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‘It's like a bag of pick and mix – you don't know what you are going to get’: young people's experience of neurofibromatosis Type 1 |
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| Authors: | Jenny Barke BA Dip Psych Diana Harcourt MSc PhD Jane Coad PhD RGN/RSCN PG Dip |
| Institution: | 1. Centre for Appearance Research (CAR), University of the West of England, , Bristol, UK;2. Centre for Children and Families Applied Research (CCFAR), Faculty of Health and Life Sciences, Coventry University, , UK |
| Abstract: | |
| Keywords: | adolescence appearance disfigurement neurofibromatosis type 1 nf1 nursing qualitative visible difference young people |