妇科恶性肿瘤患者支持性照顾需求的调查性研究

【】目的：探讨妇科恶性肿瘤患者治疗期间支持性照顾需求状况及需要帮助情况【方法】采用描述性研究设计,用癌症患者支持性照顾需求问卷(SCNS)对治疗期间的101例妇科恶性肿瘤患者进行问卷调查。【结果】妇科恶性肿瘤患者支持性照顾需求程度得分依次为健康信息维度(3.267±0.679)分, 照顾与支持维度(3.043±0.668)分,心理维度(2.272±0.838)分,生理与日常生活维度(1.993±1.079)分,性维度(1.823±0.956)分;上述维度需要帮助程度得分依次为(2.261±0.754)分,(2.032±0.808)分,(1.602±0.800)分,(1.406±0.962)分,(1.293±1.069)分。【结论】妇科恶性肿瘤患者治疗期间对健康信息、照顾与支持方面的需求程度及需要帮助情况较高,各方面均存在需求及需求未满足情况,需求程度越高,越需要得到帮助。有必要采取护理措施满足患者的需求,帮助患者树立起战胜病魔的勇气和信心。     

Spiritual Needs and Perception of Quality of Care and Satisfaction With Care in Hematology/Medical Oncology Patients: A Multicultural Assessment

Context

Assessment and response to patients' spiritual concerns are crucial components of high-quality supportive care. Better measures of spiritual needs across the cultural spectrum may help direct necessary interventions.

Supportive care needs and quality of life of patients with gynecological cancer undergoing therapy

Objective

To identify the relationship of unmet supportive care needs with quality of life of patients with gynecological cancer undergoing therapy.

急性白血病患者生活质量与支持性照顾需求的相关性研究

目的调查急性白血病住院患者生活质量、支持性照顾需求的现状并探讨其相关性。方法采用一般资料调查表、白血病生活质量评估量表、支持性照顾需求量表对西安市5所三级甲等医院血液内科的急性白血病患者311例进行调查,将所得资料进行统计学分析。结果急性白血病患者生活质量总分为(112.39±24.31)分;在支持性照顾需求的5个维度中,健康信息需求维度得分最高,性需求维度得分最低;生活质量各维度除社会/家庭状况外,其余各维度与支持性照顾需求各维度呈负相关(P0.01或P0.05)。结论急性白血病患者总体生活质量较差,患者支持性照顾需求各维度存在未满足需求情况,且患者的未满足需求越多生活质量越差。临床医护人员应尽量满足患者的生理及心理方面的需求,进而改善其生活质量。     

Association between self-reported care needs and the allocation of care in Norwegian home nursing care recipients

sævareid h.i., thygesen e., lindstrom t.c. & nygaard h.a. (2012) Association between self‐reported care needs and the allocation of care in Norwegian home nursing care recipients. International Journal of Older People Nursing 7 , 20–28
doi: 10.1111/j.1748‐3743.2010.00247.x Objectives. This study investigated the relationship between patients’ self‐reported illness, daily afflictions, and the frequency of home nursing care, and whether patients’ coping resources influenced the allocation of care. Design, sample and measurements. A cross‐sectional survey was adopted. Two hundred and forty‐two people aged 75 years and above receiving home nursing care participated in the study. Binary logistic regression model was used to test the effects of the independent variables on home nursing care. Results. Poor capacity to perform activities of daily living and high level of education were directly associated with a high frequency of home nursing care. Lack of perceived social support affected the amount of home nursing care allocated only when feelings of loneliness were connected with poor activities of daily living functioning. Interaction effects revealed that perceived social support influenced the amount of home nursing care in persons with higher education, in persons with low education, no such association were found. No associations were found between coping resources and home nursing care. Conclusions. Impaired capacity to perform activities of daily living was the main reason for care allocation. Education was associated with more formal care. Patients with low perceived social support combined with a low education level was a particularly vulnerable group.     

