On the 10th anniversary of the organization of the American Academy of Hospice and Palliative Medicine (AAHPM): the first 10 years

The American Academy of Hospice and Palliative Medicine (originally chartered as the Academy of Hospice Physicians in 1988) is an organization of physicians devoted to advancing hospice and palliative medicine in the United States. The academy's mission is "physicians dedicated to promoting quality hospice care for the terminally ill through medical education, research, and training." The academy obtained specialty recognition from the AMA in 1996 and became the first physicians' group to publish its position on physician-assisted suicide in 1991 and again in 1997.     

Acupuncture is underutilized in hospice and palliative medicine

Acupuncture is a complementary and alternative medical modality. A considerable body of acupuncture research has accumulated since 1998. Acupuncture has been integrated into palliative care settings in the United Kingdom but is yet to be widely offered in the United States. The literature was searched to identify clinical trials involving acupuncture, palliative care, hospice, chronic obstructive pulmonary disease, bone marrow, and cancer. Twenty-seven randomized controlled clinical trials of acupuncture were found that reported on conditions common to the hospice and palliative care setting, including dyspnea, nausea and vomiting, pain, and xerostomia, and 23 reported statistically significant results favoring acupuncture use for the conditions investigated. Acupuncture is safe and clinically cost-effective for management of common symptoms in palliative care and hospice patients. Acupuncture has potential as adjunctive care in palliative and end-of-life care, and the evidence warrants its inclusion in reimbursed palliative and end-of-life care in the United States.     

End-of-life care: improving quality of life at the end of life

PURPOSE/OBJECTIVES: The purpose of this article is to identify barriers and interventions that influence quality of life at the end of life. PRIMARY PRACTICE SETTINGS(S): Primary care, acute inpatient care, case management, and end-of-life care settings. FINDINGS/CONCLUSION: Death and dying affects the whole family, not just the individual who is dying. Early identification and recognition of end-of-life care choices heavily influence the quality of life an individual experiences during the dying process. Unfortunately, delaying end-of-life care plans is common. Over the years, the social structure and family structure have changed leaving many patients and families searching for viable end-of-life care options. Advancements in technology have affected the way medical professionals approach the end of life making a difficult decision for patients and families even more difficult by offering medical interventions that may not be necessary. To steer end-of-life care toward evidence-based practice standards, there needs to be additional research on the effectiveness of the various types of care available. Because case managers are often on the front lines of communicating and arranging end-of-life care, case managers need a clearer understanding of end-of-life care choices and how to communicate these choices to patients and families. The hospice and palliative care movements have been instrumental in increasing the understanding of end-of-life care and in providing patients alternatives to dying in the hospital. IMPLICATIONS FOR CASE MANAGEMENT PRACTICE: * Only 25% of patients eligible for hospice actually enter hospice programs.* The average time spent in hospice is 3 weeks.* The most significant barrier in coordinating and providing end-of-life care is inadequate communication.* Early discussion of prognosis and end-of-life care options helps facilitate earlier entry into hospice and palliative care programs.* The nursing profession needs additional research to determine the effectiveness of the various types of end-of-life care available and steer end-of-life care toward evidence-based practice standards.     

Antemortem care in an afternoon: a successful four-hour curriculum for third-year medical students

Numerous well-designed studies have shown that patients near the end of life often receive substandard palliative care. Medical students have expressed a strong interest in antemortem care; however, palliative medicine education remains poorly integrated into the overall curriculum at most medical institutions in the United States. In response to this need, a palliative medicine curriculum has been developed for medical students in the required third-year clerkship in family medicine at the University of Tennessee Health Sciences Center The implementation of this curriculum resulted in a statistically significant increase in student competence (as measured by a standardized pretest and post-test) and a significant trend in student confidence (as measured by a single-item Likert scale). The curriculum was popular with students, and encouraged many of them to request hospice clinical experiences during their family medicine clerkship, or to register for the elective fourth-year clerkship in palliative medicine.     

Palliative care and hospice: one approach

The establishment of the first department of pain medicine and palliative care in a medical center in the United States is a significant marker in the development and impact of the palliative care movement. The integration of Jacob Perlow Hospice into this department is a milestone in the continued evolution of the hospice movement in the United States, and suggests that an interrelationship and interdependence between palliative care and hospice is one of the characteristics of change for the future.     

