|
|||||
|
|
Using a qualitative approach to conceptualize concerns of patients with neurofibromatosis type 1 associated plexiform neurofibromas (pNF) across the lifespan |
|
| Authors: | Jin‐Shei Lai Sally E. Jensen Zabin S. Patel Robert Listernick Joel Charrow |
| Affiliation: | 1. Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, Illinios;2. Department of Pediatrics, Northwestern University Feinberg School of Medicine, Chicago, Illinios;3. Ann & Robert H. Lurie, Children's Hospital of Chicago, Chicago, Illinios;4. Department of Surgery (Division of Organ Transplantation), Northwestern University Feinberg School of Medicine, Chicago, Illinios |
| Abstract: | |
| Keywords: | plexiform neurofibromas neurofibromatosis type 1 patient‐centered outcomes lifespan |