Priority-setting and feasibility of health information exchange for primary care patients with intellectual disabilities: A modified Delphi study |
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| Affiliation: | 1. Department of Primary and Community Care, Radboud University Medical Center, Nijmegen, The Netherlands;2. Biometris, Wageningen University & Research, Wageningen, The Netherlands;1. Section of Plastic Surgery, Department of Surgery, University of Michigan Medical Center, University of Michigan Health System, 1500 East Medical Center Drive, 2131 Taubman Center, Ann Arbor, MI 48109, USA;2. Michigan Bariatric Surgery Collaborative, Center for Healthcare Outcomes and Policy, North Campus Research Complex, 2800 Plymouth Road, B016, Ann Arbor, MI 48109, USA;3. Department of Surgery, University of Michigan Medical Center, 1500 East Medial Center Drive, Ann Arbor, MI 48109, USA;1. Department of Surgery, Division of Public Health Sciences, Washington University School of Medicine, St. Louis, USA;2. Center for Adaptive Behavior and Cognition, Max Planck Institute for Human Development, Berlin, Germany |
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| Abstract: | ObjectiveAccurate health information exchange (HIE) is fragile in healthcare for patients with intellectual disabilities (ID), threatening the health outcomes for this patient group. In conjunction with a group of experts, we aimed to identify the principal actions and organisational factors facilitating HIE for primary care patients with ID and to assess their perceived feasibility in daily practice.MethodsWe conducted a two-round modified Delphi study with Dutch GPs (n = 22), support workers (n = 18) and ID physicians (n = 20). In an extensive set of 61 items covering actions and organisational factors, experts ranked items in order of importance and rated their feasibility.ResultsAgreement was reached on the importance of 22 actions and eight organisational factors, of which 82% were deemed (very) feasible in daily practice. Experts stressed the importance of listed actions and factors being implemented simultaneously and remarked that further priority should be based on contextual demands.Conclusion and practice implicationsThis study indicates the principal actions and organisational factors for HIE regarding primary care patients with ID. The set can be used as a practical guide to optimise inter-professional cooperation and arrange the distribution of HIE roles and responsibilities in relation to this patient group. |
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| Keywords: | Health information exchange Intellectual disabilities Delphi study Inter-professional cooperation Quality of healthcare Continuity of patient care |
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