基因公义与罕见疾病之健康照护权利

健康照护目前受到许多国家的关注，自2000年开始，在台湾的保健制度中，增加了罕见疾病的支付。这个发展固然有其人道意义，但涉及医疗资源的公平分配问题，需要深入分析。在医疗照护资源分配的公义理论中，最全面和一贯，而又言之成理的莫过于丹尼尔斯（Norman Daniels）发挥罗尔斯（John Rawls）的公义理论而成的医疗照护公义论。有关医疗照护和基因干涉的公义问题，除了分析丹尼尔斯的论述外，将更进一步运用儒家的相关论述，作一响应，和申论这两方面的公义问题。可以有怎样的合理的构想。

Genetic justice and the health care rights of rare disease

Health care is a hot issue.Health care insurance started to cover rare disease since 2000 in Taiwan,which made it one of the few countries following USA,EU and Japan to have such policy and law.This development shows the humanistic side of Taiwan health care policy,but the problem of fair medical resources allocation needs further analysis.Norman Daniels's development of the justice theory of John Rawls is the most comprehensive and reasonable one in the field of health care.This paper starts with Daniels analysis of the justice of genetic intervention and health care and explores the difference between Daniels and Confucain views on these two areas.Finally it tries to argue how the two could contribute to the solution of some of the problems in the field.