围产儿死亡产妇创伤后成长体验的质性研究

[目的]探讨围产儿死亡产妇的创伤后成长体验。[方法]2017年1月—2017年5月采用目的抽样法选择湖北省某三级甲等医院产科的14名围产儿死亡产妇为研究对象。采用现象学研究方法,对其进行半结构式面对面深度访谈,以Colaizzi 7步分析法分析资料。[结果]围产儿死亡母亲感知到的压力源包括病友新生儿喜悦的刺激、担忧未来是否再次怀孕、怀孕后是否会再次出现围产儿死亡、周围人对自己的看法;分析出情绪痛苦和成长体验两大主题,其中情绪痛苦包括粉碎原有世界和哀伤反应2个亚主题;成长体验包括人际关系增强、个人认知的变化及欣赏生活3个亚主题。[结论]围产儿死亡产妇除了存在负性体验外,也存在创伤后成长等正性体验。医护人员应关注产妇的心理变化,在负性情绪中正确引导其产生积极心理,及时采取相关措施帮助产妇创伤后成长,促进产妇早日回归社会并提高生活质量。     

气管内异物患儿父母照护体验的质性研究

目的探讨气管内异物患儿父母的照护体验。方法采用现象学研究方法,对10名气管内异物患儿父母进行深度半结构式访谈,并依据Miles和Hurberman提出的质性研究资料分析法分析资料。结果经过不断分析比对,共析出气管内异物患儿父母急诊入院后照护体验的4个主题,包括负性情绪满溢、冲动行为增加、不同应对方式及知识缺乏,以及后悔/自责、焦虑/恐惧、痛苦流涕、易激惹等8个亚主题。结论医护人员应及时评估气管内异物患儿父母的术前情绪,早期进行干预,使其能积极应对困境;同时,医院和社区可加强知识宣传,提高患儿父母的安全防范意识,以减少气管内异物等儿童意外事件发生。     

骨肉瘤病患照顾者创伤后成长体验的质性研究

目的：探讨骨肉瘤病患照顾者创伤后成长的过程和体验。 方法 采用质性研究中的现象学方法,以半结构式访谈的方式收集资料,按照Colaizzi内容分析法对资料予以整理分析。 结果 通过对研究资料的分析比对,骨肉瘤病患得病使其主要照顾者感知到的压力源包括照顾负担及担忧未来,析出创伤反应和成长体验两大主题,其中创伤反应包括各种认知冲突、情绪跌宕起伏、社会行为退缩三个亚主题,成长体验包括感悟人生苦乐、人际关系获益、积极有效应对三个亚主题 结论 骨肉瘤病患照顾者感知创伤产生负面情绪的同时也存在创伤后成长的积极表现,医护工作者需关注照顾者的身心需求,帮助其构建积极有效的社会支持系统,激发其潜能产生更多积极的效应,以期提高对病患的照顾质量,最终提高两者的生存质量。     

先天性白内障患儿父母照护体验的Meta整合

目的 系统评价先天性白内障患儿父母的照护体验,了解其在患儿确诊至术后康复期间的心理历程。方法 检索外文数据库The Cochrane Library、PubMed、Scopus、Web of science以及中文检索库CNKI、万方、维普、CBM数据库中的质性研究,收集先天性白内障患儿父母真实的照护体验,检索时间限定在建库至2022年12月31日。结果 共纳入8篇文献,提取38个结果,归纳成9个新类别,合成3个整合结果。整合结果为：(1)父母在照护体验上存在性别、地域差异,围手术期存在明显负性情绪与压力源,多数随诊疗进展在术后康复期发展为正性心理成长。(2)家庭关系发生改变,照护者在患儿视觉缺陷和自身能力之间寻求平衡,同时对其角色不断进行调整与适应。(3)患儿父母存在自我期望与能力不符的问题,社会支持需求迫切。结论 医护人员应积极关注先天性白内障患儿父母的真实照护体验,提供个性化的心理及信息支持,帮助其建立积极的观念,促进角色调整与适应,提高其生活质量。     

青少年系统性红斑狼疮患者父母照护体验的质性研究

目的 探讨青少年系统性红斑狼疮患者父母的照护体验。方法 采用目的抽样法，选取2021年4月至2022年3月在济南市某三级甲等医院风湿免疫科住院的青少年系统性红斑狼疮患者的父母作为研究对象，对其进行半结构式深入访谈，采用Colaizzi现象学7步分析法对访谈资料进行分析。结果 青少年系统性红斑狼疮患者父母照护体验可归纳为5个主题：负性情绪、知识缺乏、照顾负担、创伤后成长和期待未来。结论 护士应关注青少年系统性红斑狼疮患者父母的照护体验和感受，并对其提供疾病知识及心理疏导等专业支持，从而改善其心理状态，实现对患者的最佳照护。     

