癫痫患者及其家属癫痫知识水平的调查分析

目的 调查癫痫患者及其家属对癫痫知识的掌握程度。方法 以在华山医院门诊诊治的癫痫患者及其家属各170人为研究对象,采用问卷调查的形式了解其个人情况和癫痫的患病情况,并进行一项包含34个问题(满分为34分)的"癫痫知识问答"。结果 癫痫患者和家属"癫痫知识问答"的平均得分均较低,分别为16.5分±8 2分和16.1分±8 5分,差异无统计学意义。城区患者及其家属回答正确率明显大于郊区患者及其家属。调查对象对癫痫的"病因"知识掌握最为不足。多因素分析显示,"癫痫知识问答"的得分与患者的居住地(城区／郊区)(P-0 0001,OR=52 963)和文化程度(P=0.0294,OR=2 266)有关,郊区患者和文化程度低患者的癫痫知识掌握较差。"癫痫知识问答"的得分仅与家属的居住地(P=0 0001,OR=37.229)有关,郊区家属得分较低。结论 应重点加强对农村地区癫痫患者及其家属的知识普及和教育。

Survey on the knowledge of epilepsy to patients and their family members

OBJECTIVE: To study the epilepsy patients and their family members on their knowledge of the disease. METHODS: A 34-point questionnaire with 34 questions related to epilepsy knowledge was used for the survey on 170 pairs of epilepsy patients and their family members in Huashan hospital. Characters of the disease on the subjects were recorded. RESULTS: The mean scores of the epilepsy knowledge of the patients and their family members were 16.5 +/- 8.2 and 16.1 +/- 8.5, respectively. The scores were quite low with no statistical difference between patients and their family members. The rate of correct answer in the urban subjects was obviously higher than those subjects living in the rural areas. All the subjects lacked the knowledge on the "cause of disease" when comparing with items as "diagnosis" and "treatment". Multivariate analysis showed that rural residents (P = 0.0001, OR = 52.963) and low education level (P = 0.0294, OR = 2.266) related to low epilepsy knowledge score among epilepsy patients. However, for family members, the factor related to low score was only living in the rural area (P = 0.0001, OR = 37.229). CONCLUSION: Education on the epilepsy knowledge should be strengthened, especially in the rural areas.