences conducted. Findings revealed that the scope of services provided represented the scope of comprehensive needs beyond those associated with the transfer of care. 相似文献
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Use of Pediatric Health Information System database to study the trends in the incidence,management, etiology,and outcomes due to pediatric acute liver failure in the United States from 2008 to 2013
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Sakil Kulkarni Carla Perez Caren Pichardo Lina Castillo Michael Gagnon Consuelo Beck‐Sague Rani Gereige Erick Hernandez 《Pediatric transplantation》2015,19(8):888-895
Data were collected of children admitted with ALF to 16 US pediatric liver transplant centers from 2008 to 2013 using the PHIS for a retrospective analysis of PALF trends. Patient data linked to the principal diagnosis code for acute necrosis of the liver (570.00) were analyzed for the following: demographics, regional differences, changes over time, pharmaceutical trends, procedural trends, associated diagnoses, and patient outcomes. In 52.5% of 583 patients who met the selection criteria for PALF, the etiology remained undetermined. Acetaminophen toxicity (18.7%) was the most common identifiable etiology, and hepatic encephalopathy (38.6%) was the most common complication. Mortality was lower than previously reported; 95.4% survived and 73.2% survived without a liver transplant. Acute respiratory failure (OR = 3.4, p = 0.035), acute kidney injury (OR = 3.6, p = 0.003), and cerebral edema (OR = 3.6, p = 0.02) were independently associated with increased risk of mortality. The use of N‐acetylcysteine in non‐acetaminophen‐related ALF, the use of intracranial pressure monitoring, and the proportion of sepsis decreased significantly during the study period. The PHIS database can be a useful tool to study the future trends of PALF patients. 相似文献
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Translation,psychometric validation,and baseline results of the Patient‐Reported Outcomes Measurement Information System (PROMIS) pediatric measures to assess health‐related quality of life of patients with pediatric lymphoma in Malawi
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Katherine Westmoreland Bryce B. Reeve Amy Amuquandoh Toon van der Gronde Olivia Manthalu Helena Correia Christopher Stanley Salama Itimu Ande Salima Mary Chikasema Paula Ward Atupele Mpasa Stella Wachepa Idah Mtete Mercy Butia Mary Chasela Mary Mtunda Peter Wasswa Steven Martin Nader El‐Mallawany Kim Peter Kazembe Satish Gopal 《Pediatric blood & cancer》2018,65(11)