先天性垂体发育不良患儿父母疾病负担与护理服务需求的质性研究

目的：了解先天性垂体发育不良患儿父母疾病相关的负担体验及护理服务需求,以期为后续制订相应的护理干预方案提供依据。方法：2019年6月1日～2019年8月30日,采用目的抽样法抽取上海市某医院内分泌科就诊的10名先天性垂体发育不良患儿父母为研究对象,采用现场象学研究方法对其进行半结构式访谈,现场录音,根据Colaizzi 7步分析法对访谈资料进行分析,提炼主题。结果：本研究共提取3个主题,即患儿父母心理负担重,表现为无处诉说的压力,对患儿未来的担忧,对患儿的愧疚及对治疗信心不足;消极的应对方式,表现为隐瞒和逃避及治疗依从性不佳;多样化的需求,具体为心理支持、就医及疾病知识方面的需求。结论：先天性垂体发育不良患儿父母心理负担重,负性情绪复杂,应对方式消极,医护人员应及时给予有效的心理干预、适当的疾病知识指导,帮助其正确认识疾病,树立治疗信心,缓解心理压力,减轻其疾病相关照护负担体验,提高治疗依从性与生活质量。     

169例先天性心脏病患儿父母感知脆弱现状及影响因素分析

目的 调查先天性心脏病患儿父母感知脆弱现状,探析其影响因素。方法 采用一般资料调查表、感知脆弱程度量表、抑郁-焦虑-压力量表、领悟社会支持评价量表对169例先天性心脏病患儿父母进行调查,采用多元线性回归分析其影响因素。结果 先天性心脏病患儿父母感知脆弱总分为（5.47±3.89）分,多元线性回归分析结果显示：患儿年龄、患儿父母年龄、焦虑、社会支持家庭维度进入回归方程（P<0.05）。结论 先天性心脏病患儿父母感知脆弱处于一般水平,受患儿年龄、患儿父母年龄、焦虑水平、社会支持家庭维度的影响。医护人员应密切关注低龄患儿及年轻父母,及时评估患儿父母焦虑及社会支持水平,提供个性化、多元化健康宣教方式,注重疾病知识掌握程度反馈,拓宽患儿父母人际社交网络,促进患儿生理、心理健康良性循环发展,减轻父母负担,改善先天性心脏病患儿父母感知脆弱水平。     

先天性心脏病术后延迟恢复患儿父母心理体验和需求的质性研究

目的探讨先天性心脏病术后延迟恢复患儿父母的心理体验和需求。方法本研究采用质性研究中的现象学研究方法。采取目的抽样法, 于2019年10—11月在中国医学科学院阜外医院选取符合纳入标准的先天性心脏病术后延迟恢复患儿父母为研究对象, 对患儿父母进行半结构式访谈, 应用Colaizzi 7步分析法分析资料。结果最终纳入13名先天性心脏病术后延迟恢复患儿父母。根据访谈结果共提炼出4个主题, 分别为延迟恢复患儿父母负性心理体验、延迟恢复患儿父母正性心理体验及期望变化、延迟恢复患儿父母经济负担沉重、延迟恢复患儿父母多样化需求。结论患儿延迟恢复期间, 父母的心理体验复杂, 需求多样化。护理人员应识别并重视患儿父母负性心理体验的原因, 及时疏导其负性情绪, 多方面强化正性心理体验;协助父母寻求社会帮助, 减轻身心压力;通过提供优质的护理服务及多途径信息支持等满足父母多样化的需求。     

川崎病患儿父母照护体验的质性研究

[目的]深入了解川崎病患儿父母照护患儿过程中的体验。[方法]运用质性现象学研究方法,对20例川崎病患儿父母进行深度的半结构访谈,并采用Colaizzi的现象学分析法进行分析。[结果]通过对访谈资料进行分析,得出负性情绪、知识缺乏、疾病相关知识重复提供、经济负担重4个主题。[结论]深入了解川崎病患儿父母的真实照顾体验,有利于护理人员对其提供专业照护、知识指导及心理疏导,以促进其身心健康和患儿康复,从而更好地实现优质护理。     

