Quality of life and well‐being of people receiving haemodialysis treatment in Scotland: A cross‐sectional survey

End‐stage renal disease is a complex, progressive and debilitating illness that affects patients’ quality of life, physical and mental health, well‐being, social functioning and emotional health. A cross‐sectional survey was carried out in renal dialysis centres in Scotland to assess patients’ health status and the impact of haemodialysis treatment on quality of life and well‐being. Participants scored considerably lower than the UK general population in all domains of health‐related quality of life, although mental health components were nearer to general population norms than physical health components. However, nearly half of the participants achieved a score on a general well‐being questionnaire that was indicative of stress and anxiety. Increasing age was associated with better overall mental health but worse physical functioning. Increasing levels of hope and support were associated with improved general well‐being.     

结节病患者的疾病认知与其生活质量的相关性研究

目的探讨结节病患者的疾病认知与生活质量的相关性。方法采用改良的疾病认知问卷、自填式标准化慢性呼吸问卷、健康调查简表对英国某医药胸科门诊54例结节病患者进行问卷调查。结果结节病患者存在疲乏、呼吸困难等症状,患者疾病认知与生活质量呈负相关。结论医护人员为结节病患者制订非药物性的干预措施前,应了解患者本身对自身疾病的认知以提供更有效的干预措施。     

Quality of life in chronic haemodialysis and peritoneal dialysis patients in Turkey and related factors

Turkey is the fifth country in Europe with regard to the number of patients receiving haemodialysis (HD). However, only a limited number of studies have comparatively investigated the factors that affect quality of life in haemodialysis and peritoneal dialysis (PD) patients in Turkey. The purpose of the study was to investigate the factors that affect quality of life in haemodialysis and peritoneal dialysis patients, as well as providing a comparison of quality of life between these groups. In this cross‐sectional study, Quality of Life Scale and a data form was completed by 300 dialysis patients who received treatment at five hospital‐based dialysis units in Istanbul, Turkey. The data were evaluated using arithmetic mean values, standard deviations, minimums, maximums, percentages, independent groups t‐tests, Spearman correlation analyses and one‐way variance analyses. The quality of life values in peritoneal dialysis patients were found to be higher than those of haemodialysis patients (P < 0.05). It was concluded that the quality of life in chronic dialysis patients was affected by various factors.     

肺癌术后化疗病人的疾病不确定感与生活质量的相关性研究

[目的]调查肺癌术后化疗病人疾病不确定感、生活质量状况,探讨疾病不确定感与生活质量的相关性。[方法]选取广州医科大学附属第一医院收治的肺癌术后化疗病人110例。采用中文版疾病不确定感量表(MUIS)和中文版肺癌病人生活质量量表(QLQ-LC43)进行测评。[结果]肺癌术后化疗病人疾病不确定感总分为80.50分,中位数为77.50分,疾病不确定感得分处于中等水平;肺癌术后化疗病人生活质量得分:躯体功能和认知功能得分相对较低,社会功能和角色功能得分相对较高,情绪功能得分处于中等水平;总健康状况子量表均分为2.93分,中位数为3.00分。不明确性与认知功能、情绪功能、躯体功能、角色功能、总体健康感觉呈正相关;信息缺乏与认知功能、情绪功能、角色功能、总体健康感觉呈正相关;不可预测性与总体健康感觉呈正相关;MUIS总分与认知功能、情绪功能、角色功能、总体健康感觉呈正相关。[结论]肺癌术后化疗病人的疾病不确定感处于中等水平,疾病不确定感和生活质量呈负相关;提示降低疾病不确定感有利于提高肺癌术后化疗病人的生活质量。     

Relationships between coping, coping resources and quality of life in patients with chronic illness: a pilot study

Scand J Caring Sci; 2011; 25; 476–483
Relationships between coping, coping resources and quality of life in patients with chronic illness: a pilot study Background: In Sweden there are approximately about 3500 end‐stage renal disease (ESRD) and 250 000 chronic heart failure (CHF) patients. Objectives: The original purpose of the study was to determine differences between two groups of patients with chronic illness (ESRD and CHF) regarding the following study variables: coping, sense of coherence (SOC), self‐efficacy and quality of life (QOL). Following this, the aim was to explore the relationships between demographic variables (sex, age, educational level and living area) and QOL as well as between coping, SOC, self‐efficacy and QOL for the combined sample of patients with ESRD and CHF. Methods: A comparative and correlative design was used with a sample of 100 patients (n = 41 ESRD, n = 59 CHF). The data were collected during 2004, using four standardized questionnaires and regression analyses were conducted. Results: No significant differences were found between the two groups. Positive correlations were identified between SOC, general self‐efficacy and QOL, whereas negative correlations emerge between emotion‐focused coping, SOC, general self‐efficacy and QOL. SOC, general self‐efficacy and emotion‐focused coping explained 40% of the variance in QOL. Those with low SOC and general self‐efficacy showed negative correlations between emotion‐focused coping and QOL, whereas no such correlations were shown for those with high values on SOC and general self‐efficacy. Conclusions: The present results on coping and QOL correspond with previous research regarding how other groups with chronic illness handled their daily life. Preliminary results indicate that how individuals tackle their present situation is more important than which chronic illness they have. Women used more emotion‐focused coping than men, which constitute an important finding for further research.     

系统性红斑狼疮患者疾病不确定感与生活质量的相关分析

目的探讨系统性红斑狼疮患者疾病不确定感、生活质量状况及两者之间的关系。方法选择60例住院系统性红斑狼疮患者为研究对象,应用疾病不确定感量表和生活质量量表进行测评。结果系统性红斑狼疮患者疾病不确定感总分为（103．79±11．37）分;生活质量状况评分：社会功能（39．24±12．27）分,生理职能（41．67±28．35）分,情感职能（43．36±19．23）分,精神健康（47．21±21．52）分,活力（57．36±18．28）分,总体健康（61．23±15．21）分,生理功能（63．32±16．57）分,身体疼痛（66．29±17．26）分;疾病不确定感总体水平与生理职能、总体健康、社会功能、情感职能、精神健康呈负相关。结论系统性红斑狼疮患者存在较高水平的疾病不确定感,与生活质量存在一定的相关性。应加强临床护理及健康教育,开展科学随访,以降低患者的疾病不确定感,提高患者生活质量,改善其预后。     

宫颈癌患者术前疾病感知与术后近期生存质量的相关性分析

目的 探讨宫颈癌患者术前疾病感知水平与术后近期生存质量的相关性,并分析生存质量的相关影响因素.方法 采用方便抽样方法选取2018年12月至2019年6月就诊于我院的121例宫颈癌患者进行问卷调查,术前收集患者一般人口学资料、疾病相关资料及疾病感知资料,术后1个月调查患者生存质量状况.结果 术前患者的疾病感知总分为(51...