Recovery in England: transforming statutory services?

English mental health policy has explicitly supported a focus on recovery since 2001. More recently, this has been elaborated through policy support for social inclusion, employment and well-being. We review several drivers for this political orientation, including a refocusing of the role of health services as a whole from treating illnesses to helping people to make the most of their lives, the shift to greater power for the individual, reflected in personal social care and personal health budgets, and the evidence informing clinical guidelines issued by the National Institute for Health and Clinical Excellence (NICE). A disjunction remains between policy and practice, with organizational policies espousing a recovery orientation and teams re-branding as 'recovery and support' teams, whilst pursuing clinical practices which prioritize symptomatic treatment rather than recovery support. The next phase of development in English statutory mental health services is therefore bridging this gap, through organizational transformation in mental health services towards a focus on recovery. We describe two funded initiatives to support this process of organizational transformation. The first (ImROC) is a national initiative to develop a pro-recovery organizational climate. The second (REFOCUS) is a multi-site cluster randomized controlled trial (ISRCTN02507940) investigating a team-level pro-recovery intervention.     

Family care of the dementing elderly

Abstract

English mental health policy has explicitly supported a focus on recovery since 2001. More recently, this has been elaborated through policy support for social inclusion, employment and well-being. We review several drivers for this political orientation, including a refocusing of the role of health services as a whole from treating illnesses to helping people to make the most of their lives, the shift to greater power for the individual, reflected in personal social care and personal health budgets, and the evidence informing clinical guidelines issued by the National Institute for Health and Clinical Excellence (NICE). A disjunction remains between policy and practice, with organizational policies espousing a recovery orientation and teams re-branding as ‘recovery and support’ teams, whilst pursuing clinical practices which prioritize symptomatic treatment rather than recovery support. The next phase of development in English statutory mental health services is therefore bridging this gap, through organizational transformation in mental health services towards a focus on recovery. We describe two funded initiatives to support this process of organizational transformation. The first (ImROC) is a national initiative to develop a pro-recovery organizational climate. The second (REFOCUS) is a multi-site cluster randomized controlled trial (ISRCTN02507940) investigating a team-level pro-recovery intervention.     

Mental health and psychosocial aspects of disaster preparedness in Bangladesh

The aim of this paper is to highlight the activities and observations of some NGOs and some dedicated researchers in the field of psychosocial consequences of disaster in Bangladesh, particularly in the coastal areas and the tornado-affected areas of the district of Tangile and Jamalpur during the last two decades. Some of the advantages of the non-governmental organizations' (NGOs) work in relief and development were their linkages with grass-roots people ensuring access to the community and community participation, the flexible approach of work, ability and willingness to learn from people and ability to connect people's lives with their realities. The most remarkable survey carried out by the Social Assistance and Rehabilitation for the Physically Vulnerable (SARPV-Bangladesh) after the 1996 tornado showed, on average, that women are more affected psychologically than men; 66% of the total sample in the disaster area were psychologically traumatized and required emergency services. The study supports the ideas that any disaster will have mental health consequences. Providing scientific psychological services is essential for real recovery from such a disaster. In developing countries like Bangladesh, limitations of mental health professionals and inadequate knowledge and practice about disaster mental health among the medical and paramedical staff, may lead to delays in the psychosocial management and rehabilitation of the survivors. To respond properly to a serious type of disaster like a cyclone or a tornado or recurrent devastating flood, the disaster mental health team should be aware of the socio-economic status, local culture, tradition, language and local livelihood patterns. Integration of the team with the network of various governmental and non-governmental organizations is essential to provide mental health services effectively.     

