Breast milk and labour support: lactation consultants’ and doulas’ strategies for navigating the medical context of maternity care

This article provides a comparison of two occupational groups working in maternity care: International Board Certified Lactation Consultants, who assist women with breastfeeding, and DONA International certified birth doulas, who provide physical, emotional and informational support to birthing women. Using interviews with 18 lactation consultants and 16 doulas working in the USA, I compare these two groups’ strategies for gaining entrance to the maternity care team and their abilities to create change in maternity care practices. Due to the organisation of occupational boundaries in maternity care and differences between the influence of the medicalisation of breastfeeding versus that of childbirth on those boundaries, lactation consultants are able to utilise a front‐door entrance to the medical maternity system, entering as lactation specialists and advocates, while doulas use a back‐door entrance, emphasising their care work and downplaying their advocacy. These different strategies result in different methods being available to each for effecting change. Lactation consultants create formal change, such as changing hospital policies and practices to be more pro‐breastfeeding. Doulas create change informally, ‘one birth at a time’, by creating space for natural birth to occur in the hospital, as well as exposing medical providers to non‐medical ways of giving birth.     

Communicatively Making Sense of Doulas within the U.S. Master Birth Narrative: Doulas as Liminal Characters

Doulas—or designated women experienced in childbirth who provide support to a birthing mother—have been shown to improve mothers’ medical outcomes, but they are relatively underused in U.S. births. We assert that doulas are rarely used, in part, because it is difficult to situate them within the contemporary U.S. master birth narrative that places family and medical staff as expected characters in the birth story. This qualitative study uses narrative theorizing to describe the communicatively situated position of doulas in light of the dominant U.S. master birth narrative. Through an analysis of interviews and focus groups with mothers, expectant parents, doulas, and medical staff (n = 52) at a community hospital, we explain how individuals communicatively located the doula as a character who occupied a liminal space that is (a) between borders, (b) crossing borders, and (c) outside borders. Although doulas’ liminal location enables individuals to creatively explain and promote doulas to important publics, doulas’ conceptual ambiguity in the birth narrative can also be constraining. We conclude with theoretical and practical implications.     

What role do Death Doulas play in end‐of‐life care? A systematic review

Current health and social care systems do not always meet the needs of the dying in our communities. As a result, patients and families are choosing to place their trust in those who can advocate for them or fill the gaps in care. Birth Doulas have been working with women during pregnancy and after birth for many years, and we are now seeing a new role, that of a Death Doula emerging in the end‐of‐life care space. How Death Doulas work within health and social care systems is not understood and we conducted a systematic review to explore the published literature to explore the role and potential implications for models of care delivery. Following the PRISMA recommendations, we searched the literature in January 2018 via bibliographic databases and the grey literature without search date parameters to capture all published literature. We looked for articles that describe the role/work of a death doula or a death midwife in the context of end‐of‐life care, or death and dying. Our search retrieved 162 unique records of which five papers were included. We analysed the papers in relation to relationship to health service, funding source, number and demand for services, training, licensing and ongoing support, and tasks undertaken. Death Doulas are working with people at the end of life in varied roles that are still little understood, and can be described as similar to that of “an eldest daughter” or to a role that has similarities to specialist palliative care nurses. Death doulas may represent a new direction for personalised care directly controlled by the dying person, an adjunct to existing services, or an unregulated form of care provision without governing oversight.     

“Can I Ask That?”: Perspectives on Perinatal Care After Resettlement Among Karen Refugee Women,Medical Providers,and Community-Based Doulas

This study characterized the perspectives of Karen refugee women in Buffalo, NY, their medical providers, and Karen interpreters/doulas on perinatal care for Karen women in resettlement. In-depth qualitative interviews with Karen women (14), Karen doulas/interpreters and key informants (8), and medical providers (6) were informed by the social contextual model and focused on women’s questions about and opinions of perinatal care in Buffalo and on providers’ experiences caring for Karen patients. Karen women expressed gratitude for and understanding of perinatal care in Buffalo, and providers described Karen patients as agreeable but shy. Karen doulas offered an alternative view that exposed women’s many questions and concerns, and described how doula training empowered them as patients’ advocates. Low self-efficacy, trauma histories, and cultural expectations may contribute to Karen women’s seeming agreeability. Doulas/interpreters possess insider knowledge of women’s concerns and facilitate communication between patients and the care team.     

