| Abstract: | The National Commission on Orphan Diseases reports staggering and disturbing statistics: 30% of patients suffering from a rare disease must wait up to 5 years to get a diagnosis, 15% take 6 years or more to identify, and 50% reported a diagnosis within 1 year of visiting a doctor. Abbey Meyers, executive director of the National Organization of Rare Disorders (NORD), a Connecticut-based advocacy group, adds, “It was not reported how long patients were suffering with symptoms prior to actually being on a mission to find a solution.” |
