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Patient‐reported outcomes enhance the survival prediction of traditional disease risk classifications: An international study in patients with myelodysplastic syndromes
Authors:Fabio Efficace PhD  Francesco Cottone PhD  Gregory Abel MD  MPH  Pasquale Niscola MD  PhD  Gianluca Gaidano MD  PhD  Franck Bonnetain PhD  Amelie Anota PhD  Giovanni Caocci MD  Angel Cronin MS  Luana Fianchi MD  Massimo Breccia MD  Reinhard Stauder MD  Uwe Platzbecker MD  Giuseppe A. Palumbo MD  PhD  Mario Luppi MD  PhD  Rosangela Invernizzi MD  Micaela Bergamaschi MD  Lorenza Borin MD  Anna Angela Di Tucci MD  Huiyong Zhang MD  Mirjam Sprangers PhD  Marco Vignetti MD  Franco Mandelli MD
Affiliation:1. Data Center and Health Outcomes Research Unit, Italian Group for Adult Hematologic Diseases (GIMEMA), Rome, Italy;2. Division of Population Sciences, Dana‐Farber Cancer Institute, Harvard Medical School, Boston, Massachusetts;3. Hematology Unit, Sant'Eugenio Hospital, Rome, Italy;4. Division of Hematology, Department of Translational Medicine, University of Eastern Piedmont, Novara, Italy;5. Methodology and Quality of Life in Oncology Unit, University Hospital of Besan?on, Besan?on, France;6. Platform Quality of Life and Cancer, INSERM 1098, University of Franche‐Comté, Besan?on, France;7. Department of Medical Sciences, University of Cagliari, Cagliari, Italy;8. Institute of Hematology, Catholic University of the Sacred Heart, Rome, Italy;9. Division of Hematology, Department of Cellular Biotechnologies and Hematology, Sapienza University, Rome, Italy;10. Department of Internal Medicine V (Hematology and Oncology), Innsbruck Medical University, Innsbruck, Austria;11. Department of Medicine I, University Hospital Dresden Carl Gustav Carus, Dresden, Germany;12. UO Ematologia, AOU Policlinico‐V Emanuele, Catania, Italy;13. Department of Hematology, University of Modena, Modena, Italy;14. Department of Internal Medicine, University of Pavia, San Matteo IRCCS Policlinic Foundation, Pavia, Italy;15. San Martino Clinical Hematology Clinic, Genova, Italy;16. Department of Hematology, San Gerardo Hospital, Monza, Italy;17. Hematology and Bone Marrow Transplantation Unit, Armando Businco Hospital, Cagliari, Italy;18. Department of Hematology, Affiliated Hospital of Liaoning University of Traditional Chinese Medicine, Shenyang, China;19. Department of Medical Psychology, Academic Medical Center/University of Amsterdam, Amsterdam, the Netherlands
Abstract:
Keywords:fatigue  myelodysplastic syndromes  patient‐reported outcomes  quality of life  survival
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