A collaborative end-of-life care curriculum.

Death and dying in America has received limited attention in medical education. The Southern Arizona VA Health Care System and the University of Arizona have collaborated with three nonprofit community hospice programs to develop an end-of-life care curriculum. This formal and comprehensive program is offered as a one-month elective to senior medical students, residents and fellows. The goal of the program is to improve clinical skills in caring for the dying patient and foster research in palliative and supportive care.     

The physician-hospice partnership: expanding opportunities to improve end-of-life care

People living with a life-limiting illness require expert medical care to control often debilitating symptoms. Beyond physical care issues, people at the end of life also need emotional and spiritual support for themselves and their loved ones. Hospices offer a range of services via an interdisciplinary team to meet the specialized needs of people at the end of life. This article will explore the physician-hospice partnership and the benefits to patients, family caregivers, and physicians when hospice care is accessed early in the dying process. Benefits of interdisciplinary, patient/family-directed care will be discussed. The range of palliative services being offered by many hospices will also be presented as a mechanism to increase access to end-of-life services for patients and family caregivers.     

Embracing the ecology of geriatrics to improve family medicine education

Family physicians currently provide almost half of the primary care for older patients in the United States. This proportion is expected to increase as the "baby boomers" age. Current care of older patients is characterized by poor recognition of mental status deficits, high use of inappropriate medications, inadequate recognition and treatment of geriatric syndromes, problems with quality of transitional care, and the need to incorporate new relevant bodies of knowledge, such as hospice and palliative care. Current family medicine training requirements do not address these needs, and training needs to be improved. Analysis of the medical ecology of geriatrics reveals extensive use of continuum-of-care services and institutions where large numbers of older patients receive care outside of the traditional teaching sites of hospitals and clinics. These continuum-of-care services and institutions, with their multidisciplinary teams and the patients in them, are ideal for family medicine resident education in many aspects of geriatrics. Family medicine can address these concerns by requiring a block rotation immersion experience around these themes that is integrated with the continuum of care.     

A road map for the last journey: home telehealth for holistic end-of-life care

The Advanced Illness/Palliative Care (AIPC) program started as a 2-year pilot project to determine if a telehealth model of care would benefit veteran patients with life-limiting illness. The goals of the project were to manage the physical, emotional, functional, and spiritual care needs during the last 2 years of patients' lives and to foster an earlier enrollment of patients into hospice by educating providers about palliative care. The AIPC program partners the skills and expertise of both spiritual and medical care practitioners, along with cutting-edge home telehealth devices to improve symptom management and quality of life for veterans and families coping with end of life.     

Pharmacy student training in United States hospices.

Hospice is a quickly growing field in health care in the United States. As the pharmacist's role in providing patient care to persons at the end of life increases, considerations should be given for training pharmacy students in this area. The objectives of this study were to examine the frequency of pharmacy student education and training among United States hospice organizations as well as to describe factors of hospice organizations that are associated with pharmacy student training. This is the first study of which we are aware to address the availability of experiential rotations for pharmacy students in hospice programs. A one-page questionnaire was mailed to 3,762 hospice organizations with addresses obtained from the National Hospice and Palliative Care Organization (NHPCO). Following two mailings, eight weeks apart, 907 responses were obtained. Ninety-four (10 percent) hospices trained pharmacy students, 246 (27 percent) trained medical students, 357 (39 percent) trained social work students, and 623 (69 percent) trained nursing students. These results indicate that the experiential training needs of United States pharmacy students are being addressed. However, further study is warranted to describe the various experiences of pharmacy students within the hospice setting.     

A better approach to care of the dying. Catholic healthcare and the Catholic community can present an alternative to physician-assisted suicide

To combat physician-assisted suicide, Catholic healthcare and the Catholic community cannot solely focus on mounting campaigns and formulating policies. They must also demonstrate an alternative way to approach death and care of the dying, taking a leadership role in improving end-of-life care. To accomplish this, Catholic healthcare must foster a culture that recognizes death as the inevitable outcome of human life and makes care for the dying as important as care for those who may get well. The ministry must acknowledge the limits of human life, human abilities, human ingenuity, and medical technology; and respect decisions to forgo life-sustaining therapies. In addition, physicians must address advance directives with patients before hospitalization and must be willing to offer hospice care as an option to dying patients and their families. More effective pain management must be devised. Catholic facilities must develop palliative care policies and commit to ongoing education to provide such care. It is essential that they pay attention to the environment in which patients die; identify the physical, psychosocial, and spiritual needs of family members; and use prayer and rituals in meaningful ways. With a clear focus on improving end-of-life care, Catholic healthcare--in partnership with other denominations--can eliminate some of the factors that can make physician-assisted suicide seem appealing to suffering people.     