Mental health and psychosocial aspects of disaster preparedness in Bangladesh

The aim of this paper is to highlight the activities and observations of some NGOs and some dedicated researchers in the field of psychosocial consequences of disaster in Bangladesh, particularly in the coastal areas and the tornado-affected areas of the district of Tangile and Jamalpur during the last two decades. Some of the advantages of the non-governmental organizations’ (NGOs) work in relief and development were their linkages with grass-roots people ensuring access to the community and community participation, the flexible approach of work, ability and willingness to learn from people and ability to connect people's lives with their realities. The most remarkable survey carried out by the Social Assistance and Rehabilitation for the Physically Vulnerable (SARPV-Bangladesh) after the 1996 tornado showed, on average, that women are more affected psychologically than men; 66% of the total sample in the disaster area were psychologically traumatized and required emergency services. The study supports the ideas that any disaster will have mental health consequences. Providing scientific psychological services is essential for real recovery from such a disaster. In developing countries like Bangladesh, limitations of mental health professionals and inadequate knowledge and practice about disaster mental health among the medical and paramedical staff, may lead to delays in the psychosocial management and rehabilitation of the survivors. To respond properly to a serious type of disaster like a cyclone or a tornado or recurrent devastating flood, the disaster mental health team should be aware of the socio-economic status, local culture, tradition, language and local livelihood patterns. Integration of the team with the network of various governmental and non-governmental organizations is essential to provide mental health services effectively.     

Recovery in Canada: toward social equality

This article reviews evolution of the recovery paradigm in Canadian mental health. We first trace the origins and development of the recovery concept through the literature, followed by an examination of how the recovery concept has been implemented in national and provincial mental health policy since publication of the 2006 Kirby Commission Report. Based on consultations with Canadian policymakers, and an examination of available policy documents, we explore how the dual theme of 'recovery' and 'well-being', adopted by the Mental Health Commission of Canada in its 2009 strategy: Toward Recovery and Well-being - A Framework For a Mental Health Strategy has subsequently played out in mental health policymaking at the provincial level. Findings reveal mixed support for recovery as a guiding principle for mental health reform in Canada. While policies in some provinces reflect widespread support for recovery, and strong identification with the aspirations of the consumer movement; other provinces have shifted to population-based, wellness paradigms that privilege evidence-based services and professional expertise. The recognition of social equality for people who experience mental illness emerges as an important value in Canadian mental health policy, cutting across the conceptual divide between recovery and well-being.     

Not an ordinary life

In this country, and elsewhere, there has been a marked shift towards community care and away from institutional care for people with mental handicaps as well as those who are mentally ill. Many aspects of these changes are promising for the people concerned, but the transition also involves some difficulties and challenges for them as well as for health and social services. The article presents one man's experience of life in hospital and discusses the need to ensure that adequate support services are provided for people like him, to maintain them satisfactorily in their new way of life.     

Exorcising memories of internalised stigma: The demons of lived experience

Public stigma and self-stigma impact negatively on the lives of people with mental health issues. Many people in society stereotype and discriminate against people with mental ill-health, and often this negative process of marginalisation is internalised by people with lived experiences. Thus, this negative internalisation leads to the development of self-stigma. In this article, I reflect on my own experiences of shame and self-stigma as a person with mental ill-health socially bullied by peers from my community and social groups. I present a personal narrative of both public and self-stigmatisation which I hope will enable me to exorcise memories of internalised stigma, which are encountered as my demons of lived experience. Using reflexivity, a process used widely in health and social care fields, I consider how social bullying shattered my fragile confidence, self-esteem, and self-efficacy in the early days of my recovery; the impact of associative stigma on family members is also explored. Following this, the potential to empower people who experience shame and stigma is explored alongside effective anti-stigma processes which challenge discrimination. I connect the concept of recovery with the notion of empowerment, both of which emphasise the importance of agency and self-efficacy for people with mental ill-health. Finally, I consider how the concepts of empowerment and recovery can challenge both the public stigma held by peers in the community and the self-stigma of those with lived experiences.     

