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癌症患者的信息需求—应否与如何告知癌症诊断
引用本文:黄雪薇,王秀丽,张瑛,吕保祥,李廷杰.癌症患者的信息需求—应否与如何告知癌症诊断[J].中国心理卫生杂志,2001,15(4):265-267,270.
作者姓名:黄雪薇  王秀丽  张瑛  吕保祥  李廷杰
作者单位:1. 广东药学院临床医学系,510224
2. 广州市肿瘤医院
3. 广东药学院医学统计教研室,510224
4. 中山医科大学肿瘤医院
基金项目:本课题受广东省医学科学技术研究基金资助(编号A1999270)
摘    要:目的:研究应否及如何告知患者其癌症诊断。方法:在定性研究基础上以自答问卷调查广州市两所肿瘤医院和省生命之光俱乐部、清楚本人癌症诊断的患者311名。结果:72.99%患者认为“应该告知”其癌症诊断,24.12%认为“因人而异”,2.89%认为“不应告知”。目前给予信息4的某些医患交流与患者的期望有一定距离。大部分患者期望肿瘤科医师在最短时间内、面对面地、在医院内、以关心同情或较好接受的态度告知其或及其家庭癌症诊断。年龄、性别、职业、学历、病期、病程对其观点有一定影响,个性和癌症诊断则无明显影响。结论:肿瘤科医师应以最佳的医患交流方式为患者提供有关癌症诊断的信息。

关 键 词:患者  癌症  诊断  医患交流

Information Needs of Cancer Patients whether and how to disclose the diagnosis of cancer
Abstract:Objective: To study whether and how to disclose the diagnosis of cancer to patients Method: A self-report questionnaire was designed for this study based on previous research and qualitative data generated from focus group A total of 311 cancer patients from two tumor hospitals of Guangzhou and the "Light of Life" club of Guangdong answered questions of whether and how to disclose the diagnosis of cancer to patients, as well as their expectation and experiences of communication with physicians at the time of diagnosis Results: 72 99% patients believed that patients should be told their cancer diagnosis, while 24 12% thought that it should depend on personal situation Only 2 89% held the view of opposite There was great difference between patient expectation and real experience of communication with physicians at the time of diagnosis Most cancer patients preferred to be direct informed shortly after the diagnosis was made in hospitals,of course, which with caring and sympathetic or comfortable, face to face communication style(or fashion) The views of patients were also influenced by their age, gender, occupation,education, period and course of disease, but not by type of cancer and personality Conclusion: Diagnosis of cancer should be informed to patients according to their personal situation
Keywords:patients  cancer  diagnosis  Doctor-patient communication
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