The information needs of adult cancer survivors across the cancer continuum: A scoping review |
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| Affiliation: | 1. School of Nursing, Hong Kong Polytechnic University, Hong Kong;2. School of Nursing, Queensland University of Technology, Brisbane;3. Institute of Health and Biomedical Innovation, Queensland University of Technology, Brisbane;4. Cancer Nursing Professorial Precinct, Royal Brisbane and Women’s Hospital, Brisbane, Australia;5. Wuxi School of Medicine, Jiangnan University, Wuxi, China;6. Nethersole School of Nursing, Chinese University of Hong Kong, Hong Kong;17. Faculty of Nursing, Mahidol University, Bangkok;8. Nursing Department, Faculty of Medicine Siriraj Hospital, Mahidol University, Bangkok, Thailand;9. Faculty of Nursing and Medical Care, Keio University, Tokyo, Japan;10. University of Nursing, Yangon, Myanmar;11. College of Nursing, Seoul National University, Seoul, Republic of Korea;12. College of Nursing, Christian Medical College, Vellore, India;13. Alice Lee Centre for Nursing Studies, National University of Singapore, Singapore;14. College of Medicine, Bicol University, Philippines;15. Cancer Care Services, Royal Brisbane and Women’s Hospital, Brisbane;16. School of Medicine, University of Queensland, Brisbane, Australia |
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| Abstract: | ObjectiveTo provide an updated synthesis of the literature that investigates the self-reported information needs of people diagnosed with cancer across the cancer continuum.MethodsWe conducted a scoping review of the literature published from August 2003 to June 2015 and expanded an existing typology summarizing the information needs of people diagnosed with cancer.ResultsThe majority of the included studies (n = 104) focused on questions relevant to the diagnosis/active treatment phase of the cancer continuum (52.9%) and thus the most frequently identified information needs related to this phase (33.4%). Information needs varied across the continuum and the results highlight the importance of recognising this fact.ConclusionPeople diagnosed with cancer experience discrete information needs at different points from diagnosis to survival. Much of the research conducted in this area has focused on their information needs during the diagnosis and treatment of cancer, and literature relating to information needs following completion of treatment is sparse.Practice implicationsFurther research is needed to discern the specific nature of the treatment concerns and identify the information needs that survivors experience during recurrence of cancer, metastasis or changes in diagnosis, and the end of life phase of the cancer continuum. |
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| Keywords: | Cancer Information needs Review Survival Communication |
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