Parental experiences of adopting healthy lifestyles for children with disabilities living with overweight and obesity |
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| Institution: | 1. Community Nutrition and Dietetics Department, Evelina London Community Children''s Services, Part of Guy''s and St Thomas'' NHS Foundation Trust, London, UK;2. Faculty of Health & Human Sciences, School of Health Professions, The University of Plymouth, Plymouth, UK;1. VA Puget Sound Health Care System, Seattle, WA, USA;2. Department of Rehabilitation Medicine, University of Washington, Seattle, WA, USA;3. Department of Psychiatry and Behavioural Sciences, University of Washington, Seattle, WA, USA;1. Oklahoma State University Center for Health Sciences, College of Osteopathic Medicine, Office of Medical Student Research, Tulsa, OK, USA;2. Department of Surgery, University of Arizona College of Medicine, Tucson, AZ, USA;3. Department of Surgery, Oklahoma State Medical Center, Tulsa, OK, USA;4. Department of Internal Medicine, University of Oklahoma, School of Community Medicine, Tulsa, OK, USA;5. Department of Family Medicine, Alliance Health, Durant, OK, USA;1. Division of Human Development and Disability, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, Atlanta, Georgia;2. Office on Smoking and Health, National Center for Chronic Disease Prevention and Health Promotion, Centers for Disease Control and Prevention, Atlanta, Georgia;3. Office of the Director, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, Atlanta, Georgia;1. University of Pittsburgh School of Medicine, Pittsburgh, PA, USA;2. Department of Obstetrics, Gynecology and Reproductive Sciences, University of Pittsburgh School of Medicine, Pittsburgh, PA, USA;3. Magee-Womens Research Institute, Pittsburgh, PA, USA;1. UConn Health, Department of Obstetrics and Gynecology, 263 Farmington Avenue Farmington, CT 06030, USA;2. University of Massachusetts Chan Medical School, 55 Lake Ave N, Worcester, MA, 01655, USA;3. The Lurie Institute for Disability Policy, The Heller School for Social Policy and Management Brandeis University, 415 South Street Waltham, MA, USA;4. UMass Memorial Health Department of Obstetrics and Gynecology Memorial Campus, 119 Belmont Street, Jaquith Building Floor 2, Worcester, MA, 01605, USA;1. Department of Health Sciences, Northern Arizona University, 1100 S. Beaver Street Room 488, Flagstaff, AZ, 86011, United States;2. School of Social Work, Boston University, 264 Bay State Road, Boston, MA, 02215, United States;3. Department of Disabilities and Human Development, University of Illinois at Chicago, 1640 Roosevelt Road, Chicago, IL, 60608, United States;4. Combined Counseling/School Psychology Program, Northern Arizona University, 801 Knoles Drive, Flagstaff, AZ, 86011, United States;5. Massachusetts General Hospital Biostatistics Center, 50 Staniford Street, Boston, MA, 02114, United States;6. Department of Global Health, Boston University School of Public Health, 715 Albany Street, Boston, MA, 02118, United States;7. Division of Pediatric Health Outcomes Research, Massachusetts General Hospital, 125 Nashua Street, Boston, MA, 02114, United States;8. Department of Pediatrics, Harvard Medical School, 25 Shattuck Street, Boston, MA, 02115, United States |
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| Abstract: | BackgroundChildren with disabilities present with high obesity rates.ObjectiveThis study explored the parental experience of adopting healthy lifestyle choices, for children with disabilities, who received dietetic weight management advice.MethodsSemi-structured qualitative interviews were carried out with eight parents/carers in their own homes or healthcare setting in an inner London locality, or by telephone. Data was analyzed using an interpretative phenomenological analysis (IPA) approach.ResultsFive superordinate themes emerged: 1. Strategies to promote healthy lifestyles: encouraging physical activity, limiting access to food and taking a gradual approach to making lifestyle changes. 2. Challenges to adopting healthy lifestyles: selective eating patterns, the high cost of healthy foods and parental/carer lack of time. 3. The role of healthcare professionals (HCPs): revealed that not all parents/carers received advice or support, prior to dietetic referral, when managing their child's weight. Feeling reassured by HCPs was valued. Parents/carers reported a positive experience of seeing the dietitian, as they appreciated receiving practical and individualized advice. 4. Support needs: family support and support from families with children with disabilities was explored. 5. Parent/carer wellbeing: such as stress was found to have a detrimental impact on parents making healthy lifestyle changes.ConclusionsAdopting a healthy lifestyle involved a variety of strategies and challenges, some of which are specific to this population group and should be considered by HCPs, when having weight-related discussions and offering advice. Parental/carer support needs and wellbeing should also be taken into consideration when planning weight management services for this population group. |
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| Keywords: | Obesity Overweight Weight management Disability Parental experience |
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