Bridging community intervention and mental health services research

OBJECTIVE: This article explores the potential of community intervention perspectives for increasing the relevance, reach, and public health impact of mental health services research. METHOD: The authors reviewed community intervention strategies, including public health and community development and empowerment interventions, and contrast community intervention with practice-based quality improvement and policy research. RESULTS: A model was proposed to integrate health services and community intervention research, building on the evidence-based strength of quality improvement and participatory methods of community intervention to produce complementary functions, such as linking community-based case finding and referral with practice-based quality improvement, enhanced by community-based social support for treatment adherence. CONCLUSIONS: The community intervention approach is a major paradigm for affecting public health or addressing health disparities. Despite challenges in implementation and evaluation, it represents a promising approach for extending the reach of mental health services interventions into diverse communities.     

Chronicity Reconsidered: Improving Person-Environment Fit Through a Consumer-Run Service

In the past, the term chronic referred to people who had serious mental illness and who typically received long-term care in a state mental hospital. Although this term recently has fallen out of favor, we resurrect the term here, not to revive a demeaning euphemism, but rather to redefine it as the result of a poor person-environment fit between the complex and challenging needs of those with serious psychiatric disorders and a community-based service system that often is ill-equipped to treat them. Previous research indicates that recurrent acute hospitalizations and an inability to establish or maintain tenure in the community may be due to a disconnection from community-based services and supports, social isolation, and demoralization. One promising approach to addressing these issues is that of peer support. To illustrate the potential utility of peer support in improving person-environment fit and decreasing the chronicity of the subsample of people who continue to have difficulty in establishing viable footholds in the community, we describe a peer support-based program, the Welcome Basket, developed, staffed, and managed entirely by mental health consumers. Preliminary analyses that evaluate Welcome Basket's effectiveness are included, and we discuss the implications of these data for future research and program development in this area.     

Experiences of clients who have made the transition from the psychiatric hospital to community service provision: a phenomenological approach

Deinstitutionalization, the replacement of long-stay hospitals with community-based alternatives, can have favourable outcomes for people experiencing mental health problems. However, in many cases the community services needed for comprehensive care are not available. This raises the question as to whether the move from the long-stay hospital has been positive or not for health of clients. Therefore, it is important to examine clients' lived experiences of such a move. This is the aim of the present study which was based on a phenomenological approach. The results indicate that participants experienced a significant change in their lives in relation to their psychological, physical and social health and well-being. Freedom for self-determination and living in an environment that gives them autonomy is at the core of their personal experience. It could be argued that deinstitutionalization generated a shift in client experience in relation to their health and well-being.     

The Delivery of Mental Health Services in the 21st Century: Bringing the Community Back In

The community mental health movement of the 1960s enjoyed widespread public support but poorly served its intended target population of seriously mentally ill individuals because: (1) its professional values and technology were, at least initially, not well-oriented toward serving people with severe mental illness; (2) organizational structures linking Community Mental Health Centers with State Mental Health Agencies, State Hospitals, and other relevant service agencies were lacking; (3) ideologically driven aspirations diverted energies and resources into diffuse goals related to the achievement of social justice; and (4) performance objectives were not operationally defined or monitored. Since that time professional technologies and organizational linkages have substantially improved, but there has been a loss of public support for safety net services for the least well off, in part due to a general ascendence of individualist market values, declining civic engagement and reduced support for specialized services for the disadvantaged. A new community mental health movement would be less oriented towards stimulating broad community change, and more narrowly focused on building support among decision makers and the public at large to expand the availability of costly but effective and improved services for people with severe and persistent mental illness.     