Survey of home nutritional support patients

Patients receiving home parenteral nutritional services from a major corporate provider were surveyed using a written questionnaire. The survey questioned the patients about use of home parenteral nutritional services and the quality of life while receiving home parenteral therapy. Patient satisfaction with home nutritional support services, and the impact home therapy has on patient medical, financial and psychosocial status were examined. Life satisfaction measures were compared with that of end stage renal disease patients and the overall United States population. Of the 1140 patients sent the written questionnaire, 347 (30.4%) returned the survey. Half the patients had been placed on home parenteral nutrition services because of short bowel syndrome. The mean length of time respondents had been receiving home parenteral nutrition services was 35 months, reporting approximately one hospitalization per year due to complications of their home parenteral nutrition. Blood infection with catheter as focus was most frequently reported as being responsible for hospitalization. The number of hospitalizations due to complications of home parenteral nutrition therapy was positively correlated with length of time on the program. Overall, respondents were satisfied with their home nutrition services, but were less satisfied with life as a whole when compared to the overall United States population and to end stage renal disease patients.     

Japanese women's experience of childbirth in the United States

While Japanese people represent a significant and growing cultural group within the United States, little is known about the culture-specific needs of Japanese women who experience pregnancy and childbirth in this country. Five women participated in a study of Japanese women's experience of pregnancy and childbirth in the United States. The following thematic clusters emerged from the interview data: issues related to the maintenance of Japanese birth-related practices and traditions; comparison of the Japanese and U.S. health systems; language difficulties; and the need for support systems. This group of well-educated, medically sophisticated women regarded their experiences overall to be positive. Still, they identified areas of uncertainty and unfamiliarity of which health professionals should be aware in order to facilitate the negotiation of culturally congruent care.     

JAPANESE WOMEN'S EXPERIENCE OF CHILDBIRTH IN THE UNITED STATES

While Japanese people represent a significant and growing cultural group within the United States, little is known about the culture-specific needs of Japanese women who experience pregnancy and childbirth in this country. Five women participated in a study of Japanese women's experience of pregnancy and childbirth in the United States. The following thematic clusters emerged from the interview data: issues related to the maintenance of Japanese birth-related practices and traditions; comparison of the Japanese and U.S. health systems; language difficulties; and the need for support systems. This group of well-educated, medically sophisticated women regarded their experiences overall to be positive. Still, they identified areas of uncertainty and unfamiliarity of which health professionals should be aware in order to facilitate the negotiation of culturally congruent care.     

The costs and benefits of government expenditures for family planning programs

In 1979, federal and state governments spent a total of $285 million to finance family planning clinic services in the United States. As a result, about 695,000 pregnancies (239,000 births, 370,000 abortions and 86,000 miscarriages) were averted among low- and marginal-income patients; and at least $570 million was saved in government expenditures during the following year for childbirth, postnatal and pediatric care, abortions and welfare payments that would have been required in the absence of the clinic services. In other words, for every dollar spent by the government on family planning clinic services in 1979, about two dollars were saved in public-sector expenditures for health and welfare services to women and their babies during the next year. The first-year benefits were especially high for teenagers--about three dollars saved for every government dollar expended. Although teenagers accounted for only one-third of the clinic patients served in 1979, nearly half of the government savings can be attributed to family planning clinic services to women in their teens. Costs were greater than savings for patients aged 30 and older, but these older patients represent only 12 percent of the clinic patient population.     

