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Family communication challenges of adolescents and young adults with Li-Fraumeni syndrome: Implications for psychosocial care
Institution:1. Clinical Genetics Branch, Division of Cancer Epidemiology and Genetics, National Cancer Institute, Rockville, USA;2. Steve Hicks School of Social Work, University of Texas at Austin, Austin, USA;3. Department of Physical Medicine & Rehabilitation, Cedars-Sinai Medical Center, Los Angeles, USA;4. College of Nursing, The University of Tennessee, Knoxville, USA;5. School of Social Policy and Practice, University of Pennsylvania, Philadelphia, USA;1. Nivel, Netherlands Institute for Health Services Research, Department of Communication in Healthcare, Utrecht, Netherlands;2. Radboud University Medical Center, Radboud Institute for Health Sciences, Department of Primary and Community Care, Nijmegen, Netherlands;3. Leiden University, Health, Medical and Neuropsychology Unit, Institute of Psychology, Leiden, Netherlands;4. Leiden University, Leiden Institute for Brain and Cognition, Leiden, Netherlands;5. Radboud University Medical Center, Department of Medical Oncology, Nijmegen, Netherlands;1. C.T. Lamont Primary Health Care Research Centre, Bruyère Research Institute, Ottawa, Ontario, Canada;2. eConsult BASE? Manitoba, Manitoba, Canada;3. School of Public Health, Edmonton Clinic Health Academy, University of Alberta, Edmonton, Canada;4. Department of Family Medicine, Faculty of Medicine, University of Ottawa, Ottawa, Canada;5. Ontario eConsult Centre of Excellence, The Ottawa Hospital, Ottawa, Canada;1. Division of General Pediatrics, Department of Pediatrics, Children’s Hospital of Philadelphia, Philadelphia, USA;2. Center for Pediatric Clinical Effectiveness, Children’s Hospital of Philadelphia Research Institute, Philadelphia, USA;3. Maternal and Child Health Research Center, Department of Obstetrics and Gynecology, University of Pennsylvania, Perelman School of Medicine, Philadelphia, USA;4. Division of Neonatology, Department of Pediatrics, Children’s Hospital of Philadelphia. Philadelphia, USA;5. Department of Health Behavior and Health Education, School of Public Health, University of Michigan, Ann Arbor, USA;1. Department of Public Health and Primary Care, KU Leuven, Leuven, Belgium;2. Department of Human Genetics, KU Leuven, Leuven, Belgium;3. Department of Gynaecology and Obstetrics, Jessa Ziekenhuis, Hasselt, Belgium;4. Department of Development and Regeneration, KU Leuven, Leuven, Belgium;5. Department of Human Genetics, KU Leuven, Leuven, Belgium;1. Faculty of Science, School of Psychology, Griffith Taylor Building, The University of Sydney, NSW 2006, Australia;2. Psycho-Oncology Co-operative Research Group (PoCoG), Faculty of Science, School of Psychology, Level 6 North, Chris O′Brien Lifehouse, The University of Sydney, NSW 2006, Australia
Abstract:
Keywords:Adolescents and young adults  Li-Fraumeni syndrome  Cancer  Genetic disease  Family communication
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