Chile mental health country profile

This paper describes main facts about Chile starting with key socio-demographic, socio-economic, political, environmental, epidemiological, social support and social pathology aspects that characterize the context in which current mental and neurological policy and programmes have been put in place since 2000, as part of the National Health Plan and Health Sector Strategy Plan. The ‘National Plan for Mental Health and Psychiatry’, using a community psychiatry approach, has been partially implemented for people covered by the Public Health Insurance, which comprises 62% of the Chilean population (people with lower income). This paper also describes: the management, population needs and demands, financial resources, human resources in primary care, mental health specialist care and community-based care, physical capital, social capital, provision and processes, and outcomes of the plan. Strengths are analyzed, like the health reform, including its values and principles, the active participation of consumer and family groups as well as mental health NGOs, access to mental health services through primary care, quality assurance of the mental health services delivered to the population and progressive development of a culture of respect for human rights, including those of people with mental illnesses. Finally, difficulties for the advance of mental health care are also enumerated: the low priority still given to mental health compared with physical health by the country's leaders, the insufficient emphasis on mental health in both undergraduate and postgraduate professional training, the strong stigma and discrimination associated with mental illness in the general population and the advocacy by some mental health professionals of the traditional model of care (role of the psychiatric hospital).     

Chile mental health country profile

This paper describes main facts about Chile starting with key socio-demographic, socio-economic, political, environmental, epidemiological, social support and social pathology aspects that characterize the context in which current mental and neurological policy and programmes have been put in place since 2000, as part of the National Health Plan and Health Sector Strategy Plan. The 'National Plan for Mental Health and Psychiatry', using a community psychiatry approach, has been partially implemented for people covered by the Public Health Insurance, which comprises 62% of the Chilean population (people with lower income). This paper also describes: the management, population needs and demands, financial resources, human resources in primary care, mental health specialist care and community-based care, physical capital, social capital, provision and processes, and outcomes of the plan. Strengths are analyzed, like the health reform, including its values and principles, the active participation of consumer and family groups as well as mental health NGOs, access to mental health services through primary care, quality assurance of the mental health services delivered to the population and progressive development of a culture of respect for human rights, including those of people with mental illnesses. Finally, difficulties for the advance of mental health care are also enumerated: the low priority still given to mental health compared with physical health by the country's leaders, the insufficient emphasis on mental health in both undergraduate and postgraduate professional training, the strong stigma and discrimination associated with mental illness in the general population and the advocacy by some mental health professionals of the traditional model of care (role of the psychiatric hospital).     

Australian Indigenous mental health.

Understanding the complexity of another culture's health concerns is fraught with difficulty, yet 'ways forward' abound. Many researchers, including Indigenous people, have recorded cultural understandings of health, and made recommendations that have influenced the planning of Indigenous peoples' mental health care. Indeed, there is anticipation with vision for the future. Australian Indigenous people have suffered many losses, which have resulted in much social unrest, and mental and spiritual sorrow. The difficulty of belonging and adjusting to two different cultural contexts has led to particular physical health and mental health concerns for some. Health for Indigenous people is viewed within a holistic and community lifestyle framework, which is related to both past and present issues, and it is not necessarily individualized or compartmentalized. A closer liaison between the health traditions of both cultures, working together with education, good will and understanding of each other's health business, and working together within mainstream health services may assist with healing, reconciliation and improved Aboriginal holistic health.     

An analysis of the definitions and elements of recovery: a review of the literature

As mental health recovery gains traction, many people have put forward varying definitions. Few attempts have been made to create a dimensional analysis of the recovery literature that assesses the growing consensus about what recovery is or what its definition should entail. This paper incorporates an ecological framework to take the individual's life context into account while emphasizing both the reestablishment of one's mental health (i.e., first order change) and the mitigation of the oppressive nature of barriers imposed by the greater community (i.e., second order change) so that people may experience social integration and community inclusion.     

Usefulness of the construct of social network to explain mental health service utilization by the maori population in new zealand

This article briefly reviews the literature on the relationship between social network and mental health, and presents a theoretical framework outlining the role social networks may play in explaining the differential mental health service utilization rates between Maori and European people of New Zealand. By buffering individuals from the ill effects of stressful events, social networks may have a protective effect on people's mental health. In addition, social networks influence the way people with mental illnesses use mental health services. An inverse relationship between the size of an individual's social network and the rate of utilization of in-patient services has been reported. Despite having a larger and presumably more supportive social networks, Maori are over-represented in mental health service utilization statistics. Using the Maori example, we demonstrate that ethnic differences exist in the structure of social networks and the provision of social support to their members. Such differences may be based on the degree of emphasis placed on kinship or on individualism by cultures and on the receptivity or prejudice of the host community. We examine the sources of stress on Maori social networks that may adversely affect the network's ability to support its members experiencing mental illnesses. Caution must be exercised in using service utilization rates as measures of the mental health needs of different ethnic groups because of problems with help seeking and the detection of mental health issues in different ethnic groups.     

