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From breaking point to breakthrough during the ICU stay: A qualitative study of family members’ experiences of long‐term intensive care patients’ pathways towards survival 下载免费PDF全文
Hege S Haugdahl Regina Eide Ingeborg Alexandersen Tove Engan Paulsby Berit Stjern Stine Borgen Lund Gørill Haugan 《Journal of clinical nursing》2018,27(19-20):3630-3640
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Predicting institutional long‐term care admission in dementia: a mixed‐methods study of informal caregivers’ reports 下载免费PDF全文
Basema Afram MSc Hilde Verbeek PhD Michel H.C. Bleijlevens PhD PT David Challis PhD Helena Leino‐Kilpi PhD RN Staffan Karlsson PhD RN Maria E. Soto MD Anna Renom‐Guiteras MD Kai Saks MD PhD Adelaida Zabalegui PhD RN FEANS Jan P.H. Hamers PhD RN the RightTimePlaceCare consortium 《Journal of advanced nursing》2015,71(6):1351-1362
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Alida HPM de Rooij Katrien G Luijkx Nele Spruytte Peggy MJ Emmerink Jos MGA Schols Anja G Declercq 《Journal of clinical nursing》2012,21(21-22):3106-3116
Aims and objectives. To provide insight into family caregiver perspectives on social relations within the ‘caregiving triangle’ between family caregiver, professional caregiver and elderly resident with dementia. Results were compared between traditional versus small‐scale long‐term care settings in the Netherlands and Belgium. Background. Residential dementia care is shifting towards a more holistic and person‐centred approach. Until now, little is known about family caregiver perspectives. Design. A quasi‐experimental longitudinal design. Methods. This study was part of a larger research project focusing on the quality of life of residents with dementia in traditional and small‐scale settings (n = 179). This study focused on family caregivers related to these residents (n = 64). They filled in a questionnaire containing 25 items (baseline and after 12 months) related to their perspectives on the interaction within the ‘caregiving triangle’. Analyses were performed using mixed models and logistic regression. Results. Compared to traditional settings, family caregivers of relatives with dementia living in small‐scale settings had more contact with the professional caregivers, were more satisfied with this contact and felt that staff paid more attention to their feelings as family members. They also reported that staff showed better listening skills towards the residents. Furthermore, compared to those in Belgium, family caregivers in the Netherlands perceived staff to be less hurried and more accepting of help from family and felt that staff more often takes the resident seriously. Conclusion. In the move towards more person‐centred care for residents with dementia, this study finds preliminary evidence for the importance of integrating the family perspective. Relevance to clinical practice. Gaining more insight into the perspectives of family caregivers on the social relations within the ‘caregiving triangle’ may provide knowledge about the importance of the social system surrounding elderly residents with dementia and can provide pointers for future research. 相似文献
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Inter‐country exploration of factors associated with admission to long‐term institutional dementia care: evidence from the RightTimePlaceCare study 下载免费PDF全文
Hilde Verbeek PhD Gabriele Meyer PhD RN David Challis PhD Adelaida Zabalegui PhD RN Maria E. Soto MD PhD Kai Saks MD PhD Helena Leino‐Kilpi PhD RN Staffan Karlsson PhD RN Jan P.H. Hamers PhD RN the RightTimePlaceCare Consortium 《Journal of advanced nursing》2015,71(6):1338-1350
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Deborah Parker PhD MSocSci BA RN Karen Clifton MAppSc BA Honours Anthony Tuckett PhD MA BN RN Helen Walker RN BHSc Nsg MN Grad Cert Ed. Elizabeth Reymond MBBS FRACGP FAChPM PhD Teresa Prior RN Grad. Dip Pall Care Kristien McAnelly RN BN NP Peter Jenkin RN BN NP Fiona Israel RN MCouns Kim Greeve RN BA Honours 《International journal of older people nursing》2016,11(2):140-148
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Aims and objectives. To explore the process of development of collaborative relationship between family caregivers of institutionalized elders with dementia and nursing home staff in Taiwan. Background. Evidence suggests that family members are continuously involved in the lives of loved ones and have not given up their roles as caregivers after the institutionalization of a family member. Little is known, however, about how family caregivers develop a collaborative relationship with nursing home staff, particularly in Asian countries. Design and methods. Grounded theory methodology was used. Data were collected via interviews and observations from 11 family caregivers of patients who were suffering from dementia and living in an institution for persons with dementia in northern Taiwan. Data were analysed by constant comparative analysis. Results. Findings revealed that ‘institutional social penetration’ was the process most used by family caregivers to achieve an harmonious collaborative relationship with the nursing home staff. Institutional social penetration is a dynamic process, which includes three components: self‐disclosure, evaluation of care and penetration strategies. Family caregivers, who had developed a ‘socially penetrating’ relationship with the nursing home staff, were more likely to disclose information in more breadth and depth, to receive positive care evaluations and to adopt multiple effective penetration strategies. Conclusions. Institutional social penetration between family caregivers and nursing home staff can sensitize healthcare providers to meet the family's needs during the placement of their loved one and provide a basis for developing intervention strategies. Relevance to clinical practice. Findings of this study may help healthcare providers to understand the ways in which collaborative relationships develop between the families of elders with dementia and nursing home staff. Interventions can be developed to facilitate self‐disclosure of both the family members and nursing home staff through timely feedback and familiarising family caregivers with different penetration strategies. 相似文献
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