儿童及青少年脊柱肿瘤患儿父母负性情绪的质性研究

目的了解儿童及青少年脊柱肿瘤患儿父母的负性情绪和压力。方法采用目的抽样法,选取2015年7-12月第二军医大学附属长征医院就诊的17名脊柱肿瘤患儿父母为访谈对象,运用半结构式访谈,并采用Colaizzi的现象学资料7步分析法对访谈资料进行整理分析。结果分析出5大主题,即情绪反应复杂、承受压力大、担心方面多、影响范围广、照顾需求多样化。结论脊柱肿瘤患儿父母有焦虑、紧张等负性情绪,承受一定的压力。护理人员应关注患儿父母的心理问题,提供疾病相关照护知识培训,以提高其心理承受能力,使其能给患儿带来更好的照护与支持。同时,护士也要掌握心理护理技巧,为患儿父母提供个性化的心理护理,而构建医患交流网络平台可能是今后医务人员提供心理辅导和感情支持的有效途径。     

烧伤患儿家长创伤后成长的调查

目的：研究烧伤患儿家长在创伤事件后心理方面的成长，为烧伤患儿家长的心理干预提供依据。方法采用自行设计的基本信息调查表和创伤后成长量表对310例治愈即将出院的烧伤患儿的家长进行问卷调查。结果烧伤患儿家长创伤后成长评定量表总分（71．75±6．12）分，其中人际关系维度（22．43±3．27）分，新的可能性维度（10．03±1．47）分，个人力量维度（16．82±3．95）分，精神改变维度（8．10±1．72）分，对生活的欣赏维度（14．37±2．46）分。家长职业、文化程度、家庭月收入和患儿医疗费用支付方式、烧伤面积、预后效果对患儿家长影响较大，差异有统计学意义（ F值分别为7．345，3．289，3．856，7．426，5．245，15．986；P＜0．05）。结论患儿家长在创伤事件后都能获得不同程度的成长。     

乳腺癌患者性生活体验质性研究的Meta整合

目的:系统评价乳腺癌患者的性生活体验.方法:检索PubMed、The Cochrane Library、Web of Science、EMbase、PsycINFO、CINAHL、CBM、中国知网(CNKI)、万方(WanFang Data)、维普中文期刊全文数据库(VIP),纳入所有符合要求的质性研究,采用Meta整...     

Parents’ experiences of their teenage children’s parenthood: An interview study

In this study, we described and analyzed parents’ experiences of teenage parenthood and the provision of support to their teenage children who had recently have become parents. A qualitative method was used. In‐depth interviews with 24 participants were conducted, all parents of teenage parents. Data were analyzed using content analysis; four themes and 11 subthemes were identified. The results show that parents’ norms and values were strongly influenced by their religious beliefs. The participants had mixed emotions and reactions to their teenage children’s parenthood. Also participants were sources of support to the teenage parents and assisted them in their transition to parenthood. However, the participants also expressed the importance that their teenage children continue their education and avoid repeated pregnancies. This study highlights how emotional, instrumental, and informational support provided by parents to their teenagers can assist the latter in their transition to parenthood. In their work with teenage parents, healthcare providers can benefit from teenage parent's own parents involvement and experiences.     

6岁以下发育障碍患儿祖父母创伤后成长体验的质性研究

目的 挖掘6岁以下发育障碍患儿祖父母创伤后成长的体验,为制订干预方案、促进其心理成长提供依据。方法 采用目的抽样法,选取2021年10月—2022年1月在重庆市某三级甲等医院接受康复治疗的12名发育障碍患儿祖父母作为研究对象,采用半结构式访谈和面对面非语言行为观察法收集资料,借助Goo Seeker软件整理资料,并采用Colaizzi 7步分析法对资料进行分析。结果 共提炼5个主题：(1)积极心理衍生,包括感知患儿进步、憧憬美好未来、正向应对压力;(2)新的人生感悟,包括坦然接纳现实、转移生活重心、更加珍视健康;(3)个人力量增强,包括心理韧性提升、自我效能感增强、乐观与希望;(4)支持系统增强,包括情感支持和社会支持增强;(5)人际关系和谐,包括利他行为、与他人关系改善。结论 6岁以下发育障碍患儿祖父母有多方面的创伤后成长体验,医护人员可通过团体心理辅导、组建心理支持小组、加强疾病宣教等方式帮助其获得更多的社会支持,使其有效应对压力,从而促进创伤后成长。     

Quantitative and Qualitative Evaluations of the Enhanced Logo-autobiography Program for Korean-American Women

This study extends Bernstein et al.'s (2016) investigation of the effects of the Enhanced Logo-autobiography Program on Korean-American women's depressive symptoms, coping strategies, purpose in life, and posttraumatic growth by analyzing quantitative and qualitative data. This study's participants significantly improved on quantitative measures of depression, coping strategies, purpose in life, and post-traumatic growth at eight weeks post-intervention and follow-up. The qualitative content analysis revealed 17 themes with five essential themes. The program's activity to promote purpose in life through posttraumatic growth facilitated participants' recovery from traumatic experiences. Standardized guidelines are needed to conduct this program in Korean community centers.     