A study of the preferences of family practitioners and other primary care physicians in treating patients' psychosocial problems

Family medicine specialists claim that they treat patients' psychosocial problems as well as their biological problems. Forty-four family physicians and 130 other primary care physicians at two urban medical centers in a large city completed a questionnaire designed to identify if any differences existed in their preferred mode of treating patients' psychosocial problems. Seventy percent of the time, family physicians, like other primary care physicians, preferred referring patients with psychosocial problems to social workers and other mental health experts to treating psychosocial problems themselves. The study has implications for family medicine, social work, and health care planning in the United States.     

Pediatric palliative care: an assessment of physicians' confidence in skills, desire for training, and willingness to refer for end-of-life care

This study determines the confidence levels of physicians in providing components of pediatric palliative care and identifies their willingness to obtain training and to make palliative care referrals. Surveys were mailed to all physicians at Primary Children's Medical Center. The survey instrument includes 3 demographic items, 9 items designed to assess physician confidence in core palliative care skills, and 4 items designed to assess what steps physicians would be likely to take to assure that patients receive palliative care. Physicians were asked to rate their confidence levels to provide palliative care components on a 4-point scale for each of the items. Five hundred ninety-seven surveys were mailed, with 323 usable surveys returned. The proportion of physicians who rate their ability to provide palliative care as "confident" or "very confident" ranges from 74% for giving difficult news to families to 23% for managing end-of-life symptoms. Thirty-six percent of the physicians say they would be "likely" or "very likely" to attend training to improve their ability to provide palliative care to children. Eighty-six percent would be "likely" or "very likely" to refer for a palliative care consult and 91% to a home health agency or hospice. There is wide variation in the confidence levels of physicians to provide the core components of palliative care. Few are interested in obtaining additional training, but most are willing to obtain consultation or to refer to a palliative care service. These results argue in favor of hospital-based palliative care teams and for specialty training and certification in pediatric palliative care.     

Towards Cultural Competency in End-of-Life Communication Training

To meet the needs of a more diverse population, a culturally sensitive approach to end-of-life communication is critical. This paper describes a unique communication workshop that introduces future physicians to the delivery of culturally responsive care for patients in palliative and end-of-life treatment. The workshop is embedded within the required fourth year medical student rotation in Geriatrics and Palliative Care. Using case-vignettes, role playing, and small group discussions, content areas include: breaking bad news, discussing advanced directives, and decisions regarding withdrawal or withholding of treatment. Post workshop student evaluations reveal an overwhelmingly favorable response to the curriculum, with high scores for overall quality of the workshop, practical value, and appropriateness for level of training. This workshop meets the goal for all graduating medical students to engage in culturally competent palliative and end of life patient care.     

Hospice and primary care physicians: attitudes,knowledge, and barriers

Underuse of hospice services is a significant problem in the United States. Primary care physicians constitute an increasing referral base and have been hypothesized to be important barriers to increased use. We conducted a mail survey of 131 primary care physicians (overall response rate of 72 percent), examining their attitudes toward, knowledge about, and perceived benefits and barriers to hospice care. Physicians demonstrated very favorable attitudes towards hospice. They had correct knowledge about most aspects of hospice, and, where they did not, they were far more likely to be uncertain than erroneous. Primary care physicians perceived many benefits to hospice care and identified patient and family readiness as the major barrier to earlier hospice referrals. A significant subgroup had concerns about problems in interacting with hospices. There were very few differences between family practitioners and general internists. These findings have many implications for directing collaborative efforts between primary care physicians and hospices to improve end-of-life care.     

Developing a physicians' palliative care pain hotline in Maryland

Physicians have had relatively little formal training in pain management and palliative care. For this reason, a telephone consultation service was offered, the physicians' palliative care pain hotline, that would allow physicians to call a toll-free number and, within 15 minutes, speak to a board-certified physician in hospice and palliative medicine. To our knowledge, this is the first program of its kind. This article describes the process involved in creating such a pain hotline and reports on some data collected on its use in the first 10 months. This report should help others who have an interest in establishing a similar program.     

