脊髓损伤患者及其配偶二元应对体验的质性研究

目的 探讨脊髓损伤患者及其配偶二元应对体验,为开展针对性的干预对策提供参考依据。 方法 采用目的抽样法,选取2020年4月—2021年3月入住安徽省某三级甲等综合医院脊柱外科的脊髓损伤患者12例及其配偶12名进行半结构化访谈,采用Colaizzi 7步分析法进行资料归纳并提炼主题。 结果 基于二元应对系统交互模型归纳出积极应对（共同面对、一致的疾病信念、转变沟通态度）、消极应对（适应困难、过度的保护行为、回避或冲突）、困难与挑战（亲密感丧失、寻求外部支持、构建新常态）共3个主题和9个亚主题。结论 脊髓损伤患者及其配偶积极应对与消极应对并存。医护人员需重视对患者及其配偶积极二元应对的引导,重点开展以夫妻为中心的应对干预,使其能更好地面对疾病,改善临床结局。

A qualitative research on the dual coping experience of patients with spinal cord injury and their spouses

Objective To explore the dual coping experience of patients with spinal cord injury and their spouses and to provide a reference for the targeted intervention strategies. Methods 12 spinal cord injury patients and their spouses admitted in a tertiary hospital in Anhui from April 2020 to March 2021 were selected by the purposive sampling and were interviewed in a semi-structured way. Colaizzi 7-step analysis was used to summarize and extract the themes. Results The final analysis yielded a total of 9 generic categories belonging to 3 categories based on the systemic transactional model. These were positive coping（face together,consistent disease beliefs,changing communication attitudes）,negative coping（difficulty in adaptation,excessive protective behavior,avoidance or conflict）,difficulties and challenges（loss of intimacy,seeking external support,building a new normal mode）. Conclusion Active coping and negative coping coexist in patients with spinal cord injury and their spouses. Medical staff should pay attention to the active dual response guidance of patients and their spouses,focus on couple-centered coping interventions,in order to better cope with the disease and improve clinical outcomes.