Peer support among adults with serious mental illness: a report from the field

Peer support is based on the belief that people who have faced, endured, and overcome adversity can offer useful support, encouragement, hope, and perhaps mentorship to others facing similar situations. While this belief is well accepted for many conditions, such as addiction, trauma, or cancer, stigma and stereotypes about mental illness have impeded attempts on the part of people in recovery to offer such supports within the mental health system. Beginning in the early 1990s with programs that deployed people with mental illness to provide conventional services such as case management, opportunities for the provision and receipt of peer support within the mental health system have proliferated rapidly across the country as part of the emerging recovery movement. This article defines peer support as a form of mental health care and reviews data from 4 randomized controlled trials, which demonstrated few differences between the outcomes of conventional care when provided by peers versus non-peers. We then consider what, if any, unique contributions can be made by virtue of a person's history of serious mental illness and recovery and review beginning efforts to identify and evaluate these potential valued-added components of care. We conclude by suggesting that peer support is still early in its development as a form of mental health service provision and encourage further exploration and evaluation of this promising, if yet unproven, practice.     

Recovery from schizophrenia and the role of evidence-based psychosocial interventions

Recovery is the new vision for mental health services, in which two definitions of recovery dominate. Firstly, recovery is an outcome; research suggests that many people with serious mental illness learn to cope with their disabilities so they can achieve major life goals related to independent living. Secondly, recovery is a process; it reintroduces such important values as hope, empowerment and goal orientation into the service system. Both definitions have data that support its assertions, suggesting that an integration of the two offers the most complete and effective picture of recovery. Psychosocial interventions integrated with psychopharmacological strategies have been shown to most effectively help individuals recover. Effective interventions are those that are evidence based and include, illness management, supported employment, assertive community treatment, services to families and dually diagnosed services.     

Identifying the core competencies of community support providers working with people with psychiatric disabilities

The study was intended to identify core competencies for community support providers working with people with psychiatric disabilities. Using multiple methods developed from previous research in the field of developmental disabilities, 18 consumers receiving services and 16 staff members from two mental health community support programs identified a list of 68 competencies that included personal attributes, knowledge, and skills. Based on a card sort task, 34 consumers receiving services and 34 support workers from six mental health community support programs rated 59 of the 68 competencies as being either absolutely necessary or desirable. Results of a second card sort task found that a majority of competencies identified as being needed pre-employment were personal attributes consistent with adopting a person-centered approach. Competencies categorized as to be learned on the job involved special knowledge and skills specific to working with people with psychiatric disabilities. The range of personal attributes, knowledge, skills represented in the identified competencies reflects the complexity of contemporary mental health community support. Findings are indicative of the need for specialized training and supervision that has not been typically available in the community mental health sector.     

Measuring recovery in mental health services

An international policy goal is to orientate mental health services around the support of 'recovery': the development of new meaning and purpose in one's life, irrespective of the presence or absence of symptoms of mental illness. Current progress towards a recovery orientation in mental health services is summarized, indicating that pro-recovery policy is in advance of both scientific evidence and clinical practice. Key evaluation challenges are outlined, and indicators of a recovery focus are described. These include quality standards, consumer-clinician interaction styles, and belief and discourse markers. This underpins a proposal for a new approach to service evaluation, which combines attainment of objectively-valued social roles and of subjective-valued personal goals. This approach has applicability as a methodology both for clinical trials and routine practice.