Validity and reliability of the Portuguese version of the quality of life in epilepsy inventory (QOLIE-31) for Brazil |
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| Authors: | da Silva Tatiana Indelicato Ciconelli Rozana Mesquita Alonso Neide Barreira Azevedo Auro Mauro Westphal-Guitti Ana Carolina Pascalicchio Tatiana Frascarelli Marques Carolina Mattos Caboclo Luís Otávio Sales Ferreira Cramer Joyce A Sakamoto Américo Ceiki Yacubian Elza Márcia Targas |
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| Institution: | 1. Bethel Epilepsy Centre, Mara Hospital, 33617 Bielefeld, Germany;2. Society for Epilepsy Research, 33617 Bielefeld, Germany;1. Department of Pediatrics, McMaster University and McMaster Children''s Hospital, Hamilton, ON, Canada;2. Department of Psychiatry and Behavioural Neurosciences, McMaster University, Hamilton, ON, Canada;1. Department of Neurology, University Hospitals Coventry and Warwickshire, UK;2. Department of Epileptology, University of Bonn, Germany;3. Academic Neurology Unit, Royal Hallamshire Hospital, Sheffield, UK;1. Department of Community Health Sciences & O''Brien Institute of Public Health, University of Calgary, Calgary, Canada;2. Department of Clinical Neurosciences, University of Calgary, Calgary, Canada;3. Clinical Research Unit, University of Calgary, Calgary, Canada;4. Hotchkiss Brain Institute, University of Calgary, Calgary, Canada;5. Department of Psychiatry, University of Calgary, Calgary, Canada;6. Department of Internal Medicine, University of Manitoba, Winnipeg, Canada |
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| Abstract: | PURPOSE: We report the cultural adaptation and psychometric properties of the Quality of Life in Epilepsy-31 Inventory (QOLIE-31) for the Portuguese language and Brazilian culture. METHODS: This study involved 150 outpatients: 50 presurgical patients with refractory temporal lobe epilepsy (TLE) related to mesial temporal sclerosis (MTS), 50 patients with juvenile myoclonic epilepsy (JME), and 50 seizure-free patients with TLE. They completed the QOLIE-31, Nottingham Health Profile (NHP), Beck Depression Inventory (BDI), and Adverse Events Profile (AEP) and underwent a neuropsychological evaluation (NE). Internal consistency reliability, interrater and test-retest reliability, and construct validity were assessed. RESULTS: QOLIE-31 mean scores were 33.1 (Social Function), 68.9 (Overall Quality of Life), 56.5 (Seizure Worry), 64.1 (Emotional Well-Being), 63.7 (Energy/Fatigue), 38.9 (Cognitive Function), and 49.7 (Medication Effects). Internal consistency was high (Cronbach's alpha), as were the associations between QOLIE-31 and the BDI, NHP, AEP, and NE. CONCLUSION: The Portuguese/Brazilian version of the QOLIE-31 inventory showed good reliability, validity, and construct validity. |
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