Specialized Family Planning Clinics in the United States: Why Women Choose Them and Their Role in Meeting Women's Health Care Needs

BackgroundPublicly funded family planning clinics provide contraceptive care to millions of poor and low-income women every year. To inform the design of services that will best meet the contraceptive and reproductive health needs of women, we conducted a targeted survey of family planning clinic clients, asking women about services received in the past year and about their reasons for visiting a specialized family planning clinic.MethodsWe surveyed 2,094 women receiving services from 22 family planning clinics in 13 states; all sites included in the survey were clinics that specialize in contraceptive and reproductive health services and were located in communities with comprehensive primary care providers.ResultsSix in 10 (59%) respondents had made a health care visit to another provider in the past year, but chose the family planning clinic for contraceptive care. Four in 10 (41%) respondents relied on the family planning clinic as their only recent source for health care. The four most common reasons for choosing a specialized family planning clinic, reported by at least 80% of respondents, were respectful staff, confidential care, free or low-cost services, and staff who are knowledgeable about women's health.ConclusionsSpecialized family planning clinics play an important role as part of the health care safety net in the United States. Collaborations between such clinics and comprehensive primary care providers, such as federally qualified health centers, may be one model for ensuring women on-going access to the full range of care they need.     

Probable locally acquired mosquito-transmitted Plasmodium vivax infection--Suffolk County, New York, 1999

In the United States, malaria transmission was eliminated in the 1940s, and malaria eradication was certified in 1970 (1). Since then, 60 small localized outbreaks of probable mosquito-transmitted malaria have been reported to CDC (2-6). Before 1995, the number of imported malaria cases reported to the Suffolk County (New York) Department of Health Services ranged from zero to eight per year. Since 1995, seven to 17 cases per year have been reported. In all of these cases, a history of residing in or traveling to an area with endemic malaria outside the United States was confirmed. This report describes the investigation of two cases of Plasmodium vivax malaria that occurred in Suffolk County in August 1999; the patients had no history of travel outside of the United States.     

Mothers' health and work-related factors at 11 weeks postpartum

PURPOSE Many new mothers return to work soon after childbirth. This study examines personal and work-related factors associated with the postpartum health of employed women 11 weeks after childbirth.METHODS Using a prospective cohort design, we recruited 817 Minnesota mothers into the study while they were hospitalized for childbirth in 2001. Telephone interviews were conducted at 5 and 11 weeks postpartum. Eligible women were 18 years or older, employed, and spoke English and gave birth to a singleton infant. Multivariate models using instrumental variables (2-stage least squares) were used to estimate personal and employment characteristics associated with women’s physical and mental health and postpartum symptoms.RESULTS At 11 weeks postpartum, 661 participants (81% of enrollees) completed a full interview, and 50% of participants had returned to work. On average, women reported 4.1 (SD 3.2) childbirth-related symptoms, most frequently fatigue (43%). Factors significantly associated with better health outcomes included better preconception health, the absence of prenatal mood problems, more control over work and home activities, more social support at work and home, and less job stress.CONCLUSIONS The findings suggest postpartum women need to be evaluated regarding their fatigue levels and mental and physical symptoms. Women whose fatigue or postpartum symptoms limit daily role function may find it helpful to have health care clinicians counsel them on strategies to decrease job stress, increase social support at work and home, and certify their use of intermittent family and medical leave to help them manage their symptoms.     

A Case Study Using a Patient Satisfaction Survey to Improve the Delivery and Effectiveness of Drug Addiction Treatment Services: Marketing Implications and Organizational Impact

Drug abuse and addiction continues to negatively impact many lives in this country. The United States health care system has grappled with how to best serve this vulnerable population. Since the personal and societal costs of addiction are high, all recent iterations of the United States strategic health plans (such as Healthy People 2010) have prioritized this area for improvement. At the local level, health care providers who care for those with addictions are challenged with shrinking insurance coverage for services, a difficult patient population, lack of treatment options, growing ranks of indigent patients, as well as a plethora of additional management challenges. It is known that successful treatment is integrally linked with patient satisfaction with services. The most critical factors in successful addiction treatment (from a patient's perspective) are (1) their belief that the counselor cares about them and, (2) their belief that they can recover. This paper reports a case study in the use of a patient satisfaction survey as a quality management/service refinement tool within a methadone treatment setting. Results indicate that the use of the survey itself provides patients with a tangible cue supporting the presence of the critical success factors. Further, the use of a survey provides a baseline for future measurements and trending. The paper concludes with a discussion of the marketing and organizational implications of incorporating the patient satisfaction survey into the ongoing delivery program for addiction services.     

Healthy behaviors among women in the United States and Ontario: the effect on use of preventive care.