额肌悬吊术治疗重度先天性上睑下垂患儿的护理体会

目的探讨额肌悬吊术治疗重度先天性上睑下垂患儿的护理体会。方法选取我院收治的157例重度先天性上睑下垂患儿为研究对象,所有患儿均行额肌悬吊术,从术前准备、术中及术后并发症预防等方面进行护理。统计患者术后并发症发生情况及患儿家长对护理的满意度,评估患儿术后生活质量。结果患儿术后总并发症发生率为5.73%患儿及家长总满意度高。结论重度先天性上睑下垂患儿围术期的护理应注意加强对患儿的术前评估、针对性的心理护理,术后积极处理患儿的相关并发症,密切关注患儿病情变化,做好眼部护理,以便更好的促进患儿视力矫正,促进患儿康复。     

Patients' experiences of the impact of chronic back pain on family life and work

Purpose.?The emotional distress caused by pain is one of the most disruptive aspects of living with the condition. This study investigates how individuals experience pain and its consequences for family life and work.

Method.?Unstructured interviews, using the ‘Framework’ approach with topic guide, were recorded and transcribed. Patients were sampled for age, sex, ethnicity and occupation from new referrals with spinal pain (SP) to a rheumatology outpatient clinic. Eleven patients (five males and six females) were interviewed in English (n?=?9) or their preferred language (n?=?2). Interviews were read in depth twice to identify the topics. Data were extracted in phrases and sentences using thematic content analysis.

Results.?Emergent themes reported were relationships with: spouses and partners (n?=?7), children/parents (n?=?6), with other family and friends (n?=?7) and work-related issues (n?=?11). Patients valued support from family but expressed concerns about causing them worry. Work-related issues included physical and emotional efforts to keep working when in pain, fear of losing employment and financial problems.

Conclusion.?Patients expressed anxiety about how their pain affected other family members, regret at losing full work capacity and worry about financial consequences. The lived experience of chronic SP has ramifications that go beyond the individual, reaching into work and social relationships.     

Lived experiences with unmet supportive care needs in pediatric cancer: Perspective of Chinese children and their parents

ObjectiveUnmet supportive care needs(SCNs) impact pediatric cancer patients and their parents. This study aimed to explore the unmet SCNs from the perspective of Chinese children with cancer and their parents through lived experiences.MethodsThe data of this study was collected using face-to-face semi-structured interviews. The participants were recruited from the oncology units of three children’s hospitals in China’s cities (Shanghai, Guangzhou, and Hefei) from October 2020 to December 2021. Data were analyzed using Colaizzi’s seven-step phenomenological analysis method.ResultsEight pediatric cancer patients and twenty-four parents were enrolled in the study. Four main themes and eight subthemes (both children’s and parent’s perspectives) were generated: 1) meeting the ongoing needs along the cancer trajectory (can you tell me what comes next; our needs are growing); 2) communicating with a family focus (they only talk to my parents; let each family member have a voice); 3) providing care beyond the treatment (I am bigger than my body [the children’s needs for emotional consolidation and information about their prognosis]; there are things beyond treatment); 4) getting support from the community (I am not a monster [the children were unhappy about being treated differently]; we want to connect with the resources near us).ConclusionThis study revealed multiple unmet SCNs from the perspective of Chinese children with cancer and their parents. The findings call for comprehensive and in-depth supportive care beyond treatment, integration of the family member voice in pediatric cancer care, and a coordinated pediatric cancer support mechanism in the Chinese healthcare system.     

Voices of Parents of Children with Neurofibromatosis 1(NF)

This presentation, phase I of an American Nurses’ Foundation funded study, is based on unanalyzed qualitative data from a prior study (Dylis, 2003) exploring family functioning in a large international sample of parents of children with Neurofibromatosis 1 (NF), the most common single gene disorder involving the nervous system. The purpose of this study was to identify themes from parental responses to two questions: ‘What do parents of children with NF want from health care providers?’ and ‘What were parental experiences at the initial time of their child’s NF diagnosis.’ Preliminary content analysis themes included parental desires for provider sensitivity and for providers to provide holistic care, accurate information, appropriate communication, referrals, support, and respect. Diagnostic experience themes were symptom management based on the NF diagnostic criteria or specific system manifestations, expressed concern from others resulting in health care intervention, and stories of diagnostic delays, inaccuracies, and dismissal of parental knowledge. The results from this phase might provide beginning qualitative evidence to assist in the future development of individualized nursing interventions aimed at improving the quality of life for families having a member(s) with NF. Knowledge of parental differences and similarities is essential in developing these interventions.