Physicians' Perceptions of the Changing Health Care System: Comparisons by Gender and Specialties

This study was designed to investigate physicians' perceptions of changes in the United States health care system impacting academic medicine, quality of care, patient referrals, cost, ethical and sociopolitical aspects of medicine. A survey was mailed in 1998 to 1,272 physicians (graduates of Jefferson Medical College between 1987 and 1992); 835 physicians (66%) responded. Results showed that a substantial majority (92%) believed that learning to work in a managed care environment should become an essential component of medical education. Physicians perceived that current changes impair physicians' autonomy (94%), and restrain physicians' freedom to provide optimal care (84%). A sizable majority (76%) endorsed patients' freedom to seek specialist care, and 55% believed that capitation reduces physicians' motivation for long-term monitoring of patients. The majority endorsed universal health coverage (80%), and agreed to support rather than resist the changes (62%). Only 18% hold a positive view of the changes in the future. The majority believed that medical education should prepare physicians to provide end-of-life care (92%), and that organized medicine should take a stand on social issues that can influence the well-being of society (79%). Only 34% endorsed the legalization of physician-assisted suicide. No gender differences were observed, but a few differences were found between generalists and specialists. Results can help in understanding physicians' perceptions of current changes in the United States health care system, and in providing guidelines for the development of educational programs to prepare physicians to face new challenges.     

The need for medical ethics education in family medicine training

Professional and accreditation organizations have endorsed medical ethics as a fundamental component of education for family medicine trainees. Yet various obstacles combine to work against the continuation of formal medical ethics education beyond medical school and into residency training. This article reviews the current consensus on the scope and objectives of medical ethics education in the context of family medicine training. The need for, and outcomes of, medical ethics teaching are analyzed on the basis of the available evidence. Recent trends in medical education that potentially influence graduate medical ethics training are also discussed (specifically ethics training in medical schools and the priority given to training in professionalism). This review shows a strong evidence-based need to provide medical ethics education for family physicians in training, a need that is apparent on many levels. The current reliance on medical school ethics education and emphasis on professionalism does not answer this need. A well-constructed course in medical ethics for family medicine trainees can teach an array of competencies stipulated by professional and accreditation agencies as important in the practice of family medicine. Educators must strive to overcome barriers and provide formal medical ethics programs to better prepare family physicians for modern professional roles.     

Teaching end-of-life issues: current status in United Kingdom and United States medical schools

Our objective was to determine how broadly end-of-life issues are represented in the undergraduate medical school curricula of the United Kingdom (UK) and the United States (US). Mailed surveys yielded response rates of 100 percent in the UK and 92 percent in the US. With one exception, all medical schools in the survey offered some exposure to dying, death, and bereavement and most addressed the topic of palliative care. Hospice involvement was found in 96 percent of UK medical schools but in only 50 percent of US schools. Overall, the UK appears to provide more exposure to end-of-life issues in medical schools, although the US appears to be moving in that direction.     

Hospice and palliative care: an educational intervention for healthcare professionals in a rural community

The purpose of the study was to increase the awareness and availability of hospice care in rural communities. In Taos, New Mexico, a community of about 30,000 people, we developed an educational intervention that introduced the topic of end-of-life care and hospice to their healthcare professionals. We targeted nurses, physicians, and other related healthcare professionals. The nurses and allied health professionals received a half-day seminar. The physicians attended a grand round about hospice and palliative care lead by the local hospice medical director. This individual was an important member of the local medical staff and was certified in hospice and palliative medicine. After the intervention, we were able to demonstrate an increase in the hospice annual census by 85 percent (p < 0.001). Average length of stay was not altered (27.3 percent enrolled for six days or less preintervention, 29.5 percent enrolled for six days or less postintervention; p = 0.97). Similarly, the number of patients admitted with a non-cancer diagnosis was not affected (54.6 percent preintervention, 44.3 percent postintervention; p = 0.34). We concluded that the educational intervention significantly increased the number of patients referred for hospice care. However, it did not affect the length of stay or increase enrollment for people with a non-cancer diagnosis. The educational intervention was inexpensive, locally run, and very effective as demonstrated by the increase in hospice referrals. Exporting the model to other rural sites appears to be feasible.