OBJECTIVES: This study examined how several healthy behaviors among women in Ontario and the United States explained (1) the use of preventive health services, (2) differences in use between socioeconomic groups, and (3) differences in use between the two health systems. METHODS: 1990 data on women from the Ontario Health Survey (n = 22,985) and the US National Health Interview Survey (n = 19,092) were analyzed. A woman who avoided smoking and obesity, used seatbelts, and regularly engaged in aerobic exercise was defined as having a healthy lifestyle. Women were considered screened if they reported a mammogram or a breast exam within the previous year or a Pap smear within 2 years. RESULTS: A healthy lifestyle was more common in the United States than Canada among more highly educated groups (odds ratio [OR] = 1.40; 95% confidence interval [CI] = 1.22, 1.60 for college educated) but less common in the United States for those with less than a high school education (OR = 0.52; 95% CI = 0.40, 0.67). Each additional unhealthy behavior decreased the odds of having undergone a mammogram in the previous year by 20%. However, adjusting for the number of unhealthy behaviors did not substantially change the relationship between socioeconomic status and use of preventive services. CONCLUSIONS: The number of healthy behaviors is an important measure of demand for preventive health services. This measure varies across country and socioeconomic group.     

Maternal health services for refugee populations: Exploration of best practices

ABSTRACT

The full scope of women’s health needs is not necessarily addressed in refugee camps and after resettlement, particularly pregnancy and postnatal services. The aims of this research are to examine the maternal care services provided to refugee women in camps and after resettlement to the United States, and to analyse organisational successes and challenges in service provision. With this understanding, policies can improve service delivery for refugee women. We interviewed respondents from five organisations, ranging from local non-profits to international non-governmental organisations. Most of the organisations do not provide direct medical care, but rather education and social service support to clients, and in some cases midwife training. Their success stemmed from a focus on client capacity building, individualised support, effective partnerships, and cultural competency. Respondents described the need for physical resources, effective leadership, and additional personnel, especially with linguistic capabilities. The dialogue in the interviews supports themes of education as empowerment and client self-sufficiency. Respondents emphasised the importance of funding and policies that support their work. This knowledge can lead to improved models of service delivery and inform the development of best practices and policies in maternal and reproductive health for refugee women.     

Support Services and Peer Support for Parents of At-Risk Infants: An International Perspective

An international survey was done on support services and peer self-help for families with infants in neonatal intensive care. In the survey, there were 19 respondents from 11 countries. Comparisons were made between this survey and 2 done in the United States. The number of support services provided for each hospital was not related to economic indicators. Parents' involvement in infant care was higher in countries with lower gross national product and higher infant mortality rate. Hospitals having a self-help organization indicated higher parental involvement in care. Hospitals with parent-professional collaboration had more support services, self-help activities, and stability and longevity of groups. The survey pointed to a widespread effort to provide support services that appeared to cross geographic and economic boundaries.     

Receipt of Home Health Care After Early Discharge: Results from a National Managed Care Organization

Objectives: To determine the frequency of home visits during the postpartum period among women discharged within 24 hours after childbirth, to identify characteristics of women who received at least one home visit, and to examine whether a home visit was related to postpartum experiences. Method: Women who were enrolled in a Prudential HealthCare® plan and had a recent normal vaginal delivery completed a 15-minute telephone survey (N = 5201). Only women who were discharged within 24 hours after delivery were included in this analysis (N = 3121). Selected variables, including maternal characteristics, pregnancy-related and postpartum experiences, and social support factors, were compared for women who received visits and those who did not receive visits within two weeks after delivery. Results: Slightly more than 30% of women participating in the survey received at least one home health care visit within 2 weeks after delivery discharge. Women who received a home visit were more likely to be Black, employed, primaparous, enrolled in a health maintenance organization, or not living in the Southern United States. Compared with women who did not receive a home visit, women who received a visit were more likely to have their newborn receive a phenylketonuria test after discharge, receive a follow-up phone call or housekeeping service, and access to a 24-hour hotline. Conclusions: Managed care organizations as well as other organized systems of care should be focused on improving the quality of prenatal and postpartum services, and increasing satisfaction of women using these services.