NICU危重患者家属需求与护士对家属需求的认知差异调查

目的：调查神经外科重症监护病房（Neurosurgical Intensive CareUnit,NICU）护士对家属需求的认知与NICU危重患者家属实际需求之间的差异。方法：使用中文改良版危重患者家属需求量表(Modified critical care family needs inventory,M-CCFNI)对复旦大学附属华山医院神经外科监护室（NICU）2021年1～9月收治的危重患者家属323人以及在职护士62人进行调查分析。结果：(1)NICU危重患者家属需求平均分为（128.52±15.62）分,各条目均分为（3.43±0.44）分,呈高需求状态;护士认知的患者需求平均分为（118.05±15.46）分,各条目均分为（3.15±0.41）分,评分差异具有统计学意义（P<0.01）。(2)NICU危重患者家属需求5个维度的得分排序中NICU护士与患者家属一致认为最重要的需求是“病情保证”,但双方在“亲近患者的需求” 和“医护人员的支持”两个维度存在着明显差异（P<0.01）。(3)M-CCFNI量表共有37条需求,NICU危重患者家属认为最重要10条需求中,护士与其吻合的有7条,但家属认为极为重要的“希望每天和医生进行交流(IS)”,“医护人员能如实回答我的问题(AS)”,“每天都能得到有关患者病情的相关消息(PS)”3条需求,护士的认知远低于患者家属的需求。(4) NICU危重患者家属与护士在得分后10条的需求中,危重患者家属将自身心理、精神方面的需求列为其最不重要的需求项目;而NICU护士则低估了危重患者家属想要了解患者病情的信息以及探视的需求。结论：神经外科重症患者家属需求呈高需求状态,远高于护士的对家属需求的认知,且护士对家属需求侧重点的认识存在着偏差。     

出院患者延续护理服务需求调查分析

目的：了解出院患者的延续护理服务需求及相关意愿。方法 ：采用自设问卷对12家三级甲等医院的2910例住院患者进行调查。结果 ：①出院时患者有管路维护需求的有1988例（68.31%）,其中排序在前3位的依次是PICC管路维护912例（31.34%）、尿管维护606例（20.82%）、引流管维护436例（14.98%）;②选择出院接受延续护理服务的患者2144例（75.71%）,选择入户服务的1603例（56.17%）;研究对象对不同服务提供者的选择有统计学差异（χ~2=235.391,P〈0.001）;③愿意接受延续护理服务收费小于10元/次的有1395例（48.78%）,小于30元/小时的有1940例（68.58%）。结论：延续护理服务势在必行,应根据出院患者的需求和意愿建立延续护理服务体系,发挥延续护理服务的社会和经济效益。     

People with HIV/AIDS: who cares?

People with HIV/AIDS: who cares? Studies have shown that some nurses, doctors and other carers have negative attitudes towards people with human immune deficiency virus/acquired immune deficiency syndrome (HIV/AIDS). Some cope by avoiding working with such patients, while others just do the best they can. But does it matter? This paper describes a review of the literature on the impact of attitudes to care and the barriers affecting the quality of care for people with HIV/AIDS by professional health care workers and other carers. Most of the reports identified were based on attitude scales, mostly unique and often unvalidated. Attitudes of health care workers based in the community, and ‘house keeping’ staff such as porters, receptionists, etc., have been neglected areas of research. There is also little information about the culture of organizations and the attitudes of individuals with HIV/AIDS to care. Only three references were found in which both patients’ and carers’ attitudes to each other were considered and none of these looked at negative feelings and their impact. There is scope therefore to investigate the attitudes of patients and carers towards each other and how this can effect the quality of care. It is anticipated that the benefits of such investigations could lead to the development of educational strategies designed to improve the quality of patient care.     

The influence of demographic variables and ward type on elderly patients' perceptions of needs and satisfaction during acute hospitalization

This article reports on a study designed to determine whether demographic characteristics of patients such as age, gender and cultural background were associated with different perceptions of the importance of and satisfaction with various aspects of nursing care. In addition, patients, their family/carer and nurses from wards specializing in aged care were compared with general medical wards to determine if there were differences in these perceptions. Results demonstrated that patients who were older (aged > 80 years), female and from aged care wards perceived that physical aspects of nursing care were more important than did patients who were younger (aged 65-80 years), male and from medical wards. Older patients and those from aged care wards were more satisfied with physical care. Nurses need to be aware of these differences and focus on physical aspects of care to ensure patient satisfaction better health outcomes.     

老年人长期护理需求分析

应用马斯洛需要层次理论分别从老年人的生理、安全、爱与归属、尊重和自我实现五个方面分析国内外老年人长期护理需求的研究内容，以期为国内建立多层次、综合化的老年人长期护理服务体系提供参考。     

ICU患者家属需求调查分析

目的了解重症监护病房(ICU)患者家属的需求状况,为维持ICU患者家属的身心健康提供依据。方法应用中文版CCFNI量表,对2所三级甲等综合医院ICU收治的70例患者家属进行问卷调查。结果 ICU患者家属需求的重要性程度由高至低依次为病情保证、获取信息、亲近患者的需求、医护人员支持、家属自身的舒适。除了婚姻状况,患者家属的一般情况与家属需求无显著性差异。结论护士应了解患者家属的需求,以达到满足患者家属需求的目的 。     

Less money, less care: how nurses in long-term care allocate hours of needed care in a context of chronic shortage

The average funding of long-term care in Quebec, Canada, currently covers < 70% of the care hours required, which means that 30% of needs are unmet. The aims of this study were to understand how nurses, when they are in a position to do so, assign care hours, which needs are unmet by care dimensions and whether dimensions with unmet needs vary with client profiles. One-hundred-and-four nurses working in long-term care facilities participated in the study. They filled out individual questionnaires containing three case studies in the form of vignettes. When obliged to cut 30% of the care hours, the nurses ensured that treatment and diagnostic methods were done as prescribed and that vital feeding and elimination functions were preserved. However, they made the choice to cut some mobility and personal-care activities and, especially, communication with patients, families and other professionals. In this, they partly follow the theoretical care prioritization approach of Lefebvre and Dupuis, who take into account the degree of discomfort caused by the situation, the problem's place in Maslow's hierarchy of needs and the availability of a solution. Thus, although the choices made by the nurses follow a logical pattern, they could result in medium-term deterioration in the functional autonomy of their older patients. The overall consequences of these decisions are discussed.     

Perceived symptoms and the supportive care needs of breast cancer survivors six months to five years post-treatment period

PurposeThis study characterized the range and levels of perceived symptoms and unmet needs reported by breast cancer survivors in the half-year to five year post-treatment period, and determined whether the symptoms can be a predictor of unmet needs.MethodsIn a cross-sectional study, 150 breast cancer survivors (mean age: 55.1 ± 8 years) at the half-year to five year post-treatment period were enrolled for analysis. The measuring scales used included the Memorial Symptom Assessment Scale (MSAS), and the Supportive Care Needs Survey Short Form (SCNS-SF34).Results88% of the survivors reported having at least one symptom, while 51% reported at least one unmet need. Lack of energy was the most prevalent symptom (47%), followed by numbness/tingling in hands/feet (41%). Most of the survivors had unmet needs in the Health care system/Information domain (37% reported at least one unmet need for help), followed by Psychological needs (29%). The mean scores for the SCNS-SF34 domains, except for sexuality, were significantly higher in the high-symptom group (mean 17.6–32.2) compared with the low-symptom group (mean 3.5–22.3) (p < 0.01). Regression of the SCNS-SF34 domain scores against the MSAS scores revealed an increase in the explained variance of from 14% to 54%.ConclusionOur results suggest that breast cancer survivors continue to experience a multitude of symptoms, and the burden of symptoms may be associated with unmet needs across a range of domains.     

Education and training for acute care delivery: a needs analysis

? Technological and clinical advances have led to increased levels of patient dependency and shorter hospital stay, such that they are now often managed on general wards ? Have staff been trained or educated for this change in focus? ? This project was designed to identify the education and training needs of health care professionals in assessing and managing acutely physically ill hospital patients, within the boundaries of one Strategic Health Authority (SHA) in the UK ? Participants identified the knowledge, skills and resources required to assess and manage acutely ill patients ? These issues may be addressed through the provision of an appropriate range of structured educational programmes and experiences with the ultimate aim of improving standards of patient care     

Elders' needs and experiences of receiving formal and informal care for their activities of daily living

Older people living in the community or institutional settings are more likely to require help with their activities of daily living, with women more likely than men to need some help. The interviews in this qualitative study were conducted with a convenience and purposive sample of 20 elders living in Southeast Washington, USA, at home or in institutional settings, receiving informal or formal health care. Findings related to personal and instrumental activities of daily living are reported and include elders' experiences and views relating to the help and assistance they receive. The majority of elders needed help with their instrumental activities of daily living, provided by informal networks, whether living at home or in institutional settings. This help constituted social care. Formal health care with personal activities of daily living was required only by a minority of elders and constituted those with the greatest disability and dependency.     

胃肠道肿瘤患者支持性照顾需求的现状及影响因素分析

目的:调查胃肠道肿瘤患者支持性照顾需求现状,并探究其影响因素.方法:采用一般资料调查表、支持性照顾需求量表对120例胃肠道肿瘤患者进行调查.结果:胃肠道肿瘤患者的支持性照顾需求得分为(96.05±27.98)分,条目总均分为(2.90±0.82)分.多元线性回归分析显示,文化程度、家庭人均月收入及年龄是影响胃肠道肿瘤患...